Estou tão farta de estar doente com a doença fibromialgia

Por: Dr. Heather Morris

Having a chronic illness such as Fibromyalgia Disease really does take its toll on you, especially when you have a ton of other stuff along with it like me. It waxes and wanes but it never goes away, at least it doesn’t for me. Right now I must say it’s as bad as it has ever been before. My Fibromyalgia Disease pain level has driven me so far down that even my positive outlook is suffering. I am so sick of being sick with Fibromyalgia Disease.My only escape is the sleep I get but now the Fibromyalgia Disease pain is twisting my dreams and I can’t even escape it there now. I awake so sore that it makes me want to scream out just to move. I’m as tired when I wake up as I was when I went to bed. Relief seems to be escaping me these days.

Faça mais exercícios, é o que eles dizem. Eles não sabem o quão difícil isso é fazer quando cada movimento faz você querer se encolher com a dor da Fibromialgia. Ao caminhar a qualquer distância, a sua espinha se sente como se estivesse se desintegrando e se desintegrasse. Eu faço o que posso, ando distâncias curtas, faço elevadores de pernas na minha cadeira, mas é difícil. Gostaria que os outros pudessem entender o quão difícil. Eu tento, eu realmente. Sem ser capaz de ser tão ativo como você precisa ser, é uma coisa muito difícil de fazer. Eu sei que meu peso, que foi colocado depois de adoecer, torna pior. Isso torna minha auto-imagem pior também, o que não ajuda as coisas. Gostaria de poder perder e estou tentando muito, mas é uma sensação de processo lento como eu.

Leve seus medicamentos. Eu faço, eu prometo que sim, assim como eles me dizem para fazer, mas não está ajudando o suficiente. Eu senti falta deles e tive a sorte de não passar o dia em uma bola no chão, então eu sei que eles ajudam, mas eles não estão fazendo o suficiente. Tem que haver algo por aí que me ajudará a recuperar minha vida. Claro, eu estou lutando com a depressão. Quando não há uma parte do seu corpo que não dói o tempo todo, você também pode estar deprimido. Eu acho que aqueles de nós que funcionam com isso são muito mais fortes do que as pessoas nos dão crédito.

Não consigo comer sem experimentar sintomas. Eu como algo, ele me manda correr para o banheiro. Não há um aspecto de vida que a doença da Fibromialgia ou a enorme quantidade de condições coexistentes não toquem. Você o nomeia, há um efeito negativo para acompanhar os sintomas. Os sintomas se alimentam, cada um causando que os outros sejam pior. Eu tento ficar positivo. Eu sei que isso vai passar e eu me sentirei melhor, mas mesmo assim não me sentirei bem. Eu tenho meus bons feitiços, mas mesmo assim ainda existe a doença sempre presente da Fibromialgia, dor, depressão, problemas de estômago etc. Ainda assim, há momentos melhores em que posso fazer mais e curtir mais, mas o que eu faço enquanto isso? Estou ficando desgastado, fisicamente, mentalmente e emocionalmente. Estou perdendo a esperança de que haja bons dias à frente e que esse alívio possa ser encontrado. Não devo me deixar assim assim, Devo sempre acreditar que há esperança, mas agora é difícil. Eu devo aguentar o pensamento de que isso também deve passar. Eu só espero que ele passe rapidamente.

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