La sensibilité à la stimulation de l’environnement, y compris lumières, bruits forts, et même certaines odeurs, peut faire vivre avec la fibromyalgie particulièrement difficile. Vous pourriez réveiller chaque matin en se demandant ce nouveau déclencheur peut aggraver vos symptômes de la fibromyalgie.
« Je traite de tout au jour le jour », explique Stephanie Parker de Douvres, Del., Qui croit que ses symptômes sont compatibles avec la fibromyalgie, mais n’a pas encore été officiellement diagnostiqué. Les symptômes de l’empêcher de participer à des activités familiales quotidiennes, telles que regarder les jeux de ballon de ses enfants l’après-midi.
Tina Pringle, qui a été diagnostiqué il y a 16 ans avec la fibromyalgie, dit que ses symptômes de la fibromyalgie ont été accablant parfois. « Les symptômes se fondent tous ensemble, et à cause du brouillard de la fatigue et le cerveau, tout devient un labyrinthe de confusion pure », explique Pringle.
Le résident Royaume-Uni dit que son ophtalmologue a identifié sa sensibilité à la lumière, mais il est sa sensibilité au son qui est le plus troublant. « Détonations, un enfant qui pleure, la musique forte, en criant, chiens aboyer, et mon pire ennui, en sifflant, sont un problème », dit-elle. « Les bruits résonnent dans ma tête comme une cymbale retentissante et la cause de mon corps à se crisper. »
Comme la tension augmente, il en va de sa douleur de la fibromyalgie, et elle doit se retirer dans une pièce sombre pour se détendre. Sa réaction est particulièrement problématique à la maison, où sa fille adolescente aime souvent jouer de la musique forte et se comporter de façon typiquement adolescent tumultueux.
Le bruit est juste le début de l’angoisse sensorielle qui pourrait contribuer à votre douleur de la fibromyalgie. Les personnes vivant avec la fibromyalgie rapport:
- La douleur chronique et la tendresse
- Sensibilité accrue au toucher ou à la pression
- Augmentation de la sensibilité aux bruits forts
- une plus grande sensibilité aux odeurs désagréables
- Augmentation de la sensibilité aux changements de température
- une sensibilité accrue à certaines saveurs
Qu’est-ce qui se passe dans votre tête
Cette sensibilité accrue peut être difficile pour vous de comprendre, et encore moins expliquer aux amis et aux membres de la famille qui ne voient aucun problème à l’ extérieur. Les sensations inconfortables et douloureuses de la fibromyalgie peuvent faire partie de votre façon inhabituelle de cerveau de traitement de la douleur, suggère le chercheur de la fibromyalgie Benjamin Natelson, MD, professeur de neurologie à l’Albert Einstein College of Medicine à New York et auteur de vos symptômes sont réels: Qu’est – ce que à faire quand votre médecin ne dit rien est faux.
Selon une étude publiée dans les Archives de médecine physique et de réadaptation qui ont comparé et analysé les rapports des femmes souffrant d’ arthrite rhumatoïde, les femmes atteintes de fibromyalgie, et les femmes sans syndrome de douleur, ceux qui ont la fibromyalgie étaient beaucoup plus susceptibles de déclarer des réponses intenses, désagréables aux sons , les odeurs, les goûts et les sensations tactiles.
Une autre étude, publiée dans la revue Pain Research et traitement, suggère que les changements dans la chimie du cerveau chez les personnes atteintes de fibromyalgie peuvent être liés à la sensibilité à des stimuli tels que le son et l’ odeur. Des études d’imagerie ont fourni des représentations visuelles de cette altération de la réponse aux sensations. À certains égards, le cerveau des personnes atteintes de fibromyalgie peuvent être hyper-sensible à la possibilité même de la douleur ou de l’ inconfort, explique le Dr Natelson.
