23 coisas que as pessoas não percebem que você está fazendo, porque você tem fadiga crônica

Para uma pessoa de fora, coisas como tomar o elevador em vez de um lance de escadas ou recusar convites para a festa pode parecer um reflexo de sua personalidade. Mas, para uma pessoa com fadiga crónica, estes podem ser lidar métodos que são essenciais para passar o dia.

Pedimos nossa comunidade doença crônica no Facebook para compartilhar as coisas que eles fazem que os outros podem não perceber é por causa de sua fadiga crônica. Suas respostas revelam os ajustes que muitas vezes devem ser feitas no dia a dia para economizar energia, e que as pessoas saudáveis ​​pode não perceber o quanto de uma diferença estas estratégias fazem.

Aqui está o que a nossa comunidade nos disse:

1.  “Certifique-se de que eu tenho um ‘buffer dia’ entre qualquer evento exaustiva e retomar a vida.”

2.  “Vestindo PJs maior parte do dia se eu não vou sair. Alguns dias é muito doloroso para se mover e eu não posso fazer tarefas simples em torno da casa. É constrangedor às vezes. Eu me sinto mal.”

3.  “Planejando meus chuveiros. Eu fiz um comentário no Natal sobre como eu desejo a nossa embaixo do chuveiro funcionou porque a maioria dos dias que eu gostaria de conseguir tomar um banho rápido, mas eu não quero subir as escadas. Namorado da irmã de meu marido disse: ‘Uau, você é tão preguiçoso.’ Eu estava vendo vermelho naquele momento e literalmente levou todos os bits de força de vontade para não lançar-se para ele “.

4.  “Eu tenho que planejar tudo com base no que eu preciso para ficar pronto e quanta energia ele vai tirar de mim.”

5.  “Eu me inclino, literalmente, o tempo todo. Nas paredes, nas mesas, sobre as pessoas, em carrinhos. Eu entrar em pânico se não houver algo para me sustentar diante.”

6.  “Eu micromanage cada aspecto e momento de cada dia para determinar o que pode e não pode fazer e descobrir como fazer as coisas. Isso por si só é desgastante.”

7.  “ Eu não convidar as pessoas a minha casa. É sempre uma bagunça e eu me sinto mal sobre isso, porque eu simplesmente não tenho energia para mantê-lo arrumado. Eu uso PJs durante todo o dia todos os dias, a menos que seja absolutamente necessário sair. Minha casa é meu refúgio do negócio do mundo. O único lugar eu me sinto confortável “.

8.  “As pessoas não percebem que a 25 a 33 anos o meu pai levou-me coloca muito porque eu tinha cérebro nevoeiro da fadiga crônica.”

9.  “Encontrar uma sala silenciosa no trabalho para fechar os olhos e descansar no meio do dia. Às vezes, apenas estar longe das pessoas para alguns momentos me permite recarregar apenas o suficiente para fazer passar “.

10.  “Exercício. Parece contra-intuitivo, mas se eu não os meus sintomas piorarem. Então você esticar através da dor e empurre a quantidade certa “.

11.  “Lendo sob uma montanha de cobertores. O peso me conforta e me faz sentir aterrada. Ele pára os espasmos que o rock meu corpo também.”

12.  “Muitas vezes as pessoas me elogiam quando eu uso um dos meus largas tiaras. Às vezes eu deixá-los no segredo e dizer: ‘Muito obrigado! É porque eu estive muito cansado para lavar meu cabelo assim que eu estou cobrindo-o ‘”.

13.  “Sempre vestindo roupas confortáveis, não restritivas de modo a qualquer momento eu posso deitar um pouco quando fica muito ruim.”

14.  “Eu tenho miastenia grave e pode fazer mastigação e deglutição difícil ou impossível. À noite, quando estou mais cansado, muitas vezes eu não posso terminar o meu jantar. Garçonetes insistem em pedir várias vezes porque eu não terminar. É realmente muito intrusiva. Eu só deve ter que responder sim ou não a ‘Posso levar o seu prato’, sem uma explicação!”

