Stufe 1
Sie haben mehr als zuvor Schmerzen und Müdigkeit verspürt, Sie sind sich nicht sicher, was los ist, aber es tut weh und Sie sind müde. Sie können einen Job behalten, Sie können den Tag überstehen, aber Sie wissen, dass etwas nicht stimmt … dann werden Sie anfangen, dies zu untersuchen.
Stufe 2
Sie haben starke Schmerzen, manchmal nehmen Sie eine entzündungshemmende oder etwas anderes. Er bekommt nicht viel Erleichterung und hat die Tatsache akzeptiert, dass er dies für eine Weile haben wird. Sie haben große Schmerzen und sind fast jeden Tag erschöpft, aber die meisten von Ihnen machen weiter und behalten einen Job, Sie können zu Veranstaltungen gehen, Zeit mit Ihren Freunden und Angehörigen verbringen und sich hier und da wohlfühlen.
Stufe 3
Sie haben andauernde Schmerzen, sind ständig müde und fragen sich, ob Sie wieder normal funktionieren können. Er denkt daran, nicht zu arbeiten, weil er nicht mehr die Energie hat, die er einst hatte, er kommt von der Arbeit nach Hause und alles, was er tun kann, ist sich auszuruhen. Sie müssen Einladungen ablehnen, Sie haben keine Energie mehr und Sie müssen sich ausruhen, nur um morgen wiederzukommen. In diesem Stadium fühlt man sich einsamer und immer mehr Leute denken, man stöhne zu sehr. Diese Phase kann lange dauern, vielleicht Jahre.
Stufe 4
Sie haben ständig Schmerzen, gute Tage sind selten. Sie nennen kranke Arbeit mehr als sie verdient. Sie sind ein guter Teil Ihres Tages im Bett. Wenn Sie einen guten Tag haben, genießen Sie es und tun alles, was Sie können. Was auch immer Sie in den letzten Wochen übrig haben, bringt Sie in Ihren Tag, in dem Wissen, dass Sie morgen dafür bezahlen werden. Ihre Flammen halten tagelang an. Zu diesem Zeitpunkt machen Ihre Freunde Pläne ohne Sie, sie kennen Ihre Entschuldigungen bereits und sind fast sicher, dass Sie nicht teilnehmen können. Ihre Familie beginnt zu glauben, dass Sie Fibromyalgie als Ausrede benutzen, um Dinge nicht zu tun, weil Sie in den Stufen 1-3 so viel tun könnten, dass Sie es jetzt nicht tun können. Sie denken, Sie benutzen Ihre Krankheit als Ausrede, Sie fühlen sich einsam, isoliert, besorgt, emotional, traurig.
Stufe 5
Er wurde bereits entlassen oder wurde entlassen, stellt Fragen zu dauerhaften Behinderungen und wie lange es dauert, diese zu bekommen. Sie haben Horrorgeschichten darüber gehört, dass Menschen abgelehnt werden und der Prozess Jahre dauert. Sie kämpfen ums Überleben. Vielleicht muss ich mich um dich kümmern. Sie verbringen den größten Teil Ihres Tages im Bett, obwohl Sie diesen guten Tag immer noch von Zeit zu Zeit genießen. Sie sind wund, sehr wund, weinen viel, fühlen sich in Ihrem eigenen Körper gefangen. Bis dahin hast du deinen Freunden erklärt, dass es dir immer noch gut tut, eingeladen zu werden, auch wenn du nicht gehst. Sie haben festgestellt, dass sich nur Menschen in einer ähnlichen Situation befinden, die sich auf Sie beziehen können. Sie möchten, dass Ihre Freunde und Familie verstehen.
Stufe 6
Sie können auf die Invalidenrente warten oder nicht. Sie können keinen Job behalten. Fibromyalgie ist jetzt Ihren Lebensstil, die meisten seiner Freunde mit Fibromyalgie leben, alles, was Sie tun, nimmt alle Ihre kostbare Energie, einfache tägliche Aufgaben, die für die in früheren Phasen gewährt hat, die Toilette benutzen, die Haare waschen, nehmen ein duschen, ein Kleid anziehen, Schuhe binden, alles mitnehmen, was man kann. Sie sind gereizt, wenn Haare oder Kleidung Ihre Haut berühren, Sie haben nicht die Energie oder den Wunsch, vor Ihrer Abreise ein “Gesicht” zu bekommen, und Sie haben nicht die Kraft, ein Haus in Ordnung zu halten. Mit all den Medikamenten, die Sie einnehmen oder probieren, haben Sie es mit ständigen Nebenwirkungen und Schmerzen zu tun.
Du bist menschlich und magst immer noch einige Dinge, wie Fernsehen. Versuchen Sie, die Neuigkeiten über Fibromyalgie zu verfolgen, in der Hoffnung, dass sie sich dem Ziel nähern, ein Heilmittel zu finden. Die meisten deiner alten Freunde sind weg, sie haben etwas zu tun. Sie müssen viel ausruhen. In diesem Stadium ist es leicht, sich überfordert zu fühlen, weil sich Dinge um Sie herum häufen: Rechnungen, Kleidung, Geschirr. Sie tun jeden Tag ein bisschen, Sie bemühen sich, damit Sie nicht das Gefühl haben, dass Ihr Tag im Bett verschwendet wurde, Sie fühlen sich schuldig, wenn Sie nicht in der Lage sind, Ihr eigenes Gewicht im Haus zu tragen. Ihre Kinder, Ehepartner oder Familienmitglieder tun mehr denn je etwas für Sie. Sie versuchen es auf eine coole Art und Weise zu tun, aber du fühlst immer noch, dass es eine Last ist, du kannst dich an nichts erinnern, Sie können sich nicht an Namen oder Daten erinnern und verlieren Ihre Gedanken in der Mitte des Satzes. Er weiß zu diesem Zeitpunkt auch mehr über Fibromyalgie als sein eigener Arzt und lacht im Grunde genommen, wenn er ein neues Medikament ausprobiert. Sie sind hoffnungslos, die gleiche Übung wie zuvor, die gleichen Ergebnisse, nichts hilft viel.
Stufe 7 (die letzte Stufe)
Wut und Ablehnung
Es ist so etwas wie die meisten von uns. Wir glauben nicht, dass ich diesem Entsetzen nachgeben werde und weiterhin aus Gründen nach Antworten suchen werde. Ich weigere mich zu glauben, dass dieser Schrecken einer Krankheit einfach passiert.
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