Fibromyalgi: “Som en fange i min egen kropp! Uten å vite hva den neste torturen er.

Fibromyalgi er et utmerket incitament til å leve hver dag. Når du våkner og beveger deg, nyt det. Hvis du våkner opp og ikke kan bevege seg, må du ikke gjøre det. Ta en pause, les en bok, se en film. Det kan ikke være det du vil, men det er det du må gjøre den dagen. I morgen er det en ny dag, og det kan være annerledes enn i går. Takk for at du har i morgen fordi mange ikke gjør det. Jeg vet det er vanskelig å føle det når du dør konstant, men det er alltid noe positivt.

Det er ingen ord for å beskrive hvor fryktelig det er å være et levende helvete. Det får meg til å føle at det ikke er noe igjen. Vi har imidlertid samlet noen av smertebeskrivelsene beskrevet nedenfor av våre medlemmer.

Dette er hva samfunnet deler med oss:

1. Kerryn E: Det er       som en bakrus og en full, men så syk som influensa etter intense kroppsøvelser og 10 runder med Mike Tyson, men tapt og jeg bor på en annen planet fordi jeg er utlending sammenlignet med andre eiere . Du kan ikke forstå livet mitt som

2. Beth W –       Jeg føler meg som en leder mann. Det er perfekt, Tin Man, som skal smøres i ALLE ledd. Og noen holder en fakkel til alle mine smertefulle muskler. Med hodet mitt i en presse. Ja, det summerer alt, hva en elendig eksistens.

3. Kimmie G:       Som en trippel trailer, doblet han meg; Hvordan bytte jeg hofter? Jeg kutter mitt midje fordi den nedre halvdelen ikke er vennlig; Den verste quadrillion av de verste avkomene til X2 har rammet menneskeheten og en periode med barndomsminne … ellers føler jeg meg bra!

4. Chris G       : Jeg føler at jeg har blitt drept, men jeg puster fortsatt på grunn av smerten …

5. Marjie C      – Jeg føler meg som en fange i min egen kropp! Du vet aldri hva tortur er

6. Jessica C      : Jeg føler at jeg blir rammet av en flaggermus. Mine muskler føler seg revet og kastet bort. Jeg føler at jeg har en 2 × 4 sitte på skuldrene mine hele dagen mot influensa og svette død …

7. Vickie M       : Jeg føler at jeg har en liten elv i kroppen min som lager et utvalg is og biter leddene og musklene 24 timer i døgnet, 7 dager i uken.

8. Clara F:       Jeg føler at jeg var i det 12. århundre og kroppen min ble delt. gjøre

9. Becky M      : Jeg føler at beinene mine bryter inni.

10. Tracey W:       Jeg har et sinn som liker å klemme kroppens deler, som om noen graver fingrene inn i huden og griper musklene sine tett.

11. Angela Z:       Som tinnmannen uten oljekanne … og jeg brente meg fra hod til fots med jern.

12. Paula G:       Som om du hadde blitt skutt i en steinfat, tilbrakte jeg natten i en betongblander, kjørte en maraton og ble trukket bak en rasende Mustang av noen få kilometer med kaktus.

13. Delana M:       For øyeblikket føler du at du forlot fjellet og da ble du stukket med is og varme, og så føler du deg i flammer.

14. Tina F: Det er       som om turen er stablet opp som en appelsin hele tiden. Eller som om en vridd tråd var for stram rundt kroppen din.

15. Sandra L –       En tyv som stjal livet mitt. To dager er ikke det samme. Du vet aldri hva du skal kaste. Hver dag er noe nytt, en ny smerte, en ny impuls. Når du er bedridden, kjemper du mot kroppen din bare for å tilbringe dagen. Ingen skulle måtte leve, det eksisterer ikke. Smerte er en uutholdelig smerte som de fleste ikke kan håndtere. Vi har ikke annet valg enn å akseptere det. Det medisinske feltet skuffet oss virkelig.

16. Tracy W: Når       noen fant tau i alle mine muskler og sener, gikk de til låret. Jeg føler meg bra og rolig, de vil ikke være vitser.

17. Rachel G:       Jeg føler at jeg faller inn i en Mac-lastebil. Jeg brøt alle beinene i kroppen min … og jeg har også en alvorlig influensa.

18. Sharon N:       Du har lyst til å ligge på en stein. Å komme opp og gå er en utfordring når man går med nåler og nåler. Dusjen er veldig stressende og vann skader huden.

19. Janice R –       Jeg føler at jeg er bundet til to hester, og jeg går i forskjellige retninger. Mine armer til en hest, mine ben til andre. Hettene mine føler meg ut av skjøten. I epidemiske tider er det forferdelig. Andre ganger er det ikke så ille, men det er alltid smertefullt.

20. juni J:       Jeg har inntrykk av at noen danser i hjernen min og velger hva og hvornår de skal sovne, stupefied og svimmel.

21. Renee H: Det       er som en migrene over hele kroppen.

22. Aileen S: Du har       stadig influensa, kroppssmerter og smerter.

23. Julian S:       Har noen noen gang hatt en dans bare for å bli slått ut og en trio med 20 menn som leker med deg? Tror du det er greit, fordi ingenting er ødelagt, og fordi du er beruset, og du går hjem og om morgenen, en kombinasjon av en seriøs bakrus, kanskje til og med alkoholforgiftning, og blir du skadet overalt? Det er litt sånn, men mye mindre moro og tar mer tid.

396 thoughts on “Fibromyalgi: “Som en fange i min egen kropp! Uten å vite hva den neste torturen er.

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