Disclaimer: Toute information médicale incluse est basée sur une expérience personnelle. Pour des questions ou des préoccupations concernant la santé ou les diagnostics, veuillez consulter un médecin ou un professionnel de la santé.
Bien que la plupart des personnes atteintes de fibromyalgie ne soient pas diagnostiquées avant l’âge mûr, beaucoup peuvent en fait remonter leurs symptômes à l’adolescence ou même à l’enfance. Peut-être vous sentiez-vous plus fatigué que d’autres enfants de votre classe, ou avez souvent ressenti ce que votre médecin appelait des «douleurs de croissance». Mais si votre enfant grandit normalement, cela peut prendre plusieurs années pour reconnaître que la douleur, la fatigue, Le brouillard cérébral ou la sensibilité au toucher à laquelle vous vous êtes habitué indique en réalité un problème de santé sous-jacent.
Parfois, recevoir un diagnostic en tant qu’adulte donne non seulement un nom à l’ensemble de vos symptômes actuels, mais peut aussi donner un sens à certaines de vos expériences d’enfance. Nous avons demandé à notre communauté Mighty avec la fibromyalgie de partager certains des signes qu’ils ont grandi avec fibro, qu’ils reconnaissent maintenant rétrospectivement. Peut-être que ce qui suit ramènera quelques souvenirs de votre propre enfance.
Voici ce que la communauté a partagé avec nous:
1 . “J’étais toujours plus fatigué que ce qui me semblait” normal “, surtout pour mon âge. A également traversé des épisodes de douleur au dos sévère, douleur au genou et douleur à la jambe. ”
2 . “Quand j’étais enfant, on me disait que mes” douleurs de croissance “étaient normales, même quand cette douleur n’avait pas d’autre explication logique et ne disparaissait jamais . Des amis et des membres de ma famille m’ont aussi dit que j’étais excessivement exagéré ou excessivement sensible quand je grimais de douleur quand on me touchait à certains endroits de mon corps.
3 . “Quand je regarde en arrière, je devrais obtenir des migraines horribles d’être au soleil, [et] je devais toujours faire des siestes.”
4 . “Ne pas être capable de participer à un cours de gym, mais n’ayant jamais d’excuse légitime en plus de” je ne me sens pas bien “.
5 . “La nausée était la pire. La chose dont je me souviens le plus est de passer des heures de la nuit à pleurer sur le sol de la salle de bain, effrayée par ce que je ressentais. C’était une sensation de brûlure au corps entier, brûlante, accompagnée de tremblements et d’une extrême faiblesse. Je ne comprenais pas pourquoi j’avais l’impression d’avoir besoin de vomir mais je ne l’ai jamais vraiment fait et pourquoi ça ne partirait pas.
6 . «Quand j’ai commencé à conduire, je ne pouvais pas me souvenir des routes principales même si j’ai vécu ici toute ma vie. [Je] perds ma voiture dans le parking même maintenant. ”
7 . “Fatigue constante … Je rentrais de l’école et je me mettais directement au lit et me levais seulement pour manger, prendre une douche et me rendormir.”
8 . “Le sentiment de fourmis rampant dans ma peau. Un tel sentiment étrange et presque impossible à décrire avec précision. ”
9 . “J’avais l’habitude de pleurer moi-même pour dormir la nuit quand j’avais environ 7 ans à cause de la douleur dans mes jambes. Mon père m’aiderait en mettant des gants de toilette chauds sur mes tibias pour calmer les douleurs. Maintenant, la chaleur est la seule chose qui aide la douleur. ”
10 . “Grandir avec fibro, j’ai appris la patience. J’ai dû patiemment attendre la fin des fusées éclairantes. J’ai appris l’empathie. J’ai appris à ne jamais dire ‘je comprends ce que tu ressens’ car, même si je sais que ma douleur est pire, personne ne me croira. D’ailleurs, ma norme n’est peut-être pas la même pour quelqu’un d’autre.
11 . “J’ai refusé de porter certains vêtements tels que des jeans ou des vêtements avec des étiquettes parce qu’ils irritaient tellement ma peau. Mes parents m’ont dit que je devais être difficile.
12 . «Je suis grand et j’ai toujours eu ce que tout le monde appelait« douleurs de croissance »dans tout mon corps. En tant qu’adulte, j’ai eu le CFS [syndrome de fatigue chronique] et le fibro. J’ai aussi eu TMJ, IBS et suis toujours atteint de dépression et d’anxiété de haut niveau. ”
13 . “J’ai toujours fait tout ce que je pouvais pour sortir du sport à l’école. Se faire frapper par les choses et les gens font trop mal. ”
14 . “Je redoutais d’avoir à marcher, à l’école ou ailleurs. J’ai toujours pensé que j’étais juste “paresseux” et que c’était vraiment difficile pour moi. ”
15 . “Il n’y a pas de photos de clubbing ou de voyage ou de coucher sur une plage comme la plupart des adolescents. J’étais trop malade. ”
16 . “Je passais beaucoup de temps au lit, très fatigué. Je l’ai mis à la santé mentale, mais quand j’ai récupéré de cela, la fatigue a continué à s’aggraver! ”
17 . «Je me suis cassé la jambe à l’âge de 5 ans et depuis lors, mon corps a mal quand il y avait du mauvais temps. Il s’est arrêté dans ma jambe précédemment cassée pendant des années jusqu’à il y a environ un an, ce que je trouvais étrange, jusqu’à ce que j’ai été officiellement diagnostiqué il y a six mois. ”
18. «Quand j’étais enfant, il me faisait vraiment mal de m’asseoir les jambes croisées sur le sol. Je me déplaçais et je m’améliorais constamment, et je pensais que tout le monde ressentait la même chose.
19 . “Quand j’étais adolescente, j’ai manqué beaucoup d’école à cause de la fatigue et de l’épuisement.”
20 . “[J’avais] une” douleur menstruelle “sévère qui me traversait les bras et les jambes et me faisait perdre connaissance. Ma colonne vertébrale s’est sentie tendre aussi longtemps que je me souvienne. ”
21 . “On m’a toujours appelé un chercheur d’attention parce que je me suis blessé si facilement et si souvent. Je ne comprenais pas comment les autres enfants étaient capables de faire des choses que je savais douloureuses. Eh bien, il s’avère que ces choses n’ont pas fait de mal pour eux. ”
22 . «J’ai toujours trouvé des choses beaucoup plus douloureuses que n’importe qui d’autre, et je vomissais toujours dans les ruches. Je peux même me souvenir de l’expérience de la fatigue, ainsi que d’une pléthore d’autres symptômes. Pourtant, je pensais qu’il était tout à fait normal de ressentir ce que je faisais et je ne l’avais jamais apporté à personne. ”
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