Fibromialgia, como posso explicar a condição para outras pessoas? Caso real.

Como explicamos a fibromialgia a outras pessoas ?
Tenho amigos e familiares que não têm idéia de que tenho fibromialgia, apenas parece muito difícil ou constrangedor tentar explicar a eles.
Tenho medo que eles não dêem à doença, ou a mim, o respeito que merecemos, nem que entendam a seriedade do que passo todos os dias.

Pode ser visto como mais uma dor que tenho. É como uma confissão, e acho que eles dirão: “Lá vem ela, de novo com alguma coisa.” Pessoas próximas a mim sabem que tenho lúpus. Alguns até sabem que também tenho tireoidite de Hashimoto, mas poucos sabem que, além dessas duas doenças, fui diagnosticado com fibromialgia. Isso, em parte, é minha própria relutância em encontrar maneiras de explicar adequadamente o que é e por que tenho essas três doenças debilitantes juntas.

Quer dizer, parece que estou adotando para meu próprio gosto, certo? Estou preocupado que isso possa levantar dúvidas na mente de algumas pessoas, especialmente aquelas que não têm ideia do que é fibromialgia ou como é. Você não vai acreditar como estou doente e contra o que estou lutando. Isso me faz sentir pequeno, então, até recentemente, evitava apenas contar para a maioria das pessoas. Por que não falamos sobre o meu Fibro? A fibromialgia foi a primeira das minhas três doenças a aparecer e ser diagnosticada. Eu tinha 27 anos e sofria de muitos sintomas raros, incluindo dores que pareciam ser articulares, musculares e fadiga tão extrema que era uma luta continuar todos os dias. Agora, meu médico. Ele acredita que também tinha lúpus na época, mas não seria diagnosticado até os 40 anos.

O médico que eu tinha naquela época que diagnosticou fibromialgia, mal explicou o que era. 
Ele simplesmente me disse que eu tinha fibro e prescreveu duloxetina (Cymbalta), disse que é usada para ajudar a aliviar dores nos nervos em pessoas com diabetes, ou, dor contínua devido a problemas médicos, eu disse a algumas pessoas que sabia que tinha, aprendi Rapidamente ficou claro que a maioria das pessoas não acreditava que a fibromialgia fosse real, elas nem sabiam o que era. Até meu médico de atenção primária na época parecia não acreditar. Então, parei de falar sobre isso.Não dá para ver tantos olhares incrédulos … Mesmo sabendo que era real e que a fibromialgia me causava dor todos os dias, era muito doloroso acrescentar a dúvida alheia. Aprendi a não falar nada para não ser olhado como se fosse louco ou Minha visão mudou e sinto que é hora de dizer às pessoas que tenho fibromialgia e estar disposto a explicar o que é. Conhecimento é poder. Como falar com as pessoas sobre a fibromialgia Se você for como eu, começar é a parte mais difícil.

230 thoughts on “Fibromialgia, como posso explicar a condição para outras pessoas? Caso real.

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