Enfin, je sais pourquoi j’ai du mal à parler de la fibromyalgie

Je suis souvent émerveillé par le grand nombre de symptômes inexpliqués qui apparaissent avec la fibromyalgie et, en général, je ne découvre jamais ce qui les cause. En général, nous les jetons simplement dans le “fibro cube”, qui n’a pas de fond, et nous les jetons sans le savoir. Donc, c’est vraiment cool quand on a vraiment une réponse!

Comme beaucoup de personnes atteintes de fibromyalgie le savent, l’un de ces «symptômes» est la difficulté de parler. Je parlais en public. J’ai prononcé des discours dans des universités et présenté des exposés sur le travail et des exposés commerciaux aux cadres supérieurs. Pendant des années, parler à et pour les gens a été le tournant de ma carrière, puis je suis tombé “malade”. La douleur n’est que l’une des nombreuses raisons pour lesquelles j’ai cessé de travailler, mais l’incapacité de parler était un autre facteur moteur. De nos jours, j’ai parfois de la difficulté à former des phrases, à articuler mes pensées avec des mots, et pire encore, je ne peux jamais garantir ce qui va vraiment sortir de ma bouche, peu importe ce que je voulais.

Lorsque l’occasion s’est présentée, j’en ai parlé à mon neurologue, responsable de la neurologie à l’hôpital de San Vicente, et la réponse était simple: la douleur est la première chose que le cerveau traite. Donc, pour les personnes qui souffrent constamment, tout le reste est secondaire, y compris la parole. Ensuite, lorsque le cerveau est constamment inondé de signaux de douleur, il est trop occupé à les traiter pour se concentrer sur d’autres signaux.

Assez étonnant comme c’est simple, non? Cela n’aide pas à améliorer les choses, mais il est certainement utile de savoir et de comprendre pourquoi cela se produit.

Rencontrer de nouvelles personnes pour la première fois ou être dans un environnement social génère maintenant une anxiété et une gêne, comme je suis sûr que vous le faites pour toutes les personnes touchées de cette manière. Cela peut donner l’impression de réfléchir directement à mon niveau d’intelligence ou de compétence. Donc, je le gère de plusieurs manières.

1. Esperanza.

J’espère que cela n’apparaît pas!

2. Gestion de la douleur.

Dans toute situation avec de nouvelles personnes, j’essaie de garder mon niveau de douleur bien contrôlé.

3. Soyez ouvert à l’avance.

S’il s’agit d’une personne importante, par exemple, lorsqu’il a récemment rencontré la petite amie de mon fils, il a tout abordé et expliqué à l’avance. Ce qui était génial, car il a été soulevé lorsque nous étions en train de manger. Ayant donné une explication à l’avance, je n’ai jamais ressenti le besoin d’expliquer ou d’avoir honte. Au lieu de cela, nous en rions. Ce qui m’amène à ma dernière recommandation: RESSOURCES DE L’ASSOCIATION NATIONALE DE FIBROMIALGIE

  • Impliquez-vous avec la fibromyalgie
  • À propos de la fibromyalgie
  • Vivre avec la fibromyalgie: et ensuite?

4. Ride.

Il n’est pas toujours facile d’avoir un sens de l’humour ou de repousser les défis qui se posent même dans les choses les plus simples, comme parler. Mais essayer de ne pas tout prendre au sérieux aide. Mes enfants n’hésitent jamais à bondir quand la déception me tombe des lèvres.

Surtout, soyez gentil avec vous-même et ayez de la sympathie. Il y a une explication scientifique. Les défis de la parole sont réels et ne reflètent en aucun cas une incompétence ou un manque d’intelligence. Nous avons tous leurs défis et personne n’est parfait. Ensuite, si et quand cela se produit, j’explique simplement. Maintenant vous pouvez aussi.

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