Ele está sempre cansado, e o tempo todo machuca. Patrick Schutz de Neuchâtel tem fibromialgia – uma condição invisível que não é reconhecida pelo seguro de invalidez.
Dor, dor, nada além de dor: Patrick Schuts (41) de Neuchâtel tem sempre a sensação de ter uma gripe – sem febre, mas com uma enorme fadiga de chumbo. Ele gostaria de ficar na cama o dia todo e passar o tempo lá. “Cada parte do meu corpo dói, felizmente nem todos ao mesmo tempo”, disse ele à revista “L’illustré”.
Patrick Schutz e seu parceiro têm três anos de idade, filha Naya.
Mesmo que ele jogue com ela apenas 20 minutos, ele tira a energia para o dia inteiro. “Quando eu dormi, e depois acordado, estou tão cansado quanto nunca dormi.” Ele perdeu muitos amigos que acreditam que ele finge. À noite, ele não pode sair com eles como costumava, ir para a cama às 19h para relaxar.
O diagnóstico de seu sofrimento há um ano revelou: Fibromialgia. Estima-se que 400.000 pessoas são afetadas na Suíça. O problema: A fibromialgia não é reconhecida pelo seguro de invalidez (IV). Não há provas científicas: não há evidências encontradas no sangue e nas radiografias. Centenas de sintomas caracterizam a fibromialgia. É determinada pela exclusão de outras doenças e por meio de um teste: Normalmente são utilizados pontos sensíveis.
Se onze ou mais dos 18 (pontos sensíveis) tiverem um aumento da dor, a suspeita de fibromialgia está presente. Estes pontos de diagnóstico situam-se próximos da abordagem dos músculos tendinosos. A causa da doença não é clara e só pode ser limitada por medidas médicas.
Proteção de Patrick deve tomar muitos medicamentos: analgésicos, antidepressivos, vitaminas, medicamentos para proteger o estômago e gotas contra os olhos sensíveis e secos. “É um sofrimento invisível”, diz Schutz. Ele quer que tantas pessoas quanto possível para saber sobre ele, criou um site no Facebook, de modo que a fibromialgia atinge a consciência da população.
Patrick está desempregado há dois anos e vive de assistência social. Se o IV reconhecesse pelo menos parcialmente o sofrimento, ele já teria sido ajudado. Então ele espera apoio financeiro por causa de sua depressão e fadiga crônica. Sua maior esperança é uma iniciativa popular que acaba de ser lançada e exige o reconhecimento da fibromialgia como uma doença.
Ele joga com sua filha Naya, mas depois de 20 minutos sua energia está exausta.
Patrick está deitado em uma esteira que alivia a dor.
A relação de Patrick com a parceira Sylvie também se tornou difícil. Não há músicas de TV comuns porque ele está dormindo cedo. Naya está surpreso que papai vai para a cama ao mesmo tempo que ela. Patrick Schutz não sabe quanto tempo ele pode suportar sua condição: “Tenho apenas 41 anos e vivo no corpo de um velho!”
Patrick suspeita que mesmo experiências traumáticas poderiam ser desencadeadas no passado. Na idade de 17 ele estava presente quando seu pai bateu um homem com uma pedra diante de seus olhos.
Patrick não tem mais contato com ele. O nascimento de sua filha também era ruim: quase a mãe ea criança tinham morrido. Patrick: “Esses eventos me abalaram profundamente.”
Ele gostaria de fazer algo com sua esposa e filha, mas seu sofrimento eo pouco dinheiro que recebe não fazem esse desejo se tornar realidade.
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