Sabemos que, além de sofrer a real dor, fadiga e névoa da fibromialgia, muitos pacientes também sofrem com o estigma associado a ter uma doença crônica. Pedimos aos nossos leitores para alguns dos exemplos mais odiosas do que as pessoas dizem a eles. Seja advertido, algumas dessas coisas é apenas devastador. Mas é importante que nós trazer este para a luz. Tivemos uma resposta tão esmagadora decidimos compartilhar algumas delas.
Um aviso nota / gatilho conteúdo rápida: Algumas dessas coisas são realmente detestável. Nós publicá-las na esperança de que eles podem ser compartilhados com as pessoas que estão propensos a dizer algumas dessas coisas e pensar duas vezes antes de dizer-lhes, mas eles também poderiam ser traumático para as pessoas que ouvem coisas como esta em suas vidas diárias.
1. Pessoas com fibromialgia são apenas preguiçoso
Este é um assassino, e a grande maioria dos nossos entrevistados mencionaram sendo informados de que apenas “não quer fazer” coisas.
Algumas respostas:
Que eu sou preguiçoso eu jogar até o meu fibro e tudo na sua cabeça e você pode fazer mais do que você pensa você pode!
Preguiçoso, todo mundo se machuca. Todo mundo tem artrite. Você precisa exercitar, você precisa andar. Blá blá blá.
Meu filho de 17 anos de idade, quebrou meu coração, ele disse que eu não estava doente eu era preguiçoso. Mesmo que ele me ouve chorar no meu sono na dor jogou duas paredes. Eu sou 53 e tem que usar um andador.
Eles me disseram que eu era apenas preguiçoso que eu me levantei e movimentados eu me sentiria melhor ou é tudo na minha cabeça se eu iria encontrar algo para manter minha mente ocupada eu seria ok.
“Os serviços de proteção à criança levou meus 5 filhos. Em registros do tribunal, o juiz anulou mim e meus médicos e especialista testemunha e disse que não era uma doença e eu era apenas preguiçoso.
Preguiçoso, um desperdício de espaço, nada de errado comigo, então por que eu iria querer sanguessuga fora do governo em querer obter deficiência?
Meu ex-marido me disse que eu era um preguiçoso esponja c $ & t que eu não estava a contribuir financeiramente ou em torno da casa o suficiente depois de muito abuso eu descobri que ele estava traindo e ele saiu.
Como você pode ver, isso é muito comum e doloroso. Na verdade, as pessoas eamil fibromialgia Tratar apenas vomitam esse tipo de ódio. Por exemplo, essa pessoa tem-se tão excitado que terminou em letras maiúsculas:
você indivíduos fracos são apenas à procura de uma solução rápida, uma cura simples, não há uma, muito sobre ele (sic) e cuidar de si mesmo, lol nenhuma medicação vai ajudar qualquer pessoa com fibro você tem que realmente ficar fora de sua bunda para ajudar a si mesmo. Por que não postar VERDADE assim? Pare de tráfico de lixo. VOCÊ são enganosas. I unfollowed SEU TRASHY PAGE BULLSHIT E eu vou continuar RELATÓRIOS esses lugares enganosa. TENHA UM BOM DIA. (Sic)
Tivemos um bom dia, e proibiu essa pessoa também. Mas comentário dessa pessoa toca em nossa próxima tipo de comentário detestável.
não 2. A fibromialgia não existe
Um clássico que todo mundo ouviu falar, e é tão difícil, porque que talvez devêssemos ter feito o número um comunicado de ódio porque é a base de todo o estigma contra pessoas com fibromialgia.
Eu vi um médico para uma condição médica diferente. Uma vez ele viu fibromialgia listado no meu prontuário ele fez questão de me dizer “Eu não acredito que a fibromialgia é uma coisa real. Os médicos que fazem estes dias deve ter sua licença revistos. Isso simplesmente não existe. Que medicamentos você está tomando para isso?
