La douleur chronique n’est que l’un des nombreux symptômes de la fibromyalgie et le plus invalidant, car elle touche tous les aspects de ma vie. Je paie un prix élevé pour chaque activité physique que je pratique; Même la plus petite tâche peut provoquer une augmentation aiguë de mes symptômes.Dans la fibromyalgie , il existe trois principaux types de douleur: l’ hyperalgésie, l’allodynie et la paresthésie.
L’hyperalgésie se traduit littéralement par une douleur excessive: “hyper” signifie “excès” et “algésie” signifie douleur. C’est le terme médical pour l’intensification de la douleur dans la fibromyalgie.
L’allodynie est la douleur que vous ressentez lorsque vous touchez ou frottez la peau. Par exemple, une légère pression sur les vêtements ou un massage doux provoque une douleur ou une brise légère qui souffle sur la peau.
La paresthésie est une sensation nerveuse étrange qui ressemble à quelque chose de rampant, de picotement, de brûlure, de démangeaison ou d’engourdissement, comme un point engourdi au milieu du pied ou une sensation de brûlure au dos.
1. Brûlures cutanées Parfois, ma peau est en feu, crue. Imaginez que vous passiez des heures au soleil sans crème solaire, puis que vous plongiez dans la mer et que l’eau salée brûle votre peau endommagée. Ensuite, vous vous habillez pour sortir la nuit et vos vêtements frottent votre peau brûlée. Lorsque vous souffrez de fibromyalgie, seuls les vêtements peuvent causer cette douleur, ils n’ont pas besoin de soleil.
2. Douleur brûlante / brûlante C’est une douleur que je trouve particulièrement difficile à supporter. C’est tellement grave que cela me laisse à bout de souffle.
3. Douleur dans les articulations. Ma douleur articulaire est une douleur sourde et lancinante. Cela affecte principalement mes genoux, mais peut également affecter d’autres domaines.
4. Douleurs musculaires Mes muscles me font constamment mal. Moins d’activité les fait vibrer et brûler. Il m’est impossible de me sentir à l’aise quand mes muscles me font mal, cela me rend tellement agité.
5. Spasmes musculaires Je ressens des spasmes musculaires chaque jour, ils sont presque constamment. C’est comme si vous ne contrôliez pas votre corps, comme si une force inattendue vous manipulait.
6. Douleurs piquantes Vous pensez que quelqu’un vous utilise comme une poupée vaudou.
7. Entre une démangeaison et une douleur lancinante. Je suis sûr qu’il existe un terme technique pour désigner cela, mais “un croisement entre une démangeaison et un coup de poignard” est la meilleure façon de le décrire. Cela se produit au plus profond de mes muscles et il est impossible de me gratter. Cela provoque également des tremblements dans la partie de mon corps touchée.
8. Des ecchymoses non seulement sur la peau, mais aussi à l’intérieur, qui a l’air meurtri et sensible. Le thorax et la cage thoracique sont pour la plupart meurtris, ce qui peut rendre la respiration douloureuse.
9. Sensation de malaise dans tout le corps. Lorsque je suis hypersensible, je ressens une gêne dans tout le corps, le moindre contact ou mouvement provoquant une douleur lancinante autour de mon corps.
10. Rigidité Imaginez qu’une personne en bonne santé aille au gymnase après des mois d’inactivité. Soulever des poids et effectuer un entraînement complet du corps.Le lendemain, ils se sentent gelés et ont du mal à se déplacer. Une personne atteinte de fibromyalgie se réveille tous les matins avec le même sentiment: il semble que vous portiez un tailleur sous la peau quatre tailles plus petites.
11. Douleur irradiée Je ressens une douleur qui a un point central, mais qui irradie à partir de ce point. La douleur peut commencer dans mon dos, mais elle bouge aussi le long de mes jambes, par exemple.
12. Douleur causée par le toucher. Même le moindre contact avec un être cher peut causer de la douleur.Je dois porter deux tailles de vêtements surdimensionnés, fabriqués dans un matériau doux et sans couture. J’utilise des chaussures plates et douces de plus grande taille et je dois me couper les cheveux car ma peau me fait très mal. Le toucher provoque de nombreux types de douleur que j’ai décrits.
13. Migraines / maux de tête Je ne pense pas qu’une journée se passe sans mal de tête, elle est peut-être due à des tensions, mes migraines sont aggravées par le stress et les hormones. Quand je frappe, je perds la vue et la douleur est si intense… Le moindre mouvement, contact ou bruit provoque une douleur lancinante autour de la tête et du visage.
14. Chatouiller la peau J’ai l’impression que des milliers d’insectes courent autour de ma peau. En fait, c’est assez effrayant.
15. Hypersensibilité. Certains jours, le bruit est insupportable. En un instant, je ressens de la douleur, des nausées, des vertiges, des tremblements et une attaque de panique imminente. Mais non seulement je fais du bruit, mais je suis aussi hypersensible aux odeurs, à la lumière et au toucher. Oui, une forte odeur de parfum peut me causer de la douleur.
16. Syndrome du côlon irritable. La fibromyalgie est souvent accompagnée d’autres conditions, telles que le syndrome du côlon irritable (SCI). Contrairement à ce que l’on pense, la douleur du SII ne se produit pas seulement dans les intestins, elle irradie également dans d’autres parties du corps, en particulier le dos, c’est une douleur aiguë et brûlante. Le gaz emprisonné dans un intestin déjà enflammé est l’un des symptômes les plus douloureux du SCI, c’est accablant.
La douleur n’est pas le seul symptôme de la fibromyalgie, mais c’est le symptôme qui a le plus grand impact négatif sur ma vie et ma santé.
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