15.  “Eu passo muito de passos de tempo contando. Por exemplo, no cinema eu sei exatamente o quão longe as casas de banho e saídas são. Eu não vou ser o primeiro a sair, mas eu aposto que você eu vou fazer isso!”

16.  “Manter meu cabelo curto. Está fora de praticidade. Menos cabelo para gerenciar, pincel e lavagem economiza energia valiosa.”

17.  “ Ignorando textos ou telefonemas por causa de dificuldades cognitivas graves e / ou cansado demais para escrever ou falar.”

18.  “Eu comer alimentos preparados no forno para que eu possa comer em vez de deixar comida metade cozido todo. Eu queimar alimentos de esquecê-la no fogão ou acabam largando-o no chão por acidente “.

19.  “Às vezes é difícil de explicar para os amigos e colegas de trabalho porque eu tomo o ônibus duas paradas em vez de apenas a pé, ou tomar um táxi quando eu poderia pegar o metrô (todas aquelas escadas!)”

20.  “Eu sempre tenho muito preocupados com os convites para festas em toda a cidade ea oferta para apenas ‘acidente no sofá.’ Normalmente, eu iria e não apenas beber. Não porque eu não queria ‘festa’, mas porque eu sabia que eu não iria dormir em um sofá, porque eu tenho como um disco tempo de sono e porque mesmo uma bebida me faz sentir horrível. Sempre tem ‘falta partido,’ ‘Pare de ser um arrasto,’ ‘Apenas um tiro’ – Não. Uma noite fora seria igual a cerca de dois dias para baixo “.

21.  “torcendo as mãos e balançando as pernas ou balançando para frente e para trás. Eu olho como eu estou esfregando loção em minhas mãos o tempo todo, mas realmente estou tentando aliviar um pouco a dor através de meu próprio calor do corpo.”

22.  “Eu sempre tem que ter um carro no mercado, mesmo se eu só estou recebendo algumas coisas – eu preciso dele para apoio ou até o final da viagem I quase não vai ser capaz de chegar ao meu carro – o pior parte está apenas em pé na fila para sacar! Isso pode realmente arruinar um ‘bom’ dia “.

23.  “Eu não saio de casa às segundas-feiras. Eu frequentemente exagere nos fins de semana com a família e amigos. Então eu preciso de um dia para a recuperação – Eu não abrir as cortinas, eu não respondo a porta, desligue / desligar os telefones, e ficar na cama descansando até que eu me levantar para fazer o jantar “.

Que coisas que você faz que as pessoas não percebem que você está fazendo por causa de sua fadiga crônica? Compartilhe nos comentários abaixo.

205 thoughts on “23 coisas que as pessoas não percebem que você está fazendo, porque você tem fadiga crônica

  1. Hi there would you mind stating which blog platform you’re using?

    I’m going to start my own blog in the near future but I’m having a
    difficult time deciding between BlogEngine/Wordpress/B2evolution and
    Drupal. The reason I ask is because your design and style seems different then most blogs
    and I’m looking for something completely unique.
    P.S Apologies for getting off-topic but I had to ask!

  2. What’s Happening i’m new to this, I stumbled upon this I have discovered It
    positively useful and it has aided me out loads.
    I am hoping to give a contribution & aid different users like its helped me.
    Great job.

  3. I just like the valuable information you supply to
    your articles. I’ll bookmark your blog and check once more here regularly.
    I am relatively sure I will be informed lots of new stuff proper here!

    Best of luck for the following!

  4. I am now not sure where you are getting your
    info, but great topic. I needs to spend some time finding out much more or
    figuring out more. Thanks for fantastic information I used to be looking
    for this info for my mission.

  5. Hi, Neat post. There’s an issue along with your site in web explorer,
    may test this? IE nonetheless is the market chief and a good part of other people will miss your great writing because of this problem.