É uma doença horrível. Eu coloquei meu bravo rosto em 24/7. Ninguém pode ver a nossa dor e sofrimento, por isso, eles questionam se é real ou nós somos apenas busca de atenção. É muito mais fácil fingir que eu estou bem, que é para explicar por que eu não sou.
3. É tudo na sua cabeça
Isto está intimamente relacionado com o “não existe”, mas é uma forma muito mais explícita para Gaslight sofredores fibro.
Que eu sou preguiçoso eu jogar até o meu fibro e tudo na sua cabeça e você pode fazer mais do que você pensa você pode! E as pessoas disseram que eu não quero ouvir isso e todos nós temos problemas. Eles devem entrar em meus sapatos por um dia !!
Eles vão dizer coisas como “você não está doente é tudo na sua cabeça” ou “ele não se parece com você está com dor” faz o seu coração doer com lágrimas que ninguém nunca vai te entender.
Eles me disseram que eu era apenas preguiçoso que eu se levantou e mudou-se em torno de eu me sentiria melhor ou é tudo na minha cabeça se eu iria encontrar algo para manter minha mente ocupada i seria ok.
Como você pode ver, as pessoas são cruéis e eles gostam de usar mais de uma categoria de comentário detestável.
4. Você não olha doente
Desde a fibromialgia é uma doença invisível, as pessoas que têm que muitas vezes não “olhar” doente, o que isso significa. É também uma das coisas mais frustrantes um guerreiro fibro pode ela.
Você não parece doente. Olhe para você, você é um corredor. De jeito nenhum é tão ruim assim. Chupa-lo …. Perdi 2 muito bons pagadores empregos por causa da minha doença falsificado.
Eu fui a um concerto em um estádio de ser dito eu não olho deficientes e que a fibromialgia é apenas uma invenção da minha imaginação para golpe os contribuintes, escusado será dizer que deixou o show e se dirigiu direto para casa, escreveu uma carta de reclamação mas nunca recebeu um reconhecimento deles.
Esta mulher veio até o carro e disse que você não pode estacionar lá? Em mostrar-lhe o meu disco deficiência ela disse que nem de você olhar com deficiência e era nojento que fomos capazes de ter um carro ???
5. Deus está punindo por seus pecados
Essas pessoas tomam vítima-acusação para o próximo nível, fazendo a doença de um julgamento sobre o caráter moral de uma pessoa. É vergonhoso.
Meu tio, que é um pregador, me disse que eu estava sendo punida por Deus para todas as coisas selvagens eu fiz e minha família se pergunta por que eu não acredito.
A coisa mais rude eu tenho dito é que Deus está me punindo por meus pecados. Eu conheço um monte de bons cristãos que morreu de câncer … Eu não acho que eles foram punidos também. Como eles ousam dizer isso para mim?
6. Você está apenas tentando conseguir drogas
Este também é um efeito colateral triste da crise opióide nos Estados Unidos. Nós assumimos qualquer pessoa com dor está apenas tentando obter pílulas.
Eu sou preguiçoso, bom para nada, não fará nada com a minha vida, eu preciso fazer mais, im um popper pílula (Eu tenho um tempo difícil tomar remédios menos que eu tenha também) e meu favorito é que estou fingindo tudo!
Eu não tenho certeza, mas a dia eu estava à esquerda sentir como um viciado em mais de Tylenol. Tenho 54 anos de idade, quando você parar de se defender. Me fez chorar.
Eu trabalho com a minha mãe e eu estava tendo um dia terrível dor. Na hora do almoço eu tinha finalmente tinha e eu não pude conter as lágrimas. Eu estava chorando e chorando, enquanto ela passou 10 minutos me dizendo para chupa-lo e voltar a trabalhar. Eu lhe disse que precisava ir para casa e tomar meus remédios para o qual ela disse: ‘Eu acho que você é viciado em seus remédios.’
Eu fui chamado um viciado em drogas em um ponto porque eu estava em tantos medicamentos. Eu senti como eu poderia muito bem ter sido atirando-se com a forma como as pessoas olhavam para mim.”
