Fibromialgia, una muerte lenta: una enfermedad que puede tardar hasta 10 años en ser diagnosticada

La fibromialgia no se ve, sufre. La fibromialgia es invisible, pero los millones que la padecen no lo son.

Porque la fibromialgia se ha convertido en un problema de salud.

Aunque las instituciones continúan buscando en otros lugares, la fibromialgia es una realidad que continúa creciendo, que no incluye la clase social, el nivel cultural, la edad o el punto cardinal. Puede comenzar en la infancia y empeorar con los años, con la aparición de nuevos síntomas.

Lejos de ser psicológicos, como muchos han insistido, las últimas investigaciones en el mundo sugieren que se trata de una enfermedad neuroinmune y, por lo tanto, compromete todos los sistemas corporales y puede presentar hasta más de treinta síntomas diferentes. Los más incapacitantes son el dolor y la fatiga crónica.

“La fibromialgia es una enfermedad crónica y debilitante de causa desconocida y sin tratamiento efectivo”.

Durante muchos años, él ha evitado esta definición y ha preferido acusar al paciente mentiroso, enfermero, neurótico, depresivo, embustero, victimista … tanto que la mayoría de la sociedad ha creído que la fibromialgia es sinónimo de cuentista y se hablan todos los foros. De una forma despreciativa y sospechosa de estos pacientes.

Las personas involucradas están expuestas a un “juicio popular” con un veredicto: “encarcelamiento de por vida”, condenado a encerrarse en su casa, no a prepararse, no a sonreír … porque si lo hacen, son rediseñados. “No será tan malo cuando todo esté arreglado”, “Mira cómo se ríe, no te dolerá mucho …”

Además de enfermarse, la sociedad cuestiona su derecho a vivir y ser feliz. Las personas con dificultades físicas que tienen éxito a nivel deportivo o personal son ejemplos a seguir e inspiran admiración, y nadie duda de su discapacidad. Esta admiración y empatía es evidente en todas las enfermedades, excepto la fibromialgia.

El paciente con fibromialgia que logra ser feliz, a pesar de la enfermedad, y logra tener éxito, a pesar de las grandes dificultades, no es apreciado por su fuerza y ​​su deseo de sobresalir, ni es un ejemplo de vida, es simplemente una razón para cuestionar su El diagnóstico y, con él, la profesionalidad del médico que se lo dio.

El hecho de que la dura realidad de esta dura enfermedad haya sido negada durante tanto tiempo ha causado un daño físico y mental irreparable a muchas personas afectadas.

Tratamiento

En términos de salud, se ha abusado de la polifarmacia y se han creado adictos a las drogas, y el hecho de que su entorno y su sociedad sean “nada” ha provocado desintegraciones familiares, hostigamiento y despidos. y las oraciones desfavorables. Incapacidad para el trabajo.

Cuando, a pesar de todos estos daños colaterales, el paciente se sumerge en una depresión, el que permanece obsesionado con negar la evidencia queda confirmado por el hecho de que “su problema es psicológico”.

Hace años podríamos justificar este “tratamiento inadecuado” debido a la ignorancia del origen de la patología, pero después de treinta años, ya no funciona. Aunque todavía no sabemos cuál es el origen, aunque todavía no hay un marcador medible, es hora de asumir la responsabilidad y comenzar a buscarlo.

Porque la fibromialgia ha pasado de un problema de salud a un problema social. Afecta al 5,4% de la población, el 92,7% son mujeres en riesgo de exclusión social.

“La fibromialgia es una condición crónica e incapacitante de causa desconocida y sin tratamiento efectivo”. Esta es una oración simple y fácil de entender, es hora de aceptarlo, asumir la responsabilidad y actuar en consecuencia, por ejemplo, invirtiendo en investigación y recursos para Tratamiento adecuado de la enfermedad.

La fibromialgia no es solo un dolor, como dicen algunos, como si no fuera mucho. Afecta a todo el cuerpo, por lo que el paciente camina de especialidad a especialidad médica durante años, hasta que finalmente obtiene un diagnóstico que no ayuda mucho porque el medicamento recetado no hace que el dolor desaparezca.

El resultado es un gasto extraordinario para el sistema de salud y una pérdida de tiempo para el paciente, que agrega a sus síntomas los efectos secundarios de la polifarmacia y la frustración. La frustración también es compartida por los médicos que desean ayudar al paciente, pero se sienten impotentes por falta de tiempo en consultas y recursos para atenderlos de manera multidisciplinaria como lo merecen.

La solución es tener la voluntad política de invertir en la investigación y capacitación de médicos expertos que manejan estas unidades. Esta forma de atención sería menos costosa para el sistema y mejoraría la calidad de vida del paciente y, por lo tanto, el entorno familiar y profesional. Quizás una de las razones por las que no se estudia es porque “la fibromialgia no muere …”

Con la fibromialgia, no vives, sobrevives

194 thoughts on “Fibromialgia, una muerte lenta: una enfermedad que puede tardar hasta 10 años en ser diagnosticada

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