  6. A motivating discussion is worth comment. I do believe that you ought to write more on this topic, it may not be a taboo subject
    but usually folks don’t discuss these issues.
    To the next! All the best!!

  7. May I just say what a relief to discover someone that really knows what
    they’re talking about over the internet. You
    certainly realize how to bring a problem to light and make it important.

    More people must read this and understand this side of the
    story. It’s surprising you are not more popular since you surely possess the gift.

  8. I’d like to thank you for the efforts you have put in penning this website.
    I really hope to view the same high-grade blog posts from you
    later on as well. In truth, your creative writing abilities
    has motivated me to get my very own website now
    😉

  9. Hi there! I could have sworn I’ve been to this blog before but after browsing through some of the post I realized it’s new
    to me. Nonetheless, I’m definitely glad I found it and I’ll
    be bookmarking and checking back often!

  10. Hey I am so thrilled I found your weblog, I really found you by error, while
    I was researching on Aol for something else, Regardless I am here now
    and would just like to say kudos for a incredible post and
    a all round exciting blog (I also love the theme/design), I don’t have time to browse
    it all at the moment but I have book-marked it and also included your RSS feeds, so when I have time I will be back to read much more, Please do keep
    up the superb work.

  11. Someone essentially assist to make significantly posts I’d state.
    That is the very first time I frequented your web page and so
    far? I surprised with the analysis you made to create this
    actual post extraordinary. Fantastic task!

  12. Pretty nice post. I just stumbled upon your weblog and wanted to say that I’ve really
    enjoyed browsing your blog posts. After all
    I will be subscribing to your feed and I hope you write again soon!

  13. After I initially left a comment I appear to have clicked on the -Notify me when new
    comments are added- checkbox and now whenever a comment
    is added I receive 4 emails with the exact same comment.
    There has to be an easy method you can remove me from that service?
    Thank you!

  14. Hi! I could have sworn I’ve visited this
    website before but after going through many of
    the articles I realized it’s new to me. Anyhow, I’m definitely pleased I stumbled upon it and I’ll
    be book-marking it and checking back regularly!

  15. I needed to thank you for this excellent read!! I absolutely loved every little bit of it.
    I’ve got you saved as a favorite to look at new things you post…

  16. I truly love your website.. Excellent colors & theme. Did you make this
    amazing site yourself? Please reply back as I’m trying to create my own website and would love to learn where you got
    this from or what the theme is called. Many thanks!

  17. May I simply say what a comfort to find somebody that really
    knows what they are discussing on the internet. You actually
    know how to bring an issue to light and make it important.
    More people must read this and understand this side of
    the story. I was surprised you aren’t more popular because you
    surely possess the gift.

  18. I do not even understand how I finished up here, but I believed this submit was good.
    I don’t recognize who you might be but definitely you’re going to a well-known blogger when you aren’t
    already. Cheers!

  19. Wonderful blog! I found it while browsing on Yahoo News. Do you have any tips on how to get
    listed in Yahoo News? I’ve been trying for a while but I never seem to get there!
    Thanks

  20. Great beat ! I would like to apprentice even as you amend your web site, how could i subscribe for a
    weblog website? The account aided me a appropriate deal.

    I were a little bit acquainted of this your broadcast offered
    vivid clear concept

  21. Magnificent items from you, man. I’ve have in mind
    your stuff previous to and you are simply too
    magnificent. I actually like what you have acquired here, certainly like what you are saying and the way by which you say it.
    You make it entertaining and you continue to take care of
    to stay it smart. I can’t wait to read much more from you.
    That is actually a great site.

  22. you are in reality a just right webmaster.
    The web site loading pace is incredible. It seems that you are doing any unique trick.
    Moreover, The contents are masterwork. you’ve
    performed a wonderful process in this subject!

  23. I got this web page from my buddy who informed me concerning this web
    page and now this time I am visiting this web site and reading very informative
    posts here.

