De la douleur à la bénédiction: témoignage vivant de la fibromyalgie

Il avait 38 ans lorsqu’il a reçu le diagnostic officiel de fibromyalgie, une maladie chronique caractérisée par une douleur généralisée musculo-squelettique, avec une hypersensibilité exagérée en de multiples points du corps.

Aujourd’hui, dix ans plus tard, Lady Cortés Pérez révèle dans un livre son histoire, ses souffrances et ses conquêtes en tant que patient, le tout dans un seul but: aider les autres à reconnaître la maladie, mais surtout à la comprendre.

“Bien qu’il y ait 18 points sélectionnés, la douleur est si intense que sa sensation embrasse tout le corps. Ma vie a complètement changé à cause de cette maladie, mais elle permet d’atteindre une qualité de vie optimale. Nous pouvons collaborer pour nous sentir mieux bien que mal », a insisté Cortés Pérez.

Cependant, il a reconnu que le plus gros obstacle à la maladie est que la douleur ne soit pas vue, mais simplement ressentie. Et ce manque de vision crée de l’incrédulité ou, pire, un manque de soutien de la part de la famille, des collègues, des amis et de la communauté.

“Il y a de bons jours et d’autres moins bons, pour ne pas dire mauvais, des moments de grande anxiété, parce que nous ne voulons pas ressentir cela et nous ne pouvons pas le contrôler non plus”, a-t-il déclaré au début de la conversation.

“Si nous allons dans un endroit où il y a beaucoup de monde, trop de bruit ou pas d’assise, cet endroit n’est pas bon pour nous. Beaucoup pensent que ce sont des changeurs, car parfois nous ne voulons pas quitter la maison et faire ce que nous aimions faire auparavant “, a-t-il ajouté.

C’est pourquoi, il y a deux ans, la mère de deux jeunes adultes, mariée et ergothérapeute avec plus de 20 ans d’expérience, a commencé sa journée d’écriture et de recherche dans un livre qui raconte sa propre histoire.

Le livre d’environ six pouces de haut, 144 pages et 29 chapitres s’intitule Vivre à l’ombre de la fibromyalgie: de la douleur à la bénédiction, publication dans laquelle Lady fait le tour des chagrins et des batailles vitales que chaque personne avec cette condition, vous expérimentez, jusqu’à ce que vous les surmontiez.

“Les deux premiers chapitres présentent la condition scientifique et son histoire. Et cela se termine par une liste de recommandations en faveur d’une meilleure qualité de vie. Nous parlons d’une maladie qui a été mal comprise pendant des années et qui doit être exposée (dans les médias) afin que nous puissions aider les autres à la comprendre “, a-t-il déclaré.

Cortés Pérez a souligné que la fibromyalgie est une maladie invalidante et qu’elle a le pouvoir d’annuler tout être humain, qu’il soit professionnel ou non, femme ou homme, jeune ou adulte.

“Il y a des jours où tout fait mal, même la respiration. Un frottement de la peau ressemble à un coup dur, la température corporelle est plus froide que la normale ou semble plus chaude. Et moi, étant une personne si active, je me sens plus mal parce que cette personne en bas, couchée et laissant les autres faire mes affaires, ce n’est pas moi “, at-il poursuivi.

“Au début, je ne savais pas ce que c’était. Entre médecins, qui étaient nombreux, le diagnostic a été posé et c’est alors que j’ai décidé de connaître l’état de santé nécessaire pour aider les autres, en particulier ma famille, afin qu’ils me comprennent et me comprennent », a-t-il poursuivi.

Une fois que le livre souhaité est atteint, Lady concentre désormais ses désirs sur la création d’une fondation à but non lucratif, déterminée à divulguer cette condition, par le biais d’événements spéciaux et du renforcement des groupes de soutien existant déjà sur l’île.

Mais dans ce qui se passe, votre page Facebook / viviralasombradelafibromialgia a déjà été partagée des centaines de fois, par de nouveaux amis localement et à l’étranger.

“La fibromyalgie est mon chemin vers le destin des autres personnes atteintes de cette maladie. Et ce livre propose des alternatives permettant une qualité de vie sans limites “, a-t-il déclaré.

Le livre est maintenant disponible sur demande en appelant au 787-841-4038 ou en écrivant à ladycortesperez@gmail.com.

Selon les investigations cliniques

Ces dernières années, la fibromyalgie est devenue un problème de santé publique de premier ordre.

La maladie est associée à d’autres troubles tels que le manque de sommeil, la raideur matinale, la fatigue, la dépression et l’anxiété, les maux de tête, une mauvaise digestion et les ballonnements, entre autres.

247 thoughts on “De la douleur à la bénédiction: témoignage vivant de la fibromyalgie

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