Han är alltid trött och det gör ont hela tiden. Patrick Schutz i Neuchâtel lider av fibromyalgi, en osynlig sjukdom som inte erkänns av funktionshinder.
Smärta, smärta, inget annat än smärta: Patrick Schuts (41) från Neuchâtel känner alltid att han har influensa, utan feber, men med stor utmattning från bly. Han skulle vilja stanna i sängen hela dagen och spendera tid där. “Varje del av min kropp gör ont, lyckligtvis inte allt på en gång”, berättade han för tidningen “L’illustré”.
Patrick Schutz och hans partner har en treårig dotter, Naya.
Även om du bara leker med den i 20 minuter, elimineras energin hela dagen. “När jag somnade, så vaknade jag, jag är så trött som jag aldrig sovit.” Han förlorade många vänner som tror att han faking. På natten kan vi inte gå ut med dem som tidigare, gå och läggas på 7:00 för att slappna av.
Diagnosen av hans lidande för ett år sedan avslöjade: fibromyalgi. Det beräknas att 400 000 människor drabbas i Schweiz. Problemet:
Fibromyalgi erkänns inte av funktionshinder (IV). Det finns inga vetenskapliga bevis: inga bevis har hittats i blodet och röntgenstrålarna. Hundratals symptom karaktäriserar fibromyalgi. Det bestäms av att andra sjukdomar utesluts och genom ett test: vanliga fläckar används vanligtvis.
Om elva eller fler av de 18 (mjuka fläckarna) har en ökning i smärta, finns det misstanke om fibromyalgi. Dessa diagnostiska punkter ligger nära tendonmotorns tillvägagångssätt. Orsaken till sjukdomen är inte tydlig och kan endast begränsas av medicinska åtgärder.
Paters skydd måste ta många mediciner: smärtstillande medel, antidepressiva medel, vitaminer, läkemedel för att skydda magen och känsliga och torra ögondroppar. “Det är en osynlig smärta,” säger Schutz. Han vill att så många människor som möjligt kan känna honom, han har skapat en Facebook-sida för fibromyalgi för att nå befolkningens medvetande.
Patrick har varit arbetslös i två år och lever på välfärd. Om IV erkände åtminstone delvis lidandet, skulle det redan ha hjälpt. Förvänta dig ekonomiskt stöd på grund av din depression och kronisk trötthet. Hans största hopp är ett populärt initiativ som just har lanserats och det kräver erkännande av fibromyalgi som en sjukdom.
Han spelar med sin dotter Naya, men efter 20 minuter går hans energi ut.
Patrick ligger på en matta för att lindra smärta.
Patrins förhållande till Sylvies partner har också blivit svårt. Det finns inga vanliga tv-låtar eftersom han sover tidigt. Naya är förvånad över att pappan går och lägger sig samtidigt. Patrick Schutz vet inte hur länge hans tillstånd kan vara: “Jag är bara 41 år gammal och bor i en gammal man!”
Patrick misstänker att även traumatiska erfarenheter kan utlösas tidigare. Vid 17 års ålder var han närvarande när hans far slog en man med en sten framför ögonen.
Patrick har ingen kontakt med honom. Födelsen av hans dotter var också dålig: nästan var mamman och barnet döda. Patrick: “Dessa händelser har skakat mig djupt.”
Han skulle vilja göra något med sin fru och dotter, men hans lidande och de lilla pengar han mottar gör inte denna önskan riktig.
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