21 sintomi I bambini con fibromialgia sono stati eliminati come “dolori della crescita”

Da bambina, ero sveglio di notte piangendo perché le ginocchia mi facevano male tanto che non riuscivo a sopportarlo, ei muscoli delle mie gambe erano così dolorosamente tesi che persino stare seduto sulle mie lenzuola era insopportabile.Ma dopo aver visitato innumerevoli dottori e mesi di test, mi è stato detto che le mie gambe e le mie ginocchia erano in perfetta forma. “Probabilmente si tratta solo di dolori in crescita”, dicono i medici. “Niente da fare.”

Se hai la fibromialgia, potrebbe sembrare troppo familiare. Molti fibromi iniziano a manifestare segni e sintomi durante l’infanzia, ma la mancanza di consapevolezza su come i fibromi e altri dolori cronici possono influenzare i bambini porta molti medici a escludere il dolore e i sintomi che un bambino può sentire Troppo spesso, ci vogliono anni (o anche decenni) per trovare un medico che ascolti veramente e sia in grado di fare una diagnosi accurata.

La comunità medica deve smettere di rifiutare i reclami dei bambini e descrivere i loro sintomi fino a quando non sono semplicemente “dolori della crescita”. Quindi, per capire meglio i primi segni di fibromialgia nei bambini, abbiamo chiesto alla nostra potente comunità di condividere i sintomi dei fibro. bambini che hanno dimostrato di essere più che semplici “dolori della crescita”. Questi sintomi devono essere presi sul serio.

Questo è ciò che la nostra comunità ha condiviso con noi:

  1. “Forte dolore e crampi dopo la PE mi è sempre stato detto che tutti soffrivano dopo l’esercizio, quindi sono cresciuto pensando che tutti si sentivano allo stesso modo di me.” – Kai M.
  2. “Ho provato estrema fatica per la mia età. Questo è stato associato a un intenso dolore in tutto il corpo, la pelle e le ossa. Ero anche estremamente sensibile al dolore che normalmente infastidiva una persona sana. Quando gli altri bambini della mia classe stavano giocando PE, ero per lo più incapace perché le mie gambe dolevano come se avessero lividi sulla loro superficie. Le mie mani mi hanno ferito e le mie braccia mi hanno fatto sentire come se fossi stato colpito. “- Mikki I.
  3. “Punti di pressione Fibro. Mi fa sempre male quando la gente ha insistito. – Brittany H.
  4. “Gambe senza riposo che mi hanno infastidito per tutta la lezione, dolori che mi hanno tenuto nelle gambe, sensazioni di luce e suoni terribili e stanchezza che mi hanno trascinato dietro i miei amici per ragioni” sconosciute “. Marissa E.
  5. “Il sole era così luminoso che non riuscivo ad aprire gli occhi. Anche dentro. “- Ekka N.
  6. “Le mie caviglie sembravano sempre ferire. Ho provato lo sport e mi è piaciuto il concetto ma la tensione fisica non mi piaceva alle caviglie. Era sempre ‘sei una vecchia, Lex!’ E tutti scherziamo sul fatto che sta crescendo il dolore. Anche la depressione è avvenuta molto giovane. Una volta mi è stato diagnosticato all’età di 17 anni, è successo tutto. Ho 19 anni e continuo a ricevere ‘sei troppo giovane per fare del male a questo male’. “- Alexis Mae G.
  7. “Sensazioni di bruciore e rancore costante nelle mie gambe, ea volte anche le mie braccia.” – Kyndra E.
  8. “A parte i sintomi fibro standard, i grandi segnali per me sono stati: sensibilità insolita ai materiali di abbigliamento, cambiamenti nelle condizioni meteorologiche e debolezza legata allo sforzo fisico. Avrei lottato stando seduto a gambe incrociate sul pavimento (che era necessario nelle scuole superiori) e giocando fuori con gli altri bambini. – Georgia D.
  9. “Intolleranza al calore! Sono sempre diventato furioso se mi divento caldo. “- Chelsea M.
  10. “Fatica. Così stanco e non capirò perché. Ho sentito dolori alle dita e alle gambe che mi hanno fatto sentire come torcere, ma non mi sono nemmeno mosso. Le mie mani e i miei piedi si gonfieranno e saranno dolorosi e non avrei idea del perché. “- Samantha M.
  11. “Dolori alle gambe. La gente mi ha detto che erano stinchi di cheerleading. Ho appena annuito e accettato. Ma in fondo, sapevo solo che era qualcos’altro. – Christina MP
  12. “Non riuscivo a dormire con il peso del mio ginocchio destro a sinistra, mi sembrava che la mia testa fosse troppo pesante per il mio collo.” – Gwen K.
  13. “Una sensazione da qualche parte tra un crampo ai piedi e un muscolo tirato nella pianta dei miei piedi. La mia anca era solita bloccare o scoppiare, che veniva liquidata come un dolore crescente o “una di quelle cose”. È solo da quando ci è stato diagnosticato a 30 che queste cose stanno iniziando a dare un senso. – Sophie R.
  14. “Ho avuto un sacco di mal di gola. Più tardi ho rimosso le tonsille. Mi è stato diagnosticato anche con Epstein Barr. “- Paulette N.
  15. “Affaticamento, mal di stomaco causato da ormoni o sindrome dell’intestino irritabile, dolori muscolari e articolari. Prendi sempre gli insetti e rendili peggiori e più a lungo di quelli intorno a me. Mi è stato costantemente chiesto se ero depressa dal mio dottore quando ero stanco di sentirmi sempre male e stanco. – Julie M.
  16. “Mi sdraiavo sulla schiena e improvvisamente non potevo sedermi o muovermi. Tutta la parte bassa della schiena mi farebbe male, mi spaventerebbe … “- Amber Y.
  17. “Durante la mia adolescenza, ho sentito un forte dolore tale che ho piegato verso il basso in posizione fetale, tutto è diventato bianco perché il dolore era così forte che non riuscivo nemmeno a chiedere aiuto.” – Jenny H.
  18. “Ho avuto forti crampi muscolari nella parte inferiore delle gambe. L’ho inciso nelle mie lezioni di danza classica, ma dopo 12 anni di danza, era qualcosa che non avevo mai sperimentato prima e avrei dovuto sapere che c’era qualcosa di sbagliato. Il mio medico di famiglia mi ha dato dei rilassanti muscolari e mi ha appena detto di allungare ulteriormente. – Elyse B.
  19. “Fatica. È stato molto peggio una volta iniziato il ciclo. Ho perso un sacco di scuola durante quei tempi. “- Vonda M.
  20. “Una stretta stretta attorno alle mie membra che mi farebbe girare la testa e come se stessi per svenire. I dottori dissero che stava solo crescendo i dolori e che ero drammatico. – Emma F.
  21. “Da adolescente, dovevo fare sport mentre ero al liceo, ma saltare ostacoli o correre tranquillamente su una pista poteva causare debilitanti quadricipiti, tendini e stinchi. E ‘stato frustrante. Imbarazzante. Peggio ancora, la maggior parte degli istruttori non credeva che fossi nel dolore che sentivo e pensavo di fingere. Sono stato urlato e punito per aver cercato di uscire dalla classe. Guardando indietro con quello che so ora, mi porta un livello di pace per capire finalmente. Per sapere finalmente che tutto non era nella mia testa. “- Natalie H.

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