Enfant, je restais éveillé la nuit à pleurer parce que mes genoux me faisaient tellement mal que je ne pouvais pas le supporter, et les muscles de mes jambes étaient si douloureusement serrés que même les reposer sur mes draps était insupportable. Mais après avoir visité d’innombrables médecins et subi des mois d’essais, on m’a dit que mes jambes et mes genoux étaient en parfaite forme. “C’est probablement juste des douleurs de croissance”, diraient les médecins. “Rien à foutre.”
Si vous souffrez de fibromyalgie, cela peut sembler trop familier. Beaucoup de fibroïdes commencent à ressentir des signes et des symptômes dès l’enfance, mais le manque de sensibilisation sur la façon dont les fibromes et autres douleurs chroniques peuvent affecter les enfants conduit de nombreux médecins à écarter la douleur et les symptômes qu’un enfant peut ressentir. Trop souvent, il faut des années (voire des décennies) avant de trouver un médecin qui écoute vraiment et est capable de poser un diagnostic précis.
La communauté médicale doit arrêter de rejeter les plaintes des enfants et de décrire leurs symptômes jusqu’à de simples «douleurs de croissance». Ainsi, pour mieux comprendre les signes précoces de la fibromyalgie chez les enfants, nous avons demandé à notre communauté Mighty de partager les symptômes fibro. les enfants qui se sont révélés être plus que de simples «douleurs de croissance». Ces symptômes doivent être pris au sérieux.
Voici ce que notre communauté a partagé avec nous:
1. “La douleur et les crampes sévères après PE On m’a toujours dit que tout le monde souffrait après l’exercice, alors j’ai grandi en pensant que tout le monde ressentait la même chose que moi.” – Kai M.
2. “J’ai connu une fatigue extrême pour mon âge. Cela a été associé à une douleur intense dans tout le corps, la peau et les os. J’étais également extrêmement sensible à la douleur qui dérange normalement à peine une personne en bonne santé. Quand les autres enfants de ma classe étaient bien en train de jouer au PE, j’étais pour la plupart incapable parce que mes jambes me faisaient mal comme s’ils avaient des bleus sur toute leur surface. Mes mains me faisaient mal au hasard et mes bras me donnaient l’impression d’avoir été frappés. “- Mikki I.
3. “Les points de pression de fibro. J’ai toujours eu mal quand les gens insistaient. »- Brittany H.
4. “Des jambes sans repos qui me gênaient tout au long de la classe, des douleurs qui me maintenaient la nuit dans les jambes, des sensations de lumière et de sons atroces et une fatigue qui me traînait derrière mes amis pour des raisons” inconnues “. Marissa E.
5. “Le soleil était si brillant que je ne pouvais pas ouvrir les yeux. Même à l’intérieur. “- Ekka N.
6. “Mes chevilles semblaient toujours blesser. J’essayais le sport et aimais le concept mais la tension physique n’aimait pas mes jeunes chevilles. C’était toujours ‘tu es une vieille femme, Lex!’ Et nous avons tous plaisanté sur le fait que ce soit des douleurs de croissance. La dépression est arrivée très jeune aussi. Une fois que j’ai été diagnostiqué à 17 ans, tout est arrivé. J’ai 19 ans maintenant et je reçois toujours le ‘tu es trop jeune pour blesser ce mal’. “- Alexis Mae G.
7. “Sensations de brûlure et de rongement constant dans mes jambes, et parfois, mes bras aussi.” – Kyndra E.
8. “En dehors des symptômes fibro standard, les grands signes pour moi étaient: Sensibilité inhabituelle aux matériaux vestimentaires, changements dans les conditions météorologiques et faiblesse liée à l’effort physique. Je lutterais en étant assis les jambes croisées sur le sol (ce qui était nécessaire dans les écoles secondaires) et en jouant dehors avec les autres enfants. »- Georgia D.
9. “L’intolérance à la chaleur! Je suis toujours devenu furieux si je deviens chaud. “- Chelsea M.
10. “Fatigue. Tellement de fatigue et je ne comprendrais pas pourquoi. Je ressentais des douleurs dans les doigts et les jambes qui me donnaient l’impression de les tordre mais je ne bougeais même pas. Mes mains et mes pieds enfleraient et seraient douloureux et je n’aurais aucune idée de pourquoi. “- Samantha M.
11. “Douleurs dans les jambes. Les gens me disaient qu’ils étaient shin attelles de cheerleading. J’ai juste hoché la tête et accepté. Mais au fond, je savais juste que c’était quelque chose d’autre. »- Christina MP
12. “Je ne pouvais pas dormir avec le poids de mon genou droit à gauche, j’avais l’impression que ma tête était trop lourde pour mon cou.” – Gwen K.
13. “Un sentiment quelque part entre une crampe de pied et un muscle tiré dans la plante de mes pieds. Ma hanche avait l’habitude d’enfermer ou d’éclater, ce qui a été rejeté comme une douleur de croissance ou «une de ces choses». Ce n’est que depuis qu’on a diagnostiqué à 30 ans que ces choses commencent à avoir du sens. »- Sophie R.
14. “J’avais beaucoup de maux de gorge. Plus tard j’ai eu des amygdales enlevées. J’ai également été diagnostiqué avec Epstein Barr. “- Paulette N.
15. «Fatigue, douleur à l’estomac qui a été causée par des hormones ou le syndrome du côlon irritable, des douleurs musculaires et articulaires. Toujours attraper les insectes et les aggraver et plus longtemps que ceux qui m’entourent. On me demandait constamment si j’étais déprimé par mon médecin quand j’étais fatigué de me sentir toujours malade et fatigué. »- Julie M.
16. “Je serais allongé sur le dos, et soudain je ne pouvais pas m’asseoir ni bouger. Tout le bas du dos me ferait mal, ça me ferait peur … “- Amber Y.
17. «Tout au long de mon adolescence, je ressentais une douleur si grave que je me courbais dans la position du fœtus, tout devenait blanc parce que la douleur était si forte et que je ne pouvais même pas demander de l’aide.» – Jenny H.
18. “J’avais des crampes musculaires extrêmes dans le bas de mes jambes. Je l’ai gravé dans mes leçons de ballet, mais après 12 ans de danse, c’était quelque chose que je n’avais jamais connu auparavant et j’aurais dû savoir que quelque chose n’allait pas. Mon médecin de famille m’a donné des relaxants musculaires et m’a juste dit de m’étirer davantage. »- Elyse B.
19. “Fatigue. C’était bien pire une fois que j’ai commencé mes règles. J’ai raté beaucoup d’école pendant ces périodes. “- Vonda M.
20. “Un serrement serré autour de mes membres qui me ferait me sentir étourdi et comme si j’allais m’évanouir. Les médecins ont dit que c’était juste des douleurs de croissance et que j’étais dramatique. »- Emma F.
21. «À l’adolescence, j’étais obligé de faire du sport quand j’étais au lycée, mais sauter par-dessus des obstacles ou courir tranquillement sur une piste pouvait entraîner des quadriceps, des ischio-jambiers et des tibias débilitants. C’était frustrant. Gênant. Pire encore, la plupart des instructeurs ne croyaient pas que j’étais dans la douleur que je ressentais et pensais que je faisais semblant. Je me suis fait engueuler et puni pour avoir essayé de sortir de la classe. En regardant en arrière avec ce que je sais maintenant, cela m’apporte un niveau de paix pour enfin comprendre. Pour finalement savoir que tout n’était pas dans ma tête. “- Natalie H.
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