Eu tive um olhar recepcionista no meu arquivo e contar meus remédios me dizendo que eu ainda deve ter muito à esquerda, nunca iria me cumprimentar, e eu finalmente disse a minha Dr depois de meses e ele ficou tão chateado com ela e disse-me para dizer-lhe os coisas de imediato, ela tem o direito de estar fazendo isso. Ele classificadas la e também o farmacêutico que iria comentar sobre meus remédios e o quanto eu estou tomando, sem saber meus muitos problemas médicos.
7. Você só precisa exercitar e perder algum peso
Este é semelhante ao “Você é preguiçoso” e “é tudo na sua cabeça”, com a vantagem adicional de peso-vergonha. É desprezível. Aqui está o que nossos leitores compartilhada:
Eu tive que lidar com Dr.s iletrados que eram insensíveis no entanto, dizendo coisas como: Bem, se você perder algum peso e sair e exercer você seria ok e esta condição não é realmente uma condição!
Apenas exercitar e perder algum peso e você vai se sentir melhor. Ou você parece feliz de ter esse diagnóstico, você está apenas procurando desculpas.
“Bem, talvez se você perdeu peso e exercido você se sentiria melhor .. OBRIGADO SIS .. também te amo .. talvez se ela sabia que a maioria dos mais de 20 pílulas eu tomo ganho de causa de peso diário e inchaço.”
eye rolling enquanto me dizendo ‘oh, eu não acredito em tudo o que porcaria! Se você acabou de fazer exercício e dieta que você vai começar a sentir melhor. Perder algum peso e você vai se sentir melhor. Eu estaria em dor também se eu apenas previsto o dia todo ‘.
Perder peso, você é muito grande, é por isso que você está com dor, você carrega muito peso em seu corpo.’ ‘Você precisa se movimentar e exercício.’ Eu tenho dito isso muitas vezes.’
membro da família me disse apenas chupa-lo. Você não precisa de seu Lyrica. Você não parece doente você é apenas mais peso …… U não sair suficiente … .. É tudo na sua cabeça ……
8. Você só quer atenção
As pessoas gostam de quebrar as suas graus psiquiatria poltrona para este. Síndrome de Munchausen é uma coisa real, mas assim é a fibromialgia. As pessoas são tão rude.
‘Busca de atenção’
‘É na sua cabeça’
‘Não pode ser tão ruim’
‘Pare de ser preguiçoso’
‘Você precisa sair e exercitar mais’
‘Eu fiz isso com isso e que é pior’
‘Tem certeza de que’ re não colocar?
‘Você está sempre doente’Estava no hospital com a pior dor incendiar-se, tinha tantos testes e todos eles voltaram normal! … .so o dr disse ao meu pai faz a sua filha como estar no hospital ?? … deve de pensei que a cortina azul ao redor da minha cama era prova de som.
Você só quer atenção. Não há nada de errado com você. Você é um hipocondríaco. Você só precisa de um pouco de exercício e perder peso. Estas são apenas algumas das coisas que ouvi!
9. É tudo o que falar
Este é um grande problema. As pessoas têm medo de falar, porque eles estão se reuniu com olho-rolos ou pior. Aqui vai uma dica: Se você não quiser saber como alguém está fazendo, não pergunte.
Eu não posso falar sobre como me sinto … Eu sempre obter o mesmo comentário … você sempre diz seu não se sentir bem … como é algo que eu estou fazendo dia up.Each é diferente e pode ser uma luta .. É difícil quando as pessoas em torno de você não entender como o seu sentimento e não quero ouvi-lo e realmente não me importo.
10. Oh yeah, que é uma porcaria, mas não é tão ruim quanto este
Há algumas pessoas que não podem apenas simpatizar. Eles têm de superar sua dor, dizendo-lhe quão ruim eles estão sofrendo.
Um amigo de um (amigo), disse: “OI tem isso também, mas isso não é nada comparado a” e que é onde eles dizem que sua condição é pior que o meu.
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