Disclaimer: Qualquer informação médica incluída é baseada em uma experiência pessoal. Para dúvidas ou preocupações sobre saúde ou diagnósticos, consulte um médico ou profissional médico.
Embora a maioria das pessoas que sofrem de fibromialgia não seja diagnosticada até a meia idade, muitos podem rastrear seus sintomas de volta à adolescência ou mesmo à infância. Talvez você se sentisse mais cansado do que outras crianças da sua classe ou, muitas vezes, experimentou o que seu médico chamou de “dores crescentes”. Mas se esse for seu crescimento “normal”, pode demorar muitos anos a reconhecer que a dor, a fadiga, névoa cerebral ou sensibilidade ao toque em que você se acostumou é realmente indicativo de uma condição de saúde subjacente.
Às vezes, receber um diagnóstico como adulto não só coloca um nome para o seu conjunto atual de sintomas, mas também pode ter sentido algumas de suas experiências de infância. Pedimos a nossa comunidade poderosa com fibromialgia que compartilhe alguns dos sinais que eles criaram com fibro, que agora reconhecem em retrospectiva. Talvez o seguinte traga algumas memórias de sua própria infância.
Aqui está o que a comunidade compartilhou conosco:
1 . “Eu sempre estava mais cansado do que parecia” normal “, especialmente para minha idade. Também passaram por episódios de dor nas costas severa, dor no joelho e dor nas pernas “.
2 . “Quando criança, [eu estava] disse que minhas” dores crescentes “eram normais, mesmo que essa dor não tivesse nenhuma outra explicação lógica e nunca fosse embora. Os amigos e a família também me disseram que eu era excessivamente exagerado ou excessivamente sensível quando eu me afundi com dor quando tocado em certos pontos do meu corpo “.
3 . “Quando olho para trás, eu faria com que as enxaquecas horríveis fossem no sol, [e] eu tive que sempre fazer sonecas”.
4 . “Não poder participar da aula de ginástica, mas nunca ter uma desculpa legítima, além de” não me sinto bem “.
5 . “A náusea foi a pior. O que mais me lembro é passar horas da noite chorando no chão do banheiro com medo do que estava sentindo. Era uma dor quente e dolorida que sofria de tremor e extrema fraqueza. Não entendi por que senti que precisava vomitar, mas nunca realmente fiz e por que não iria embora “.
6 . “Quando comecei a dirigir, não conseguia me lembrar das estradas principais, apesar de ter vivido aqui toda a minha vida. [Eu] perdi meu carro no estacionamento ainda agora “.
7 . “Fadiga constante … Eu voltaria para casa da escola e vou direto para a cama e só acordei para comer, tomar banho e voltar a dormir”.
8 . “O sentimento de formigas rastejando dentro da minha pele. Um sentimento tão estranho e quase impossível de descrever com precisão “.
9 . “Eu costumava chorar para dormir à noite quando eu tinha 7 anos por causa da dor nas minhas pernas. Meu pai ajudaria colocando toalhinhas quentes nas minhas canelas para aliviar as dores. Agora o calor é a única coisa que ajuda a dor “.
10 . “Crescendo com fibro, aprendi paciência. Eu tive que aguardar pacientemente as bengalas para terminar. Aprendi empatia. Eu aprendi a nunca dizer: “Eu entendo como você se sente” porque, mesmo sabendo que minha dor é pior, ninguém vai acreditar em mim. Além disso, o que a minha norma pode não ser o mesmo para outra pessoa “.
11 . “Eu me recusei a usar roupas como jeans ou roupas com rótulos porque eles apenas irritaram minha pele tanto. Meus pais colocaram para [eu] ser exigente “.
12 . “Eu sou alto e sempre tive o que todos chamaram de” dores crescentes “em todo o meu corpo. Como adulto, eu tive CFS [síndrome de fadiga crônica] e fibro. Eu também tive TMJ, IBS e ainda estou afligido com depressão e ansiedade de alto funcionamento “.
13 . “Eu sempre fiz o que pude para sair de esportes na escola. Ser atingido por coisas e pessoas machucaram demais “.
14 . “Eu costumava temer ter que caminhar para lugares, para escola ou de outra forma. Eu sempre pensei que era apenas “preguiçoso” e era muito difícil para mim por isso “.
15 . “Não há fotos de mim discutindo ou viajando ou deitado na praia como a maioria dos adolescentes. Eu estava muito doente “.
16 . “Eu costumava passar muito tempo na cama, muito cansado. Coloquei-o na saúde mental, mas quando me recuperei disso, a fadiga continuou a piorar! ”
17 . “Eu quebrei minha perna aos 5 anos e, desde então, meu corpo doeu quando houve mau tempo. Parou na minha perna anteriormente quebrada por anos até cerca de um ano atrás, o que eu achava estranho, até que eu fui oficialmente diagnosticado há seis meses “.
18. “Quando criança, realmente doía se sentar de pernas cruzadas no chão. Eu sempre estava me movendo e ajustando, e pensei que todos sentiam o mesmo “.
19 . “Quando eu era adolescente, perdi muita escola por causa da fadiga / exaustão”.
20 . “[Eu tive] uma” dor menstrual “severa que disparava para cima e para baixo em meus braços e pernas e me faz desmaiar. Minha espinha sentiu-se terna, desde que me lembre.
21 . “Eu sempre fui chamado um buscador de atenção porque me machucava tão facilmente e com tanta frequência. Eu não entendi como as outras crianças conseguiram apenas o poder através de coisas que eu sabia que eram dolorosas. Bem, na verdade, essas coisas não machucaram para eles “.
22 . “Eu sempre encontrei coisas muito mais dolorosas do que qualquer outra pessoa, e eu sempre estava saindo nas colméias. Até me lembro de experimentar a fadiga, bem como uma infinidade de outros sintomas. No entanto, pensei que era completamente normal sentir o jeito que fiz e nunca trouxe para ninguém “.
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