Un des membres de notre groupe fermé a partagé cette histoire avec nous et nous a demandé de la publier pour diffuser les connaissances de notre maladie. C’est ce que vous devez savoir sur les personnes atteintes de fibromyalgie.
1. Ma douleur
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2. Ma fatigue
Je suis juste fatigué. Je suis souvent dans un état d’épuisement grave. Vous voudrez peut-être participer à des activités physiques, mais je ne peux pas. S’il vous plaît, ne le prenez pas personnellement. Oui, hier, tu m’as vu faire des courses au centre commercial, mais aujourd’hui je ne peux pas t’aider avec le travail de jardinage, ce n’est pas parce que je ne veux pas. Très probablement, il paie le prix pour mettre l’accent sur les muscles au-delà de sa capacité.
3. Mon oubli
Ceux qui le souffrent l’appellent Fibronzebla. Vous ne vous souvenez peut-être pas de son nom, mais je dois m’en souvenir. Vous ne vous souvenez peut-être pas de ce que j’ai promis de faire pour vous, même si vous me l’avez dit il y a quelques secondes. Mon problème n’a rien à voir avec mon âge, mais il peut être lié au manque de sommeil. Je n’ai pas de mémoire sélective. Dans certains jours, je n’ai tout simplement pas de mémoire à court terme.
4. Ma maladresse
Si je vais sur la pointe des pieds ou vous nettoie cinq fois dans une foule, je ne vous dirigerai pas délibérément. Je n’ai pas de contrôle musculaire pour ça. Si vous êtes derrière moi dans l’escalier, soyez patient. Ces jours-ci, je prends la vie et les escaliers pas à pas.
5. Mes sensibilités
Je ne peux pas le supporter! “Cela” pourrait être n’importe quel nombre de choses: lumière du soleil, bruits forts ou aigus, odeurs. FMS a été appelé “tout ce qui aggrave la catastrophe”. Alors ne me fais pas ouvrir les rideaux et n’entends pas ton fils crier. Je ne peux vraiment pas le supporter.
6. Mon intolérance
Je ne supporte pas la chaleur non plus. Ou l’humidité Si je suis un homme, je transpire … profusément. Si je suis une femme, je transpire. Les deux sont également honteux, donc je ne me sens pas obligé de signaler cette lacune en moi. Je sais. Et ne soyez pas surpris si vous tremblez de manière incontrôlable quand il fait froid. Je ne tolère pas non plus le froid. Mon thermostat interne est cassé et personne ne sait comment le réparer.
7. Ma dépression
Oui, il y a des jours où je préférerais rester au lit ou à la maison ou mourir. Une douleur intense et implacable peut provoquer une dépression. Votre sincère inquiétude et votre compréhension peuvent me tirer d’affaire. Vos commentaires sarcastiques peuvent me mener à la limite.
8. Mon stress
Mon corps ne gère pas bien le stress. Si je dois quitter mon travail, travailler à temps partiel ou gérer les responsabilités de ma maison, je ne suis pas fainéant. Les stress quotidiens aggravent mes symptômes et peuvent me paralyser complètement.
9. Mon poids
Il peut être gros ou je peux être maigre. De toute façon, ce n’est pas par choix. Mon corps n’est pas ton corps. Mon centre cérébral est brisé, et personne ne peut me dire comment le réparer.
10. Mon bonjour
Si vous me voyez sourire et fonctionner normalement, ne supposez pas que je suis comme ça. Je souffre de la douleur et fatigue la maladie chronique qui n’a aucun traitement. Je peux avoir mon bonjour, mes semaines ou même mes mois. En fait, bonjour sont ceux qui m’aident à aller de l’avant.
11. Mon unicité
Même ceux qui souffrent de FMS ne sont pas les mêmes. Cela signifie que vous n’avez pas tous les problèmes mentionnés ci-dessus. J’ai mal au-dessus et en dessous de la taille et des deux côtés de mon corps qui dure depuis longtemps. Vous pouvez avoir des migraines ou une douleur à la hanche ou une douleur à l’épaule ou au genou, mais elles n’ont pas exactement la même douleur que les autres personnes.
12. Mon handicap
Mon handicap est invisible mais il existe toujours. C’est la même chose que vous ne voyez pas l’air, mais c’est présent, la même chose arrive avec la fibromyalgie, elle existe, elle est réelle. Tout n’est pas dans nos têtes, si c’était alors, pourquoi ne pas mettre quelque chose sur ma tête qui est plus reconnaissable que le cancer, etc. Nous mettons cette décalcomanie de fibromyalgie dans leurs voitures et étendons la conscience fibro.
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