Das Fibromyalgie-Diagramm: “Wie erklären Sie Ihrer Familie und Ihren Freunden das Fibro”?

Hallo Familie, Freunde und alle, die mich kennen lernen wollen.

Wie erkläre ich das meiner Familie und meinen Freunden? Dies ist sehr schwierig, da meine Krankheit “unsichtbar” ist. Lassen Sie mich zunächst einmal dafür danken, dass Sie sich die Zeit Ihres Tages genommen haben, um etwas Zeit mit mir zu verbringen und mich besser kennenzulernen. Die Zeit einer Person ist ihr wertvollstes Gut, und ihre Zeit wird geschätzt.

{{{Fibromyalgie ist eine chronische Erkrankung, die durch weit verbreitete Schmerzen in Muskeln, Bändern und Sehnen sowie durch Ermüdung und mehrere empfindliche Punkte gekennzeichnet ist: Stellen im Körper, an denen leichter Druck Schmerzen verursacht. Das myofasziale Schmerzsyndrom ist eine chronische Form von Muskelschmerzen. Der Schmerz des myofaszialen Schmerzsyndroms konzentriert sich auf empfindliche Punkte in Ihren Muskeln, die als Triggerpunkte bezeichnet werden. Die Triggerpunkte in Ihren Muskeln können bei Berührung schmerzhaft sein. Und der Schmerz kann sich im betroffenen Muskel ausbreiten.}}}

Ich möchte mit Ihnen über Fibromyalgie (FM) und das chronische myofasziale Schmerzsyndrom (MPS) sprechen. Viele haben noch nie von diesen Bedingungen gehört, und für diejenigen, die dies getan haben, sind viele falsch informiert. Aus diesem Grund werden Urteile gefällt, die möglicherweise nicht korrekt sind. Deshalb bitte ich Sie, offen zu bleiben, während ich versuche zu erklären, wer ich bin und wie FM / MPS nicht nur mein Leben, sondern auch diejenigen, die ich liebe, angegriffen hat.

Ich kann Ihnen keine körperlich offene Wunde zeigen, um zu zeigen, wie viel Schmerz ich fühle. Wenn ich könnte, könnten Sie einen Blick darauf werfen, mir sagen, ich soll mich hinsetzen, mir ein Kissen bringen, mir etwas zu essen oder zu trinken anbieten und diesen besorgten und verständnisvollen Blick auf Ihren Gesichtern haben. Bei Fibromyalgie hören jedoch viele Menschen, dass sie es vorziehen, jederzeit ein gebrochenes Bein zu haben, anstatt die Schmerzen zu erleiden, die diese Störungen verursachen. Ein gebrochenes Bein ist für mich sogar ein schlechtes Beispiel, um das Leiden mit diesen Störungen zu vergleichen, und eine Beleidigung mit denen von uns, die mit diesen Störungen arbeiten.

Sie sehen, ich leide an einer Krankheit, die Sie nicht sehen können. eine Krankheit, für die es keine Heilung gibt und die die medizinische Gemeinschaft darüber verwirrt, wie dieser Dämon zu behandeln und zu bekämpfen ist, dessen Angriffe unerbittlich sind. Mein Schmerz wirkt lautlos, stiehlt meine Freude und ersetzt sie durch Tränen. Äußerlich ähneln wir dir und mir; Sie werden meine Narben nicht so sehen wie bei einer Person, die zum Beispiel einen Autounfall erlitt. Sie werden meinen Schmerz nicht so sehen, wie ich es bei einer Person hätte, die eine Krebstherapie erhält. Mein Schmerz ist jedoch genauso real und lähmend. Und in vielerlei Hinsicht kann mein Schmerz destruktiver sein, weil die Menschen ihn nicht sehen und nicht verstehen können …

Sie müssen mit Ihren Ohren und Ihrem Herzen sehen, was Ihre Augen nicht sehen können. Sie müssen genau zuhören, was ich sage. Es ist möglich, dass das, was ich beschreibe, nicht viel Sinn macht und es für Sie schwierig ist, es zu verstehen. Manchmal wirkt es wie ein anderes Universum als das, das ich spreche. Wisse, dass es wahrscheinlich ist. Sie müssen mein Universum nicht vollständig verstehen und können es nicht. Hören Sie jedoch auf meine Schmerzen und hören Sie auf die Warnzeichen, wenn Sie Anzeichen von Gefahr erkennen, bei denen Sie zusätzliche Hilfe benötigen. Ich nenne es gerne “Truppen senden”. Ich scheine jeden Moment nicht mit der Realität in Kontakt zu sein.