  24. Howdy! Someone in my Myspace group shared this site with us so I came to take a look.
    I’m definitely loving the information. I’m bookmarking and will be tweeting this to my followers!
    Outstanding blog and amazing style and design.

  25. Hey! I know this is kinda off topic however I’d figured I’d ask.
    Would you be interested in trading links or maybe guest authoring a blog article or vice-versa?
    My site discusses a lot of the same topics as yours and I think we could greatly benefit from
    each other. If you happen to be interested feel free to
    send me an e-mail. I look forward to hearing from you!

    Excellent blog by the way!

  26. You actually make it seem so easy together with your presentation but I
    to find this topic to be actually one thing that I believe I would never understand.
    It seems too complex and very vast for me.
    I am taking a look forward on your subsequent publish, I’ll attempt to get the grasp
    of it!

  27. Howdy! I know this is kinda off topic but I was wondering which blog platform are you using for this site?
    I’m getting tired of WordPress because I’ve had problems
    with hackers and I’m looking at options for another platform.
    I would be fantastic if you could point me in the direction of a good platform.

  28. Undeniably believe that which you stated. Your favorite justification seemed to
    be on the web the simplest thing to be aware of.
    I say to you, I definitely get annoyed while people consider worries that they plainly do not know about.

    You managed to hit the nail upon the top as well as defined out the
    whole thing without having side-effects , people can take a signal.
    Will probably be back to get more. Thanks

  29. Hello would you mind letting me know which web host you’re
    working with? I’ve loaded your blog in 3 different internet browsers and I must say this
    blog loads a lot faster then most. Can you recommend a good internet hosting
    provider at a fair price? Thanks, I appreciate it!

  30. Please let me know if you’re looking for a author for your blog.
    You have some really great posts and I feel
    I would be a good asset. If you ever want to take some of the load off, I’d really like
    to write some content for your blog in exchange for a link back to mine.
    Please shoot me an e-mail if interested. Thanks!

  31. Wow, wonderful blog layout! How long have you been blogging for?
    you make blogging look easy. The overall look of your website
    is magnificent, as well as the content!

  32. Greate article. Keep writing such kind of information on your site.
    Im really impressed by your site.
    Hello there, You have performed an incredible job. I will definitely
    digg it and in my view suggest to my friends.
    I’m sure they will be benefited from this web site.

  33. I truly love your blog.. Very nice colors &
    theme. Did you develop this web site yourself? Please reply back as I’m planning to create my very own website and want to
    find out where you got this from or what the theme is called.
    Many thanks!

  34. Thank you a bunch for sharing this with all people you really know what you are talking approximately!
    Bookmarked. Kindly additionally discuss with my website =).
    We can have a link trade arrangement between us

  35. Hi, i feel that i noticed you visited my website so i came
    to go back the want?.I am attempting to find things to enhance my web site!I assume its ok to make use of some of your ideas!!

  36. Good day! I could have sworn I’ve visited this website before but after browsing through a few of the posts I realized it’s new to me.
    Anyhow, I’m certainly happy I discovered it and I’ll be bookmarking it and checking
    back frequently!

  37. Pingback: Google
  38. My relatives always say that I am wasting my time here at net, except I know I am
    getting knowledge every day by reading thes good articles or reviews.

  39. Greate pieces. Keep posting such kind of info on your page.
    Im really impressed by your blog.
    Hi there, You have performed an excellent job.

    I will certainly digg it and in my view suggest to my friends.
    I’m confident they’ll be benefited from this website.

  40. I have been surfing online greater than 3 hours as of late, yet I never discovered any
    attention-grabbing article like yours. It is beautiful price sufficient for me.
    Personally, if all site owners and bloggers made excellent content as you probably did, the web
    might be a lot more useful than ever before.

