Fibromyalgi: “Vi dør ikke, men vi lever heller ikke”

Intervju – Patientpleiebanen er ennå ikke organisert. Et medlem lyder alarmen. Selv om, ifølge ham, er leger mobilisert.

Denne chilling setningen er kanskje den mektigste av parlamentarisk rapport om fibromyalgi, publisert 7 måneder siden, dag for dag. “Vi dør selvfølgelig ikke, men vi lever heller ikke. Med sine 20 forslag ble dokumentet diskutert. Før du faller tilbake i glemsel. På denne World Fibromyalgia Day, 12. mai, er det klart at kravene fra nasjonalforsamlingen forblir et dødbrev.

Men forslagslisten hadde ingenting å gjøre med magikeren: å bedre forstå epidemiologien av denne lidelsen, plassere de mest alvorlige tilfellene i forhold langsiktig (DAL), strukturere løpet av omsorg … For å bestille noe konkret. Gjennomgå med hovedforfatteren, nestleder for Oise Patrice Carvalho (Venstrefront).

Har rapporten blitt fulgt?

Patrice Carvalho   : Kommer fra Marisol Touraine, ikke i det hele tatt. Men det går i medisinsk yrke. Leger som virkelig ikke forsto sykdommen begynner å bli interessert. Trening er etablert som gjør at leger bedre forstår hva vi snakker om. Smerten er så forskjellig fra en pasient til en annen at det er vanskelig å diagnostisere godt. Jeg tror at rapporten har endret ting. Vi snakker om fibromyalgi, og vi har brakt sykdommen til hjertet av debatten. Dette bidrar til å stimulere til å tenke.

To helsemyndigheter ble beslaglagt …

Patrice Carvalho   : Jeg gleder meg veldig til Inserm-rapporten (Helse- og medisinforskningen,  ed  ). Når det blir offentlig, vil jeg be den nye republikkens president om å gjøre fibromyalgi en nasjonal årsak. Det virker viktig at regjeringen tar vare på det. Marisol Touraine, i sin obstinacy for ikke å øke utgiftene, ville ikke snakke om sykdommen, men bare om smerten.

Hva er prioritetene?

Patrice Carvalho   : Så snart Helsedepartementet er utnevnt, vil jeg møte med ham slik at ting beveger seg. Vi har utarbeidet en rapport, vi godkjente endringer. Men alt dette forblir et dødt brev. Fibromyalgi forstår ikke hvorfor lovene ikke er vedtatt. Det er nødvendig å kommunisere med pasienter, for å være trøstet. Pasienter trenger en tilstand, for eksempel personer med diabetes eller kreft. Hvor ting har utviklet seg, er det mest i smerte sentre. Løsningen er der: veien til omsorg må være strukturert. Mens det medisinske yrket forblir uvitende, vil det ikke fungere.

Rapporten din markerte høye kostnader for fibromyalgi

Patrice Carvalho   : ja. Folk tar mye medisin uten å vite om det er tilstrekkelig. Noen bruker medisiner for psykiatri, andre bruker smertestillende midler. Det vil ikke være uten virkning i fremtiden. Du må nærme ting forskjellig. Hvis vi ikke finner rettsmidler, blir det verre og verre. I dag har vi en kortsiktig visjon. Men 2 millioner mennesker er rammet. Og noen leger kjenner fortsatt ikke sykdommen, mens de av sosial sikkerhet nekter å anerkjenne det og avviser arbeidsstopp. Det er en ekte smerte.

123 thoughts on “Fibromyalgi: “Vi dør ikke, men vi lever heller ikke”

  1. An interesting discussion is worth comment. I think that you ought
    to write more about this topic, it might not be a taboo matter but typically people do not speak about these issues.
    To the next! Cheers!!

  2. Do you have a spam problem on this website; I also am a
    blogger, and I was wondering your situation;
    many of us have developed some nice practices and we are looking to swap techniques with others, why
    not shoot me an e-mail if interested.

  3. Hello, Neat post. There is a problem with your website in web explorer, might check this?
    IE nonetheless is the marketplace leader and a huge component to
    other folks will pass over your fantastic writing because of this problem.

  4. Howdy! This is my first visit to your blog!
    We are a group of volunteers and starting a new initiative in a
    community in the same niche. Your blog provided us beneficial information to work on. You have done a extraordinary job!

  5. What’s Taking place i am new to this, I stumbled upon this I’ve found
    It positively useful and it has aided me out loads.
    I hope to contribute & help different customers like its aided
    me. Great job.

  6. Heya i’m for the primary time here. I found this board and I find It really helpful & it helped me out a lot.
    I hope to present one thing back and aid others like you aided me.

  7. Hi, I do believe this is an excellent blog. I stumbledupon it 😉 I am going to come back yet again since i have book-marked it.
    Money and freedom is the best way to change, may you be
    rich and continue to help others.

  8. Thanks for your personal marvelous posting! I seriously enjoyed
    reading it, you could be a great author. I will always bookmark your blog and will eventually come back very soon. I want to encourage one to continue your great posts, have a nice afternoon!

