Chiedono l’ottemperanza alla mozione richiedendo la preparazione di uno studio socio-sanitario della malattia
I rappresentanti degli ammalati insieme al presidente dell’Assemblea LO
La fibromialgia e la sindrome da stanchezza cronica hanno richiamato anche oggi alle porte dell’Assemblea per chiedere la realizzazione di un Nucleo di Fibromialgia nella Regione, come il rispetto della mozione esiste in altre Regioni, e richiesta approvata all’unanimità un anno fa, in cui si richiedeva la predisposizione di uno studio socio-sanitario della malattia.
Il presidente dell’Assemblea Regionale di Murcia, Alberto Castillo, ha ascoltato queste ed altre richieste nell’intervista fatta questa mattina a Florentina Galindo, presidente di AFRIBROCAR (Associazione Fibromialgia e Sindrome da Fatica Cronica di Cartagena e Comarca) e altri rappresentanti della entità.
Galindo ha sostenuto la necessità di un’Unità di Fibromialgia nella Regione perché i pazienti con fibromialgia sono nella terra di nessuno. “Ultimamente non vengono presi in considerazione. Non sanno se entrare dal neurologo, dallo psichiatra, dal reumatologo, dopo che questa malattia è stata riconosciuta dall’OMS dal 1992 come malattia reumatica
“Stiamo tornando indietro” – ha aggiunto – L’anno scorso hanno tirato fuori una via attraverso la quale vogliono tornare alla questione psicologica. Il reumatologo, che è stato quello che ci ha visti fino ad ora, ci sta mandando dal medico di famiglia, che è sopraffatto perché non conosce molto bene l’argomento. E siamo un po ‘indifesi ”.
Il presidente dell’AFIBROCAR ha anche chiesto al presidente di interessarsi ad una mozione approvata un anno fa da tutti i gruppi parlamentari per realizzare uno studio socio-sanitario sulla fibromialgia, che “è a un punto morto”. “Se vengono fatti dei movimenti a nostro sostegno e poi viene lasciato nell’acqua di borragine, non avanzeremo neanche”, ha detto.
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