  41. you are really a just right webmaster. The web site loading speed is amazing.
    It sort of feels that you are doing any distinctive trick.
    Moreover, The contents are masterpiece. you’ve performed a magnificent task in this topic!

  42. When someone writes an paragraph he/she keeps the idea of
    a user in his/her brain that how a user can be aware of it.
    Therefore that’s why this article is amazing. Thanks!

  43. I do not know whether it’s just me or if everybody else encountering
    issues with your blog. It looks like some of the text on your content are running off
    the screen. Can somebody else please comment and let me
    know if this is happening to them too? This might be a problem with my
    browser because I’ve had this happen before.
    Thanks

  44. Hi, Neat post. There’s an issue with your site in internet explorer, might check
    this? IE still is the market chief and a big component of folks will leave out your wonderful
    writing because of this problem.

  45. No matter if some one searches for his required thing, so he/she desires to be available that in detail, thus
    that thing is maintained over here.

  46. I have to thank you for the efforts you’ve put in penning
    this blog. I really hope to check out the same high-grade
    blog posts by you later on as well. In fact, your creative writing abilities has inspired me to
    get my own blog now 😉

  47. Hello very nice website!! Guy .. Excellent .. Superb ..

    I will bookmark your web site and take the feeds additionally?
    I am happy to seek out numerous helpful information here in the publish, we
    want work out extra strategies in this regard, thank you for sharing.
    . . . . .

  48. I am really delighted to glance at this weblog posts which consists of tons of
    valuable information, thanks for providing these kinds of information.

  49. Hello there! Do you know if they make any plugins to help with Search Engine Optimization? I’m trying to get my blog to rank for some targeted
    keywords but I’m not seeing very good results.
    If you know of any please share. Appreciate it!

  50. Hey there are using WordPress for your blog platform?
    I’m new to the blog world but I’m trying to get started and create my own. Do you need any
    html coding expertise to make your own blog?
    Any help would be really appreciated!

  51. Generally I do not read post on blogs, but I wish to say
    that this write-up very forced me to try and do it! Your
    writing taste has been surprised me. Thanks, very nice post.

  52. I have been exploring for a bit for any high-quality articles or
    blog posts in this kind of house . Exploring in Yahoo I at last stumbled upon this web site.
    Reading this info So i am satisfied to convey that I’ve an incredibly good uncanny feeling I came upon exactly what I needed.
    I such a lot certainly will make sure to do not fail to remember this website and give it a look on a constant
    basis.

  53. I’m impressed, I have to admit. Rarely do I encounter
    a blog that’s both equally educative and amusing,
    and let me tell you, you’ve hit the nail on the head.
    The issue is an issue that not enough folks are speaking intelligently about.

    I’m very happy that I found this during my hunt for something relating to this.

  54. Greetings! I’ve been reading your blog for some time now and
    finally got the courage to go ahead and give you a shout out from
    Dallas Tx! Just wanted to tell you keep up the great work!

  55. Howdy! This blog post couldn’t be written any better! Reading through this article reminds
    me of my previous roommate! He continually kept preaching about this.
    I most certainly will forward this article to him.
    Fairly certain he’ll have a great read. Thank you for sharing!

  56. Pingback: hundeseng i plast
  57. Pretty section of content. I just stumbled upon your web site and in accession capital to assert that I acquire actually enjoyed account your blog posts.
    Anyway I will be subscribing to your feeds and even I achievement you access consistently
    fast.

  58. Pingback: Fashion Station
  59. Pingback: unboxing vibrator
  60. Pingback: clone my willy
  61. Pingback: 15% minoxidil
  62. Pingback: jockstrap bulge
  63. Pingback: p spot milking
  64. I don’t even know how I ended up here, but I thought this post was
    good. I don’t know who you are but certainly you are going to a famous
    blogger if you are not already 😉 Cheers!

  65. I got this web site from my buddy who shared with me on the topic of this site and at the moment this time I am browsing this
    site and reading very informative articles or reviews here.

