Fibromyalgi: “Jeg er 41 år gammel og jeg bor i en eldre person”

Han er alltid sliten og det gjør vondt hele tiden. Patrick Schutz fra Neuchâtel lider av fibromyalgi, en usynlig sykdom som ikke er anerkjent av funksjonshemmedeforsikring.

Smerte, smerte, annet enn smerte: Patrick Schuts (41) fra Neuchâtel føler alltid at han har influensa, uten feber, men med stor tretthet fra bly. Han ønsker å bli i seng hele dagen og tilbringe tid der. “Hver del av kroppen min gjør vondt, heldigvis ikke alt på en gang,” fortalte han bladet “L’illustré”.

Patrick Schutz og hans partner har en tre år gammel datter, Naya.

Selv om du bare spiller med den i 20 minutter, blir energien eliminert gjennom dagen. “Da jeg sovnet, våknet jeg meg, jeg er så sliten som jeg aldri har sovet.” Han mistet mange venner som tror han er faking. Om natten kan vi ikke gå ut med dem som før, gå til sengs klokken 19.00 for å slappe av.

Diagnosen av hans lidelse for et år siden viste: fibromyalgi. Det er anslått at 400 000 mennesker blir rammet i Sveits. Problemet:

Fibromyalgi er ikke gjenkjent av uføreforsikring (IV). Det finnes ingen vitenskapelig bevis: Det er ikke funnet noe bevis i blodet og røntgenstrålene. Hundrevis av symptomer karakteriserer fibromyalgi. Det bestemmes av utelukkelse av andre sykdommer og ved en test: Bløt flekker brukes vanligvis.

Hvis elleve eller flere av de 18 (myke flekkene) har økt smerte, er det en mistanke om fibromyalgi. Disse diagnostiske punktene er nær tendon-motor-tilnærmingen. Årsaken til sykdommen er ikke klar og kan kun begrenses av medisinske tiltak.

Patents beskyttelse må ta mange medisiner: smertestillende midler, antidepressiva, vitaminer, medisiner for å beskytte magen og følsomme og tørre øyedråper. “Det er en usynlig smerte,” sier Schutz. Han vil at så mange som mulig skal kjenne ham, han har opprettet et Facebook-nettsted for fibromyalgi for å nå befolkningens bevissthet.

Patrick har vært arbeidsløs i to år og lever på velferd. Hvis IV i hvert fall delvis anerkjente lidelsen, ville det allerede vært hjulpet. Forvent økonomisk støtte på grunn av depresjon og kronisk tretthet. Hans største håp er et populært initiativ som nettopp har blitt lansert, og det krever anerkjennelse av fibromyalgi som en sykdom.

Han spiller med sin datter Naya, men etter 20 minutter løper sin energi ut. 
Patrick ligger på teppe for å lindre smerte.

Patrins forhold til Sylvies partner har også blitt vanskelig. Det er ingen vanlige tv-sanger fordi han sover tidlig. Naya er overrasket over at far går i seng samtidig. Patrick Schutz vet ikke hvor lenge hans tilstand kan vare: “Jeg er bare 41 år gammel og jeg bor i en gammel manns kropp!”

Patrick mistenker at selv traumatiske opplevelser kunne utløses tidligere. I en alder av 17 var han til stede da faren hans slo en mann med en stein foran øynene. 
Patrick har ingen kontakt med ham. Datterens fødsel var også dårlig: nesten mor og barn var død. Patrick: “Disse hendelsene har rystet meg dypt.” 
Han vil gjerne gjøre noe med sin kone og datter, men hans lidelse og de små pengene han mottar gjør ikke dette ønske ekte.

137 thoughts on “Fibromyalgi: “Jeg er 41 år gammel og jeg bor i en eldre person”

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