  9. I’ve been browsing online more than three hours today, yet I never found any interesting article like
    yours. It’s pretty worth enough for me. In my opinion, if all site owners and bloggers made good content as you did,
    the internet will be a lot more useful than ever before.

  10. Hi there, i read your blog occasionally and i own a similar one
    and i was just wondering if you get a lot of spam remarks?
    If so how do you stop it, any plugin or anything you can suggest?
    I get so much lately it’s driving me mad so any support is very much
    appreciated.

  11. Admiring the persistence you put into your website and
    in depth information you provide. It’s awesome to come across
    a blog every once in a while that isn’t the same outdated rehashed information. Fantastic read!
    I’ve bookmarked your site and I’m including your RSS feeds to my Google
    account.

  12. Very nice post. I simply stumbled upon your blog and wished to mention that I
    have truly loved surfing around your blog posts. In any case I will be subscribing on your rss feed and I’m hoping you write once more very
    soon!

  13. Oh my goodness! Awesome article dude! Thank you so much, However
    I am encountering difficulties with your RSS. I don’t understand the reason why I can’t subscribe to it.
    Is there anyone else getting the same RSS problems?
    Anyone who knows the solution will you kindly respond?
    Thanks!!

  14. Howdy! I understand this is somewhat off-topic
    however I needed to ask. Does managing a well-established website such as yours take a lot of
    work? I’m completely new to operating a blog but I do write in my diary everyday.
    I’d like to start a blog so I will be able to share my own experience and thoughts online.

    Please let me know if you have any ideas or tips for brand new aspiring bloggers.
    Thankyou!

  15. Pingback: Google
  16. Pingback: Herbal potpourri
  17. Pingback: consultant seo
  18. Pingback: RoyalCBD
  19. Pingback: RoyalCBD
  20. Pingback: RoyalCBD.com
  21. Pingback: Royal CBD
  22. Pingback: RoyalCBD
  23. Pingback: wyoming
  24. Pingback: cbd vermont
  25. Pingback: washington state
  26. Pingback: north dakota
  27. Pingback: Royal CBD
  28. Pingback: oregon
  29. Pingback: pennsylvania
  30. Pingback: new jersey
  31. Pingback: RoyalCBD.com
  32. Pingback: missouri cbd
  33. Pingback: Royal CBD
  34. Pingback: cbd maine
  35. Pingback: RoyalCBD
  36. Pingback: Royal CBD
  37. Pingback: california cbd
  38. Pingback: alaska
  39. Pingback: RoyalCBD
  40. Pingback: RoyalCBD
  41. Pingback: RoyalCBD
  42. Pingback: Royal CBD
  43. Pingback: RoyalCBD.com
  44. Pingback: how does cbd work
  45. Pingback: Juul Pods
  46. Pingback: lesbian porn
  47. Excellent article. Keep writing such kind of information on your site.
    Im really impressed by it.
    Hey there, You’ve performed a fantastic job. I’ll definitely
    digg it and personally recommend to my friends.
    I’m sure they’ll be benefited from this site. 3gqLYTc cheap flights

  48. Pingback: Electrician SEO
  49. Pingback: Escort amsterdam
  50. Pingback: Life Coach
  51. Pingback: anvelope chisinau
  52. Pingback: options trading
  53. Pingback: Mac support
  54. Pingback: auto news websites
  55. Pingback: Pug Puppies
  56. Heya i’m for the principal time here. I found this board and I to
    find It really helpful & it helped me to out much.

    I really hope to provide something again and help others such as you aided me.

    Here is my blog post: ToiCSalvucci

  57. You actually make it seem so easy with your presentation but I find this matter to be really something that I think I would never understand. It seems too complex and extremely broad for me. I’m looking forward for your next post, I will try to get the hang of it!

  58. Thanks for another informative website. Where else could I get that type of information written in such an ideal way? I have a project that I’m just now working on, and I have been on the look out for such info.

  59. Oh my goodness! an incredible article dude. Thank you Nevertheless I am experiencing challenge with ur rss . Don’t know why Unable to subscribe to it. Is there anybody getting equivalent rss drawback? Anybody who knows kindly respond. Thnkx

  60. Appreciating the time and energy you put into your blog and detailed information you present. It’s good to come across a blog every once in a while that isn’t the same outdated rehashed information. Wonderful read! I’ve bookmarked your site and I’m adding your RSS feeds to my Google account.

  61. What i don’t realize is in reality how you are now not really much more neatly-preferred than you may be now. You are very intelligent. You recognize therefore significantly on the subject of this matter, made me individually imagine it from a lot of numerous angles. Its like women and men are not involved except it is one thing to do with Lady gaga! Your individual stuffs nice. At all times care for it up!

  62. I’m truly enjoying the design and layout of your website. It’s a very easy on the eyes which makes it much more enjoyable for me to come here and visit more often. Did you hire out a designer to create your theme? Great work!

Leave a Reply

Your email address will not be published. Required fields are marked *