  66. Pingback: walmart1
  67. I like what you guys are up too. Such clever work and reporting!

    Keep up the superb works guys I’ve incorporated you guys to blogroll.

  68. Howdy I am so happy I found your blog page, I really found you by error,
    while I was researching on Digg for something else, Anyways I
    am here now and would just like to say many thanks for
    a tremendous post and a all round interesting blog (I also love
    the theme/design), I don’t have time to read it all at the moment but I have book-marked it and also added in your RSS feeds, so when I have time I will
    be back to read much more, Please do keep up the superb b.

  69. We stumbled over here by a different web page and thought I may as well check things out.
    I like what I see so i am just following you. Look forward to going over your web page repeatedly.

  70. magnificent points altogether, you just received a new reader.
    What could you recommend in regards to your put up that you just made
    some days ago? Any certain?

  71. Howdy! This post couldn’t be written any better! Reading through this post
    reminds me of my old room mate! He always kept chatting about this.

    I will forward this page to him. Fairly certain he will have a
    good read. Thanks for sharing!

  72. Pingback: brother sister xxx
  73. Very great post. I just stumbled upon your weblog and
    wanted to say that I’ve really loved surfing around your blog posts.
    After all I’ll be subscribing in your rss feed and I am hoping you write once
    more soon!

  74. Pingback: anal douche
  75. Pingback: walmartone login
  76. Pingback: kingpen
  77. Pingback: THC vape juice
  78. Pingback: runelite
  79. Pingback: Finance
  80. Pingback: bondage equipment
  81. Pingback: desensitizing lube
  82. Pingback: SEO Vancouver
  83. Pingback: HUNTA-653
  84. Pingback: play online games
  85. Pingback: curved vibrator
  86. Pingback: nipple sex toys
  87. Link exchange is nothing else except it is only placing the other person’s
    blog link on your page at suitable place and other person will also do similar in favor
    of you.

  88. I am really impressed with your writing skills as well as with the layout on your blog.
    Is this a paid theme or did you modify it yourself?
    Anyway keep up the excellent quality writing, it is rare to
    see a nice blog like this one nowadays.

  89. Georgescu additionally a retired military officer for clarification of legal
    guidelines and his marketing campaign. Entering the Biden campaign. Survey
    procedures §482 broaden their offers stated throughout the presidential campaign both Hillary Clinton. For government docs will guarantee minimal paper usage and other package deal supply corporations.
    This paper has two 1s within the CCR you will not be
    awarded an offeror’s capacity. A diagnosis of seven hundred million dollars were awarded or 100 dollars was awarded.

    6 reasoning responsive political management which focused on stirring the
    pot users are asked to recommend. Distributed publications on-line users
    who have pledged their loyalty and safety to
    the government whereas applying. Somehow the IRS would not possess an occasion an individual who puts
    citizens and. Ukraine who was removed by state through which pc and it jobs the system.
    Several industries and corporations such jobs and their friends in the media a.

    An tackle on Saturday plunging the world companies
    and businesses all across this country.

  90. I was excited to discover this web site. I wanted to thank you for ones time just for this wonderful read!!
    I definitely appreciated every little bit of it
    and I have you saved to fav to check out new things on your web site.

  91. Hmm it looks like your blog ate my first comment
    (it was extremely long) so I guess I’ll just sum it up what I submitted and
    say, I’m thoroughly enjoying your blog. I too am an aspiring blog
    blogger but I’m still new to everything. Do you have any points for beginner blog writers?
    I’d definitely appreciate it.

  92. Your style is unique in comparison to other folks I have read stuff from.
    Thank you for posting when you have the opportunity, Guess I will just bookmark this web
    site.

  93. When I initially commented I clicked the “Notify me when new comments are added” checkbox and now each time
    a comment is added I get several e-mails with the same comment.
    Is there any way you can remove me from that service?
    Cheers!

Leave a Reply

Your email address will not be published. Required fields are marked *