Fibromialgia: doença invisível com dor muito real.

Numerosos genes foram identificados nos últimos cinco anos, que podem ser responsáveis por desequilíbrio de neurotransmissores encontrados em indivíduos com fibromialgia.
Quando alguém nos diz que eles têm uma doença crónica, nós (talvez inconscientemente) começou a procurar por “sinais” que a pessoa tem um problema médico ou não se sentir bem. Tal como acontece com muitos problemas de saúde e deficiência, fibromialgia tem nenhum sintoma, necessariamente, alguém notaria.

Em condições como osteoartrite, os médicos podem ver os danos internos com testes, como X-ray fibromialgia não altera a aparência do corpo internamente, e profissionais médicos muitas vezes diagnosticar esta condição com base em dor generalizada e outros sintomas no corpo.

Será que a fibromialgia tem qualquer visível pelos outros sintomas?

Exteriormente, a maioria das pessoas com fibromialgia são “normais”. Pessoas com esta condição encontrar este frustrante, porque às vezes sinto que diminui a legitimidade de sua doença; Eles também podem encontrá-lo como uma bênção porque parecem moderadamente saudável.

Atriz AJ Langer, que entrevistou para dores e ganhos sobre suas lutas e seu sucesso final com fibromialgia, me disse que ele estava no hospital quase todo fim de semana por um período de tempo para os sintomas da fibromialgia e dor, principalmente. AJ disse que ninguém sabia que o seu desempenho no trabalho de seu estado: iria arrumar o cabelo e maquiagem, que ela chamou de sua máscara.

Em termos de “teste” a profundidade da dor experimentada por pessoas com fibromialgia, AJ compartilhada que sua massagista disse que é melhor.

“Se alguém questiona fibromialgia, tudo que você tem a fazer é colocar minhas mãos em alguém que faz.” O terapeuta referido espessamento e endurecimento da fáscia em torno dos músculos, o que dificulta o movimento dos músculos. , Causando rigidez e dor profunda, duas principais características desta condição dolorosa.

Como mencionamos em nosso último blog, o especialista em fibromialgia Universidade de Michigan, Dr. Daniel Clauw, disse que a dor da fibromialgia pode ser causada por um desequilíbrio de neurotransmissores que leva a um “ajuste de volume” descontrolada, que isso significa que o limiar da dor do corpo do sistema nervoso é muito baixo

O tratamento da fibromialgia

Como muitos pacientes com fibromialgia, AJ descobriram que uma combinação de medicamentos, exercícios e tratamentos alternativos foi a melhor maneira de controlar sua dor e ajudá-lo a recuperar o controle de sua vida.

“Quando você chegar a um ponto onde você bater e seu corpo não funciona e parece impossível cuidar de si mesmo, às vezes você precisa do apoio de medicação para superar a barreira.”

AJ disse que leva uma “dose bebê” de Cymbalta (duloxetina) é um antidepressivo usado para tratar a fibromialgia. Esta droga Lyrica (pregabalina) e Savella (milnaciprano) está aprovado pela FDA são para tratar esta condição. Além disso, ele começou a explorar atividades que a faziam feliz e distraídos sua dor: ele começou a surfar mais e mais, e notou algo na água fez se sentir bem, como caminhadas suaves e aulas de ioga cura. pacientes mina beneficiaram do exercício, terapia cognitivo-comportamental e acupuntura também.

Embora AJ disse que ainda sente dor, especialmente no pescoço e nas costas, estas práticas adotadas pela calma mental e fisicamente, o que lhe permite viver a sua vida mais plenamente.

Perguntei AJ o que ele tinha aprendido a estar naquele lugar de desamparo quando estava no seu pior.

“Ele ensina um nível de compaixão para com todas as outras pessoas nesta terra de uma forma que as pessoas que não experimentaram a dor não são capazes de fazer”, disse ele.

The Mighty, um site dedicado a melhorar as vidas das pessoas que enfrentam doenças, distúrbios e deficiências, publicou recentemente um artigo sobre uma mulher que diz que as pessoas costumam responder com descrença quando ela diz que tem uma condição médica séria, porque é ” invisível”.

A mulher postou uma foto no Facebook de alguém deixou um bilhete em seu carro, em resposta à bandeira desativado em sua placa. A nota dizia: “Faker”. Agora ela está incentivando outros a partilhar a sua mensagem “na esperança de que as pessoas adivinhando aqueles que” não parecem estar desativada “vai vê-lo e ter uma mudança de mente”.

Neste artigo Buzzfeed, alguém que luta contra a doença de Lyme crônica descreve como é quando ninguém acredita que você está doente. Esta mulher foi diagnosticada com a doença de Lyme agosto de 2014 depois de estar doente há dois anos e meio e visitar 13 médicos.

Aqui links para informações sobre fibromialgia e tratamentos alternativos de dor incluem:

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