Bitte, ärgern Sie sich nicht über mein offensichtliches mangelndes Interesse daran, Dinge zu tun. Ich bestraft mich genug, ich versichere dir. Meine Tränen laufen oft, wenn niemand in der Nähe ist. Meine Schande ist mit einem Witz oder einem Lachen bedeckt, aber ich möchte drinnen sterben. Sie werden viele Dinge über mich hören, die leicht zu lösen sind. Sie fragen sich vielleicht, warum ich immer wieder die gleichen “falschen” Entscheidungen treffe. Warum habe ich zu dieser Zeit nicht gelernt? Warum kann ich nicht den mangelnden Sinn meines Verhaltens erkennen? Es scheint, dass ich mein Leben zusammenstelle und sie wieder den Boden erreichen …

Bitte verstehen Sie den Unterschied zwischen “glücklich” und “gesund”. Wenn Sie die Grippe haben, fühlen Sie sich wahrscheinlich unglücklich, aber ich bin seit Jahren krank. Ich kann nicht die ganze Zeit unglücklich sein, tatsächlich arbeite ich hart daran, nicht elend zu sein. Wenn du also mit mir redest und ich mich glücklich anhöre, bedeutet das, dass ich glücklich bin. Das ist es Ich kann müde sein, ich habe vielleicht Schmerzen. Ich kann kranker sein als je zuvor. Bitte sag nicht “Oh, du klingst besser!” Ich klinge nicht besser, ich klinge glücklich …

Was ist hier los? Bin ich faul, dumm usw.? Nein Mein Gehirn und mein physischer Körper unterscheiden sich sehr von Ihrem. Ich erlebe das Leben anders als Sie es tun. Ich fühle mich anders als du. Die meisten meiner “Freunde” sind gegangen; Sogar Mitglieder meiner eigenen Familie haben mich verlassen. Ich wurde wegen des Mitgefühls eines anderen des “Spielens” beschuldigt. Ich wurde als unzuverlässig bezeichnet, weil ich gezwungen bin, meine Pläne, die ich in letzter Minute gemacht habe, wegen Verbrennungen und Schmerzen in meinen Beinen oder Armen und Schultern abzubrechen. Der Schmerz kann so heftig sein, dass ich mich nicht anziehen kann und ich bin voller Tränen, weil ich eine andere Aktivität verliere, die ich früher liebte und einmal begeistert war. Erlebe ich Stimmungsschwankungen? Wenn es weh tut, kann ich wütend, traurig, deprimiert oder eine der hundert Stimmungen der Welt sein. Ich werde nie wissen, mit welcher Stimmung ich aufwachen werde. Ich kann dich grausam behandeln und dir schreckliche Dinge erzählen. Ich kann dich völlig ignorieren oder auf deiner Schulter weinen, ohne anzuhalten, wenn ich im Fibro Flair bin. Vielleicht wundern Sie sich, was Sie gesagt oder getan haben, dass Sie mich so gemacht haben. Nun, Sie haben nichts getan, es ist Fibromyalgie und alle ihr zugrunde liegenden Faktoren, die dies verursachen.

{{{Zu den vorherrschenden Symptomen der Fibromyalgie zählen generalisierte Schmerzen und anhaltende Müdigkeit. Die kognitive Verschlechterung, die sich aus diesem Zustand ergibt, kann äußerst unangenehm sein. Dieses Symptom ist allgemein als Fasernebel bekannt und ist ein Konglomerat kognitiver Herausforderungen. Es versteht sich, dass Fasernebel ein physisches Symptom der Fibromyalgie ist, kein psychologisches. So wie es nicht zwei Menschen gibt, die Fibromyalgie auf dieselbe Art und Weise erleben, hat nebeliger Fasernebel eine variable Reihe von Indikationen. Dazu gehören: geistige Verwirrung, verwirrtes Denken, Kurzzeitgedächtnisverlust, Konzentrationsunfähigkeit oder Unwohlsein aufgepasst und Sprachfehler}}}

Deshalb fühle ich mich manchmal wie ein Kind. Erst neulich habe ich die Eier, die ich gekauft habe, in den Vorratsraum anstatt in den Kühlschrank gestellt. Wenn ich mit Menschen spreche, verliere ich oft den Satz meiner Gedanken mitten in einem Satz oder vergesse das einfachste Wort, das zum Erklären oder Beschreiben von etwas benötigt wird. Bitte versuchen Sie zu verstehen, wie es sich anfühlt, wenn ich wieder zu Hause bin, um sicherzustellen, dass der Herd ausgeschaltet ist, nachdem ich gelegentlich gegessen habe. Bitte versuchen Sie zu verstehen, wie es sich anfühlt, die Schlüssel zu “verlieren”, nur um sie im Gefrierschrank zu finden. Während ich versuche, meine Würde zu wahren, greift der Teufel mich jederzeit an. Ich habe eine körperliche Krankheit und es ist nicht meine Schuld und ich habe nicht danach gefragt. Ich liebe sie nicht und ich verdiene sie nicht.

