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Este mayo se ha celebrado el día internacional de la Fibromialgia, se trata de una enfermedad crónica que principalmente produce sueño no reparador, cansancio extremo y dolores musculo-esqueléticos difusos. Aunque realmente, la fibromialgia cuenta con más de cien síntomas.
Hoy en día afecta a un 5% de la población, en su mayoría mujeres.
Todavía no se sabe exactamente qué la produce, tampoco existe una cura; lo que sí resulta claro es el nivel de incapacidad que produce en la vida de los afectados, algo que lamentablemente, no parece tenerse muy en cuenta en los tiempos que corren.
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Tu vida cambia por completo, dejas de ser quien eras para convertirte en alguien incapaz de llevar una vida normal.
La falta de sueño reparador afecta muy negativamente a tu mente, produciendo lagunas, falta de reflejos , de pensar con claridad e incluso falta de coordinación. Se ha demostrado que los enfermos de fibromialgia no mantienen una fase REM lineal mientras duermen, sino que existen unos picos alterados que evitan que sean capaces de tener un sueño profundo. Es como si no durmieses.
La frase “me duele todo” se repite a diario en la vida del enfermo de fibromialgia.
La lucha empieza ya al levantarte de la cama cada mañana, con un cansancio extremo, la rigidez se apodera de tu cuerpo, tu primer minuto del día ya resulta realmente agotador. Una vez la superas, es posible que la energía te dure tan solo un par de horas, y después de esto, vuelves a estar exhausto, como si acabases una jornada intensiva con guardia incluida.
El umbral del dolor es tan bajo, que una simple caricia o abrazo hace que te arda la piel, haciendo esto especialmente complicado el contacto físico.
Te duele todo, a veces incluso las uñas o el pelo. Los dolores solo parecen reducirse en reposo, pero no puedes permitirte estar todo el día en la cama, así que prefieres luchar contra ello y llevar una vida lo más normal posible, aunque esto repercuta negativamente en tu salud creándote nuevos brotes debido a tu alta exigencia.
Te sientes cansado, te sientes dolorido, incapaz, inútil.
Todo esto te lleva a una profunda depresión de la que los antidepresivos no te ayudan a salir, la única forma de superarlo sería dejar de pensar en ello, pero lamentablemente es imposible, tienes que trabajar para comer, para pagar tu casa y para mantener a tus hijos, y cada esfuerzo, por mínimo que sea, te recuerda tus limitaciones.
La gente no te comprende, tienes una enfermedad invisible, no se ve, pero la llevas por dentro. Y lo peor no es la falta de comprensión, lo peor es que pongan en duda lo que sientes. Tras pasar unos años de médico en médico hasta que por fin te diagnostican la fibromialgia
La medicación no ayuda demasiado, tan sólo consiguen aturdirte más, y eso si tienes la suerte de no verte afectado por los efectos secundarios. Te recomiendan ejercicio físico, dentro de tus limitaciones, claro está. Es posible que puedas hacer estiramientos durante cinco minutos, para luego no poder levantarte del sofá durante dos días.
No puedes trabajar, ni atender tu casa, ni a tu familia. Pero tampoco puedes tener una calidad de vida aceptable, ya que aunque la fibromialgia sea una enfermedad crónica y que produce incapacidad, no está realmente reconocida a la hora de solicitar una minusvalía. Si, así es, es una enfermedad real, pero al parecer para algunos no lo es, algo que resulta un tanto humillante.
Pocas personas han conseguido ser escuchadas, no sin antes verse en la obligación de exponer su caso ante un juez agotando todos sus ahorros en abogados y forenses, para después obtener una pensión mínima. Pero si la fibromialgia te afecta siendo joven, cortando de pleno tu vida, no tienes nada que hacer, porque no has cotizado lo suficiente.
Y da igual si todo esto te complica la existencia, si aparte de todo lo anteriormente nombrado, te reduce drásticamente las posibilidades de ser dueño de tu propia vida.
Mucha gente joven ve imposible algo tan simple como formar una familia, no solamente por miedos a cerca de sus problemas físicos, sino porque las relaciones personales o de familia no suelen llegar a buen puerto. No todo el mundo lo acepta, ni mucho menos aprenden a convivir con un enfermo.
Los fracasos de pareja, laborales, familiares…o simplemente sentirte fracasado como persona por no poder hacer lo que te pide el cuerpo o lo que te manda el corazón, no solo provocan depresiones, sino que todo esto conlleva a sentirte destruido y muchas personas han decidido poner punto y final a su sufrimiento.
Estas personas merecen ser tratadas con los mismos derechos que cualquier persona, porque son personas, y sólo por ello tienen derecho a tener una vida digna, tienen derecho a sonreir, a disfrutar de la vida y de su familia, a ser comprendidos y aceptados, a sentirse valorados y respetados. A sentir apoyo por parte de médicos e instituciones públicas. Tienen derecho a alimentarse y vivir bajo un techo que poder costearse.
Tienen derecho a vivir una vida dignaTienen derecho a no depender del dolor provocado por la fibromialgia para poder sobrevivir.
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