Quand vous êtes malade de fibromyalgie, il semble qu’une partie de vous quitte pour ne plus jamais revenir. Rappelez-vous comment vous étiez avant et qui fait parfois vous tombez dans une fosse d’où salir.Pueden être des maladies très difficiles qui sont évidentes aux yeux des autres, ou comme dans le cas de la fibromyalgie, vos entrailles peuvent être détruits peu à peu, et cela n’est pas perceptible à l’œil nu, prenant ceci dans un vide où l’incompréhension et vos propres limites vous prennent jour après jour. Vous amener à un état d’invalidité totale.
Cette mai a été la Journée internationale de la fibromyalgie, c’est une maladie chronique qui produit principalement un sommeil agité, une fatigue extrême et une douleur musculo-squelettique diffuse. Bien que vraiment, la fibromyalgie a plus d’une centaine de symptômes.
Aujourd’hui, il affecte 5% de la population, principalement des femmes.
On ne sait pas encore exactement ce qui le produit, et il n’y a pas de remède; Ce qui est clair, c’est le niveau d’invalidité qui survient dans la vie des personnes touchées, ce qui, malheureusement, ne semble pas être pris en compte à l’heure actuelle.
Des activités telles que faire le lit sont les plus douloureux, quelque chose d’aussi nécessaire que le plaisir, que ce soit la danse ou tout simplement rire, conduit à une fatigue extrême qui provoque l’essoufflement des palpitations cardiaques et respiratoires. Jouer avec vos enfants ou courir après eux devient impossible.
Votre vie change complètement, vous cessez d’être ce que vous deviez devenir quelqu’un incapable de mener une vie normale.
Le manque de sommeil réparateur affecte votre esprit très négativement, produisant des lacunes, un manque de réflexes, une pensée claire et même un manque de coordination. Il a été démontré que les patients atteints de fibromyalgie ne maintiennent pas une phase REM linéaire pendant leur sommeil, mais qu’il existe des pics altérés qui les empêchent d’avoir un sommeil profond. C’est comme si tu n’avais pas dormi.
L’expression ” ça fait mal ” est répétée quotidiennement dans la vie du patient avec la fibromyalgie.
Le combat commence quand vous sortez du lit tous les matins, avec une fatigue extrême , la rigidité s’empare de votre corps, votre première minute de la journée est vraiment épuisante. Une fois que vous l’avez surmonté, il est possible que l’énergie ne dure que quelques heures, et après cela, vous êtes à nouveau épuisé, comme si vous terminiez une journée intensive avec garde incluse.
Le seuil de la douleur est si bas qu’une simple caresse ou câlin rend la peau brûlante, rendant le contact physique particulièrement compliqué.
Tout blesse , parfois même les ongles ou les cheveux. Douleurs semblent juste pour faire bouillir pour se reposer, mais ne peuvent pas se permettre de passer toute la journée au lit, donc je préfère de combattre et de mener une vie aussi normale que possible, bien que cela aura un impact négatif sur votre création vous nouvelle santé épidémies en raison de votre forte demande .
Vous vous sentez fatigué, vous vous sentez douloureux, impuissant, inutile.
Tout cela conduit à une profonde dépression que les antidépresseurs ne vous aident pas à sortir, la seule façon de surmonter serait cesser d’y penser, mais malheureusement il est impossible, vous devez travailler pour manger, payer votre maison et de garder vos enfants, et chaque effort, même minime, vous rappelle vos limites.
Les gens ne vous comprennent pas, vous avez une maladie invisible, vous ne pouvez pas la voir, mais vous la portez à l’intérieur. Et le pire n’est pas le manque de compréhension, le pire est qu’ils remettent en question ce que vous ressentez. Après quelques années de médecin à médecin jusqu’à ce que vous diagnostiquer la fibromyalgie , vous devez faire face que vous ne croyez pas, ils vous appellent paresseux, ils vous disent que vous devenez la victime; Non seulement ils ne vous aident pas, mais ils vous enfoncent plus profondément dans la boue.
Le médicament n’aide pas beaucoup, ils réussissent seulement à vous étourdir plus, et que si vous êtes chanceux de ne pas être affecté par les effets secondaires. Ils recommandent l’exercice physique, dans vos limites, bien sûr. Vous pourriez être en mesure de s’étirer pendant cinq minutes, puis ne pas être en mesure de quitter le canapé pendant deux jours.
Vous ne pouvez pas travailler ou prendre soin de votre maison ou de votre famille. Mais vous ne pouvez pas non plus avoir une qualité de vie acceptable, car bien que la fibromyalgie soit une maladie chronique et cause un handicap , elle n’est pas vraiment reconnue lors de la demande d’invalidité. Oui, c’est une maladie réelle, mais apparemment, pour certains, ce n’est pas quelque chose qui est quelque peu humiliant.
Peu de gens ont réussi à être entendus, mais pas avant d’avoir été forcés de présenter leur cas devant un juge, épuisant toutes leurs économies dans les avocats et la médecine légale, puis obtenant une pension minimum. Mais si la fibromyalgie vous affecte quand vous êtes jeune, vous coupe la vie, vous n’avez rien à faire, parce que vous n’avez pas assez payé.
Et cela n’a pas d’importance si tout cela complique votre existence, si en dehors de tout ce qui a été mentionné précédemment, réduit considérablement les chances de posséder votre propre vie.
Beaucoup de jeunes voient quelque chose d’aussi simple que de former une famille impossible, non seulement à cause des craintes concernant leurs problèmes physiques, mais parce que les relations personnelles ou familiales ne se concrétisent généralement pas. Tout le monde ne l’accepte pas, encore moins apprendre à vivre avec une personne malade.
Les échecs du couple, du travail, de la famille … ou simplement le fait de ne pas être capable de faire ce que le corps demande ou ce que votre coeur vous envoie, non seulement provoquent des dépressions, mais tout cela conduit à se sentir détruit et beaucoup de gens a décidé de mettre fin à ses souffrances.
Ces personnes méritent d’être traitées avec les mêmes droits que toute personne, parce qu’elles sont des personnes, et seulement pour cette raison elles ont le droit d’avoir une vie décente, elles ont le droit de sourire, de jouir de la vie et de la famille, d’être comprises et acceptées, se sentir valorisé et respecté. Se sentir soutenu par les médecins et les institutions publiques. Ils ont le droit de se nourrir et de vivre sous un toit qu’ils peuvent se permettre.
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