Niveau 1
Je begon meer dan vroeger pijn en vermoeidheid te voelen, je weet niet zeker wat er aan de hand is, maar het doet pijn en je bent moe. Je kunt een baan houden, je kunt de dag doorkomen, maar je weet dat er iets niet klopt … dan is het iets dat je gaat onderzoeken.
Fase 2
Je hebt veel pijn, soms neem je een ontstekingsremmer of iets anders. Hij krijgt niet veel opluchting en heeft aanvaard dat hij dit een tijdje zal hebben. Je voelt veel pijn en je bent bijna elke dag uitgeput, maar de meesten van jullie gaan door en houden een baan, je kunt naar evenementen gaan, tijd doorbrengen met je vrienden en geliefden, en hier en daar een leuke tijd hebben.
Fase 3
Je hebt constant pijn, je bent constant moe, je vraagt je af of je weer normaal kunt functioneren. Hij denkt eraan niet te werken omdat hij niet langer de energie heeft die hij ooit had, hij komt thuis van zijn werk en alles wat hij kan doen is rusten. Je moet uitnodigingen weigeren, je hebt geen energie meer en je moet rusten om morgen terug te komen. In dit stadium begin je je eenzamer te voelen en steeds meer mensen beginnen te denken dat je te veel kreunt. Deze fase kan lang, misschien jaren duren.
Fase 4
Je hebt constant pijn, goede dagen zijn er maar weinig. Je belt ziek werk meer dan het verdient. Je bent een goed deel van je dag in bed. Als je een goede dag hebt, geniet je en doe je alles wat je kunt, wat je in de afgelopen paar weken hebt achtergelaten, neemt je mee naar binnen, wetende dat je er morgen voor zult betalen. Hun vlammen duren dagen. Op dit punt maken je vrienden plannen zonder jou, ze kennen je excuses al en zijn er bijna zeker van dat je niet zult kunnen deelnemen. Je familie begint te denken dat je fibromyalgie gebruikt als een excuus om geen dingen te doen, omdat je in de fasen 1-3 zoveel zou kunnen doen dat je nu niet kunt doen. Ze denken dat je je ziekte als een excuus gebruikt, je voelt je eenzaam, geïsoleerd, bezorgd, emotioneel, verdrietig.
Fase 5
Hij is al ontslagen of ontslagen van zijn baan, stelt vragen over blijvende invaliditeit en hoe lang het duurt om het te krijgen. Je hebt horrorverhalen gehoord over mensen die worden ontkend en het proces duurt jaren. Je worstelt om te overleven. Misschien heb ik iemand om voor je te zorgen. Je brengt het grootste deel van je dag in bed door, hoewel je van tijd tot tijd nog steeds geniet van deze goede dag. Je bent pijnlijk, erg pijnlijk, huil veel, voelt zich gevangen in je eigen lichaam. Tot die tijd heb je je vrienden uitgelegd dat je je nog altijd goed voelt om te worden uitgenodigd, zelfs als je niet gaat. Je hebt ontdekt dat de enige mensen die zich tot jou kunnen verhouden zich in een vergelijkbare situatie bevinden. Je wilt dat je vrienden en familie het begrijpen.
Fase 6
U kunt wel of niet op het arbeidsongeschiktheidspensioen wachten. Je kunt geen baan houden. Fibromyalgie is nu je levensstijl, de meeste van je vrienden leven met fibromyalgie, alles wat je doet kost al je kostbare energie, eenvoudige dagelijkse klusjes die je in vorige stappen als vanzelfsprekend hebt beschouwd, gebruik de badkamer, was je haar, neem er één douchen, een jurk aantrekken, je schoenen strikken, alles pakken wat je kunt. Je wordt geïrriteerd door haren of kleren die je huid aanraken, je hebt niet de energie of het verlangen om “gezicht” te krijgen voordat je weggaat, je hebt niet de macht om een huis op orde te houden. Met alle medicijnen die u neemt of probeert, heeft u te maken met constante bijwerkingen en pijn.
Je bent een mens en houdt nog steeds van dingen, zoals televisie kijken. Probeer het nieuws over fibromyalgie te volgen, in de hoop dat ze dichter bij het vinden van een remedie zijn. De meeste van je oude vrienden zijn weg, ze hebben dingen te doen. Je moet veel rusten. Het is gemakkelijk om je overweldigd te voelen in dit stadium, omdat de dingen zich om je heen verzamelen: rekeningen, kleding, serviezen. Dat doe je elke dag een beetje, je maakt een inspanning, zodat je niet het gevoel dat de dag werd verspild in bed, schuldig voor het niet in staat om zijn eigen gewicht in het huis te ondersteunen je je voelt. Uw kinderen, partner of familieleden doen meer dan ooit dingen voor u. Ze proberen het op een koele manier te doen, maar je voelt nog steeds dat het een last is, je kunt je niets herinneren, je kunt namen of datums niet herinneren en je verliest je gedachtegang midden in de zin. Hij weet in dit stadium ook meer over fibromyalgie dan zijn eigen arts en lacht eigenlijk als hij een nieuw medicijn probeert. Je bent hopeloos, dezelfde oefening als voorheen, dezelfde resultaten, niets helpt veel.
Fase 7 (de laatste fase)
Woede en afwijzing
Het is zoiets als de meesten van ons. We geloven niet dat ik me aan deze horror zal overgeven en zal om redenen blijven zoeken naar antwoorden. alles wat je kunt doen Ik weiger te geloven dat deze gruwel van een ziekte gewoon gebeurt.
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