Fibromyalgia (FMS) only chronic fatigue dedolor and untreated, although he spoke with most general practitioners, you might think those were the only people get symptoms. FMS is a complex, mutifactoral condition and is a condition of exclusion. In other words, many, many conditions must be excluded before a diagnosis can be made. It can, and in my case it has, affected almost all systems of my body my skin and gastrointestinal tract of joints and muscles and not forgetting my brain. It has had a catastrophic effect on my career, which I loved. Has devastated the social life and family life will never be the same again.
All this may sound defeatist but the best thing I have done is to accept and adapt to changes in my life. With this in mind, I’ve come up with a list of rules for myself. Not only have I made them from scratch, which have evolved organically really only in recent years.
1. Understand your family and friends perspective.
Living with FMS is complicated because it is such a complex condition. In addition to living with this condition, I researched a lot! It is difficult to understand, it’s difficult to explain and difficult to describe.
There is a famous saying, “If you can not explain to a 6-year-old who does not understand himself.”
If you can not explain, describe, let alone understand, how can I expect other people? Be patient with people – they will say things that hurt, they will expect more from you than you can accomplish. You may think that you are lazy and have to keep explaining himself, but above all, most likely just want to get better. They do not understand, because you do not fully understand himself. I think the best way is just being honest. Tell them that if you can not do something, but what you can do. Tell them when you are having a bad day or an asthma attack, but when the day is “good”. Tell them your symptoms, even on a good day, but do not expect them to understand until you do!
2. Have your new normal.
You have a chronic disease that will not improve or disappear. You may be lucky enough to have a recession, but most of us do not hacen.Aprender to live with it, learn to handle it. Become self-aware and understand their symptoms. You may not fully understand the condition but get to know the symptoms you have before an asthma attack, for example. I know that if I get swollen glands, fever and loss of appetite, there will be an outbreak in the next 48 hours. The most important thing is to plan your day around your symptoms. I tend to have more energy after a shower in the morning. I usually need a nap in the middle of the day and my pain is at its worst at night. This is my general pattern, but I have to accept the changes as they come and new symptoms that arise. This is normal for me now. All this is part of living with a chronic illness.
3. Enjoy holistically.
I have not only fibromyalgia, also I have migraines, cluster headaches and dizziness. I try not to keep them apart from each other. Treat yourself as a whole rather than as a list of conditions. Its symptoms are part of you if you come from either condition.
4. Create a new standard for yourself and be proud of their achievements.
Adjust your yardstick. If you can not do something like before, do what your new standard can do and be proud of it. I know that, if I tried to do a five-mile walk with the dog, not only was it going to be eliminated, the dog probably would too. But, if we go for our 20 minute walk in the park and we both feel good, even on a bad day. It may sound trivial to some, but every day, I feel proud of myself to get up and take that walk. Do not punish yourself if you can no longer do the things you once used.
Think about the theory of boom and bust. We all do, inadvertently or unintentionally. On a good day, you are doing all you can because you do not know when your next good day. Then the next day, which are in severe pain and fatigue, so do not do anything in order to recover and hope for another good day soon. The theory is, do less in the good days and on bad days. The idea is to become time instead of focusing especially focused. In other words, set a time for activity rather than just the normal full task.
5. Plan for trash to happen and accept that you will have horrible symptoms.
Life is not perfect. Sometimes you can plan and pace yourself carefully, but there will always be something that alters your life. Do not let it perturba.Mierda happens to everyone. We just have to accept what happens and hope it will be bad days and asthma attacks is only part of having the disease. Make sure you have a well-equipped box outbreak. This should always be part of the plan.
6. Ask for help and accept help.
You can not do it alone, you have to ask for help. This is one of the hardest lessons I’ve learned. You may think it’s a sign of weakness to ask for help, and that has always been faster and easier to just do it solo.Por Unfortunately, this can no longer be the case. Asking is now mandatory. Accepting help can be equally difficult, but it’s time for someone else to take the strain. Life with FMS is not easy. It is not often that people ask for help, so when they do, is conducive. Your loved ones do not want to see you fight, will want to help, so they and show appreciation with a smile and a thank you. That’s all they want in return.
7. Do not be afraid to let you define.
I do not mean to go to bed and let it take over your life. I just think we should not be afraid to let people know that we have a condition that affects our lives. Life is hard enough without making it more difficult to ignore the problems that can bite. You should be able to tell others that there are things you can and can not do because of the symptoms you.