Les chercheurs ont également testé des échantillons de tissus et a trouvé des taux élevés de marqueurs inflammatoires dans la peau des personnes atteintes de fibromyalgie – qui peuvent être liés à une hypersensibilité au toucher. la sensibilité tactile est réelle pour les gens comme Pringle, qui dit qu’il ya des moments où même se tenant la main avec son partenaire est trop pénible à supporter. Les vêtements qui sont trop serrés, des massages, et même la lumière touche rochet tout sa douleur et le stress. Pour aggraver les choses, Pringle dit-elle parfois même tressaille involontairement quand ils sont touchés par d’autres, qui peuvent être blessants à ceux autour d’elle.
Que faire sur les symptômes de la fibromyalgie
Comment pouvez-vous résoudre un problème qui pourrait provenir du câblage de votre cerveau? Voici quelques mesures pratiques que vous pouvez prendre pour gérer ces symptômes sensoriels:
- Travailler avec un médecin de soutien. « Si votre médecin ne croit pas que vous avez la fibromyalgie, obtenir un nouveau, » souligne Natelson. Le traitement de la douleur sera plus efficace, dit – il, quand vous et votre médecin êtes sur la même équipe. Trois médicaments sur ordonnance ont été approuvés pour le traitement de la fibromyalgie et pourrait vous aider à gérer votre douleur de la fibromyalgie et de réduire votre hypersensibilité.
- Être actif. Un examen de l’ exercice dans le cadre du traitement de la fibromyalgie, publiée dans la revue Rheumatology International, a montré que l’ exercice aérobie peut compenser la douleur et minimiser la sensibilité des points sensibles. Natelson conseille le conditionnement physique en douceur. Sa prescription: «Marcher pendant 30 minutes tous les deux jours à environ 1,5 à 2 miles par heure » Cela augmente le flux sanguin vers les muscles et les tissus. Très progressivement, augmenter votre rythme à environ 3,6 mph. Ce niveau d’activité « semble réguler négativement la perception de la douleur » , explique Natelson. La marche est idéal à l’ extérieur, mais si vous êtes sensible aux changements de température, la lumière, les odeurs, et d’ autres sensations, commencez un programme de marche à l’ intérieur de votre maison ou à la salle de gym.
- Évitez vos déclencheurs. Autant que vous pouvez, contrôler votre environnement afin que vous limiter les causes possibles de l’ inconfort:
- Aérez bien votre maison pour enlever les odeurs fortes.
- Pensez à des bouchons d’oreille ou casque anti-bruit pour minimiser ou éliminer les sons forts.
- Prenez soin de votre peau et réduire l’irritation en utilisant des produits doux et d’éviter des températures extrêmes, telles que l’eau très chaude ou très froide.
- Portez des vêtements amples et robe en couches de lumière que vous pouvez supprimer si le poids de vos vêtements commence à irriter votre peau.
- Fixer des limites. Lorsque sa sensibilité à la lumière est particulièrement intense, Pringle explique simplement aux membres de la famille qu’elle ne peut pas regarder la télévision avec eux à ce moment précis.
- Créer une retraite. Les jours particulièrement difficiles, une chambre confortable, cool, sombre pourrait être un endroit apaisant pour se détendre et se ressourcer.
- Porter des lunettes de soleil. A l’intérieur ou à l’extérieur, si vous vous sentez sensible à la lumière ou certains motifs, mettre des nuances et donner à vos yeux une pause.
Symptômes de la fibromyalgie qui affectent tous vos sens peuvent faire chaque jour une lutte, et lorsque vous rencontrez des difficultés à gérer votre sensibilité, vous pouvez être tentés de rester à la maison et éviter la socialisation et être à l’extérieur. Même si, Natelson dit que ce n’est pas une bonne stratégie à long terme. Au lieu de cela, travailler en étroite collaboration avec votre médecin pour élaborer des stratégies qui limitent votre exposition à certains facteurs déclenchants sans vous empêcher de profiter du monde autour de vous.
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