{{{Auf der tiefsten Stufe des Schlafzyklus haben Menschen mit Fibromyalgie im Allgemeinen keinen ausreichenden erholsamen Schlaf. Wir wissen, dass in den tiefsten Ebenen des Schlafes, dem sogenannten Delta-Wellen-Schlaf, der Verstand einer Person interne häusliche Aufgaben ausführt. Während des Delta-Wellen-Schlafes werden neu gewonnene Informationen assimiliert und in das Gehirn integriert. Die Unfähigkeit, ausreichend Delta Wave-Schlaf zu erhalten, beeinträchtigt die Fähigkeit, sich an Informationen zu erinnern und mit normaler mentaler Leistungsfähigkeit zu arbeiten.}}}

Ich schlafe, wenn ich etwas bekomme, ist unruhig und ich wache oft auf, weil die Betttücher Schmerzen haben oder ich mich unkontrolliert zusammenzieht. Ich durchhalte viele meiner Tage benommen, wobei Fibro-Nebel mich anlachte, während ich stolpere und an Klarheit festhalte.

Nur weil ich eines Tages etwas tun kann, heißt das nicht, dass ich am nächsten Tag oder in der nächsten Woche dasselbe tun kann. Vielleicht kann ich nach dem Abendessen in einer warmen Julinacht spazieren gehen; Es ist möglich, dass ich am nächsten Tag oder sogar in der nächsten Stunde nicht in den Kühlschrank gehen kann, um ein kaltes Getränk zu sich zu nehmen, da meine Muskeln Krämpfe bekommen und blockieren oder ohne Kontrolle Krämpfe bekommen. Es gibt diejenigen, die sagen: “Aber das hast du gestern getan!” „Was ist heute dein Problem?“ Der Schmerz, den ich für diese Worte empfinde, macht mir so große Angst, dass ich meine Familie und Freunde enttäuscht habe. und selbst dann verstehen sie nicht.

Auf der positiven Seite möchte ich, dass Sie wissen, dass ich immer noch meinen Sinn für Humor habe. Wenn Sie sich die Zeit nehmen, um mit mir zu verbringen, werden Sie das sehen. Ich liebe es, diesen Witz zu erzählen, damit jemandes Gesicht leuchten kann und mein Witz lächelt. Es macht mir Spaß, mit dir zusammen zu sein, wenn du Zeit mit mir auf meinem eigenen Spielplatz verbringst; das ist viel zu fragen? Ich möchte nichts mehr als ein Teil Ihres Lebens zu sein. Ich habe entdeckt, dass ich in vielerlei Hinsicht ein starker Freund sein kann. Ich bin dein Freund, dein Unterstützer und oft werde ich derjenige sein, der dein letztes Projekt untersucht. Ich werde oft Ihr größter Fan sein und die Welt wird wissen, wie stolz ich auf Ihre Erfolge bin und wie sehr es mir eine Ehre ist, Sie in meinem Leben zu haben.

Ich frage nur, dass Sie sich über Fibromyalgie aufklären. Ich bin jemand in Ihrem Leben, der an Fibromyalgie leidet. Sie denken vielleicht, dass Sie alles wissen, was es zu wissen gibt, aber es gibt mehr Informationen als Sie denken. Es ist komplizierter als Sie denken und es ist mehr eine Lebensveränderung, als Sie denken.

{{{Eine helfende Hand reichen. Wenn Sie jemandem mit Fibromyalgie helfen möchten, fragen Sie einfach, was Sie tun können. Seien Sie flexibel mit Einladungen und Plänen, die Sie gemacht haben. Verstehen Sie, dass manchmal der Schmerz der Fibromyalgie überwältigend ist. Aktiv sein. Begleiten Sie sie zu einem Arzttermin und interessieren Sie sich für ihre Behandlung. Sie können sich Notizen in der Arztpraxis machen und dann zu Hause gemeinsam Ihre Notizen überprüfen. Nimm die Dinge nicht persönlich. Manche Menschen mit Fibromyalgie leiden an plötzlichen Stimmungsschwankungen. Versuchen Sie, diese Stimmungsschwankungen nicht persönlich zu nehmen, da sie Teil des Syndroms sind.}}}

Sie sehen also, Sie und ich sind nicht sehr verschieden. Ich habe auch Hoffnungen, Träume, Ziele und diesen Teufel. Hast du einen unsichtbaren Dämon, der dich angreift und niemand sonst sehen kann? Mussten Sie einen Kampf bekämpfen, der Sie zerquetscht und Sie in die Knie zwingt? Ich werde an Ihrer Seite sein, gewinnen oder verlieren, das verspreche ich. Ich werde so sein, wie ich kann. Ich werde alles geben, was ich kann, versprochen. Aber ich muss das auf meine Art tun. Bitte haben Sie Verständnis dafür, dass ich selbst in solch einem Kampf bin und ich weiß, dass ich zumindest jetzt wenig Hoffnung auf eine Heilung oder wirksame Behandlungen habe.

Danke, dass Sie heute Ihre Zeit mit mir verbracht haben. Ich hoffe, wir können das durcharbeiten, du und ich. Bitte verstehen Sie, dass ich wie Sie bin.

Also musst du mich bitte verstehen. Unbekannter Autor durch die Notizen von Fibro Color.

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