Descargo de responsabilidad: cualquier información médica incluida se basa en una experiencia personal. Para preguntas o inquietudes sobre salud o diagnósticos, consulte a un médico o profesional médico.
Aunque la mayoría de las personas que tienen fibromialgia no son diagnosticadas hasta la edad madura, muchas pueden rastrear sus síntomas hasta la adolescencia o incluso la niñez. Tal vez se sintió más cansado que otros niños en su clase, o con frecuencia experimentó lo que su médico denominó “dolores de crecimiento”. Pero si este es su crecimiento “normal”, puede tomar muchos años para reconocer que el dolor, la fatiga, La niebla del cerebro o la sensibilidad al tacto a la que se ha acostumbrado es, en realidad, indicativa de una afección de salud subyacente.
A veces, recibir un diagnóstico como adulto no solo le da un nombre a su conjunto actual de síntomas, sino que también puede darle sentido a algunas de las experiencias de su infancia. Le pedimos a nuestra comunidad poderosa con fibromialgia que compartiera algunos de los signos que crecieron con el fibro, que ahora reconocen en retrospectiva. Quizás lo siguiente te traiga recuerdos de tu propia infancia.
Esto es lo que la comunidad compartió con nosotros:
1 . “Siempre estaba más cansado de lo que parecía ‘normal’, especialmente para mi edad. También sufrió episodios de dolor de espalda severo, dolor de rodilla y dolor en las piernas “.
2 . “Cuando era niño, [me dijeron] que mis ‘dolores de crecimiento’ eran normales, incluso cuando ese dolor no tenía otra explicación lógica y nunca desaparecía. También me dijeron amigos y familiares que estaba exagerando demasiado o que estaba demasiado sensible cuando me estremecía de dolor cuando me tocaban ciertos puntos de mi cuerpo “.
3 . “Cuando miro hacia atrás, me daría horribles migrañas por estar al sol, [y] siempre tenía que tomar siestas”.
4 . “No poder participar en la clase de gimnasia pero nunca tener una excusa legítima además de ‘simplemente no me siento bien'”.
5 . “Las náuseas fueron las peores. Lo que más recuerdo es pasar horas de la noche llorando en el piso del baño con miedo de lo que estaba sintiendo. Era un dolor de cuerpo completo, punzante y ardiente, que vino con temblores y debilidad extrema. No entendía por qué sentía que tenía que vomitar, pero nunca lo hice realmente y por qué no desaparecía “.
6 . “Cuando comencé a conducir, no podía recordar las carreteras principales a pesar de que he vivido aquí toda mi vida. [Perdí] mi auto en el estacionamiento incluso ahora “.
7 . “Constante fatiga … Llegaba a casa de la escuela e iba directamente a la cama y solo me despertaba para comer, ducharme y volver a dormir”.
8 . “La sensación de hormigas que se arrastran dentro de mi piel”. Una sensación tan extraña y casi imposible de describir con precisión “.
9 . “Solía llorar para dormir por la noche cuando tenía alrededor de 7 años debido al dolor en las piernas. Mi papá me ayudaba colocando paños tibios en mis espinillas para calmar el dolor. Ahora el calor es lo único que ayuda al dolor “.
10 . “Al crecer con fibro, aprendí paciencia. Tuve que esperar pacientemente a que terminaran las bengalas. He aprendido empatía. Aprendí a nunca decir: “Entiendo cómo te sientes” porque, aunque sé que mi dolor es peor, nadie me creerá. Además, lo que mi norma es podría no ser igual para otra persona “.
11 . “Me negué a usar ciertas prendas como jeans o ropa con etiquetas porque me irritaban tanto la piel. Mis padres me lo dijeron [a mí] siendo quisquilloso “.
12 . “Soy alto y siempre tuve lo que todos llamaron ‘dolores de crecimiento’ en todo el cuerpo. Como adulto, tuve CFS [síndrome de fatiga crónica] y fibro. También tuve TMJ, IBS y todavía estoy afectado por la depresión y la ansiedad de alto funcionamiento “.
13 . “Siempre hice lo que pude para dejar de jugar deportes en la escuela. Ser golpeado por cosas y la gente duele demasiado “.
14 . “Solía temer tener que caminar lugares, para la escuela o de lo contrario. Siempre pensé que solo era “flojo” y fui muy duro conmigo mismo “.
15 . “No hay fotos de mí aporreándome, viajando o tumbado en la playa como lo hacen la mayoría de los adolescentes”. Estaba muy enfermo “.
16 . “Solía pasar mucho tiempo en la cama, muy cansado. Lo atribuí a la salud mental, pero cuando me recuperé de eso, la fatiga siguió empeorando “.
17 . “Me rompí la pierna a los 5 años y desde entonces me dolía el cuerpo cuando llegaba el mal tiempo. Se detuvo en mi pierna rota anteriormente durante años hasta hace aproximadamente un año, lo que me pareció extraño, hasta que me diagnosticaron oficialmente hace seis meses “.
18. “Cuando era niño, realmente duele sentarse con las piernas cruzadas en el suelo. Siempre me estaba moviendo y ajustando, y pensé que todos los demás sentían lo mismo “.
19 . “Cuando era adolescente perdí mucha escuela debido a la fatiga / agotamiento”.
20 . “[Tuve] un severo ‘dolor menstrual’ que me recorría los brazos y las piernas y me hacía desmayar. Mi columna vertebral se ha sentido sensible todo el tiempo que puedo recordar “.
21 . “Siempre me llamaron un buscador de atención porque me lastimé tan fácilmente y con tanta frecuencia. No entendía cómo otros niños podían controlar cosas que sabía que eran dolorosas. Bueno, resulta que esas cosas no le dolieron “.
22 . “Siempre encontré cosas mucho más dolorosas que cualquier otra persona, y siempre salía en colmenas. Incluso puedo recordar experimentar la fatiga, así como una plétora de otros síntomas. Sin embargo, pensé que era completamente normal sentirme así y nunca se lo mencioné a nadie “.
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