Fibromialgia, dor e incapacidade

Quando você está doente com fibromialgia, parece que parte de você sai para nunca mais voltar. Lembra como você estava antes e que às vezes faz você cair em um poço a partir do qual salir.Pueden ser doenças bastante difíceis que são óbvias aos olhos dos outros, ou como no caso da fibromialgia, o seu interior pode ser destruído gradualmente e não ser visto a olho nu, trazendo-o a um vácuo no qual mal-entendidos e suas próprias limitações que você assumir dia após dia. Levando você a um estado de incapacidade total.

Esta Maio celebrou o Dia Internacional da fibromialgia, é uma doença crônica que produz principalmente o sono, fadiga extrema e músculo-esquelética difusa dor. Embora, na verdade, a fibromialgia tenha mais de cem sintomas.

Hoje afeta 5% da população, principalmente mulheres.

Ainda não se sabe exatamente o que a produz, nem existe cura; o que está claro é o nível de deficiência que ocorre na vida das pessoas afectadas, o que infelizmente não parece ser tidos em conta, nestes tempos.

Atividades como fazer a cama são as mais dolorosas, algo tão necessário quanto divertido, seja dançando ou apenas rir, leva à fadiga extrema que causa falta de ar e palpitações cardíacas. Brincar com seus filhos ou correr atrás deles se torna impossível.

Sua vida muda completamente, você deixa de ser quem você era para se tornar alguém incapaz de levar uma vida normal.

A falta de sono repousante afeta sua mente muito negativamente, produzindo lacunas, falta de reflexos, pensar com clareza e até mesmo falta de coordenação. Tem sido demonstrado que pacientes com fibromialgia não mantêm uma fase REM linear enquanto dormem, mas que há picos alterados que impedem que eles tenham um sono profundo. É como se você não dormisse.

A frase ” dói tudo ” é repetida diariamente na vida do paciente com  fibromialgia.

A briga começa quando você sai da cama todas as manhãs, com  cansaço extremo , rigidez toma conta do seu corpo, seu primeiro minuto do dia é realmente exaustivo. Depois de superá-lo, é possível que a energia dure apenas algumas horas e, depois disso, você estará exausto novamente, como se tivesse terminado um dia intensivo com a guarda incluída.

O limiar da  dor  é tão baixo, que uma simples carícia ou abraço faz sua pele queimar, tornando o contato físico especialmente complicado.

Tudo dói , às vezes até suas unhas ou cabelos. As dores só parecem reduzir em repouso, mas você não pode ficar o dia todo na cama, então você prefere lutar contra isso e levar uma vida normal, embora isso afete negativamente sua saúde criando novos surtos devido à sua alta demanda .

Você se sente cansado, se sente dolorido, desamparado, inútil.

Tudo isso leva a uma depressão profunda da qual os antidepressivos não o ajudam, a única maneira de superá-lo seria parar de pensar nisso, mas infelizmente é impossível, você tem que trabalhar para comer, pagar a casa e manter seus filhos, e todo esforço, por mínimo que seja, os lembra de suas limitações.

As pessoas não te entendem, você tem uma doença invisível, você não pode ver, mas você a carrega para dentro. E o pior não é a falta de compreensão, o pior é que eles questionam o que você sente. Depois de passar alguns anos como médico até que finalmente você é diagnosticado com  fibromialgia , você tem que enfrentá-los para não acreditar em você, para ser chamado de vago, para ser informado de que você é a vítima; Eles não apenas não o ajudam, mas também afundam você na lama.

A medicação não ajuda muito, eles só conseguem te atordoar mais, e que se você tiver sorte de não ser afetado pelos efeitos colaterais. Eles recomendam exercício físico, dentro de suas limitações, é claro. Você pode se alongar por cinco minutos e não conseguir sair do sofá por dois dias.

Você não pode trabalhar ou cuidar de sua casa ou de sua família. Mas você não pode ter uma qualidade de vida aceitável porque embora  a fibromialgia  é uma doença crônica que causa  deficiência , não é realmente reconhecido ao se aplicar para uma deficiência. Sim, é, é uma doença real, mas aparentemente para alguns não é, algo que é um pouco humilhante.

Poucas pessoas conseguiram a ser ouvido, não sem ser obrigado a declarar o seu caso perante um juiz de esgotar todas as suas economias em advogados e forense, em seguida, obter uma pensão mínima. Mas se  a fibromialgia  afeta você como um jovem, o corte completo a sua vida, você não tem nada para fazer, porque você não contribuíram o suficiente.

E não importa se tudo isso complica sua existência, se além de tudo mencionado anteriormente, reduz drasticamente as chances de possuir sua própria vida.

Muitos jovens vêem algo impossível tão simples como uma família, não só por causa de temores sobre seus problemas físicos, mas por causa de relacionamentos pessoais ou familiares não são vir a ser concretizadas. Nem todo mundo aceita, muito menos aprender a viver com uma pessoa doente.

Falhas casal, trabalho, família … ou simplesmente sentir-se um fracasso como uma pessoa por não ser capaz de fazer o que você pede o corpo ou o que envia o seu coração, não só causar depressões, mas tudo isso leva a sensação destruídas e muitas pessoas têm decidiu acabar com seu sofrimento.

Essas pessoas merecem ser tratadas com os mesmos direitos que qualquer um, porque são pessoas, e só assim têm o direito a uma vida digna, têm o direito de sorrir, de aproveitar a vida e da família, para ser compreendido e aceite, sentir-se valorizado e respeitado. Para sentir o apoio de médicos e instituições públicas. Eles têm o direito de se alimentar e viver sob um teto que eles podem pagar.

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