21 sintomas crianças com fibromialgia tiveram que foram escovados como ‘dores de crescimento’

Quando criança, eu ficava acordado à noite chorando porque meus joelhos doíam tanto que não conseguia aguentar, e os músculos das minhas pernas estavam tão dolorosamente apertados que até mesmo descansá-los nos meus lençóis macios era insuportável. Mas depois de visitar inúmeros médicos e duradouros meses de testes, me disseram que minhas pernas e joelhos estavam em perfeita forma. “É provavelmente apenas dores de crescimento”, os médicos diriam. “Nada para se preocupar.”

Se você tem fibromialgia, isso pode parecer muito familiar. Muitas das pessoas com fibrose começam a sentir sinais e sintomas logo na infância, mas a falta de consciência sobre como a fibrose e outras condições de dor crônica podem afetar as crianças leva muitos médicos a eliminar a dor e os sintomas que a criança pode estar sentindo. Muitas vezes leva anos (ou até décadas) antes de encontrar um médico que realmente ouve e é capaz de fazer um diagnóstico preciso.

A comunidade médica precisa parar de ignorar as queixas das crianças e registrar seus sintomas em simples “dores de crescimento”. Assim, para entender melhor como os primeiros sinais da fibromialgia podem parecer para as crianças, pedimos à nossa comunidade Mighty que compartilhe os sintomas fibrosos que eles experimentaram. crianças que se revelaram mais do que apenas “dores de crescimento”. Esses sintomas precisam ser levados a sério.

Veja o que nossa comunidade compartilhou conosco:

1. “Dor e cãibras severas depois da PE Sempre me disseram que ‘todo mundo sofre depois do exercício’, então cresci pensando que todos se sentiam da mesma maneira que eu.” – Kai M.

2. “Eu experimentei extrema fadiga para a minha idade. Isso foi acoplado com dor severa em todo o meu corpo, pele e ossos. Eu também era extremamente sensível à dor que normalmente mal incomodaria uma pessoa saudável. Quando as outras crianças da minha turma estavam bem jogando no PE, eu estava quase impossibilitada porque minhas pernas doíam como se tivessem contusões em toda a superfície. Minhas mãos doeriam aleatoriamente e meus braços pareciam ter sido perfurados neles. ”- Mikki I.

3. “Os pontos de pressão fibro. Eu sempre tive dor quando as pessoas pressionavam as pessoas. ”- Brittany H.

4. “Pernas inquietas que me deixavam desconfortável durante toda a aula, dor que me mantinha acordada à noite atirando nas minhas pernas, sensibilidades leves e sonoras que eram insuportáveis, e fadiga que me deixava atrás de meus amigos por motivos ‘desconhecidos’”. Marissa E.

5. “O sol estava tão brilhante que eu não conseguia abrir meus olhos. Até dentro de casa. ”- Ekka N.

6. “Meus tornozelos sempre pareciam doer. Eu experimentava esportes e amava o conceito, mas a tensão física não amava meus tornozelos jovens. Era sempre “você é uma mulher velha, Lex!” E todos nós brincamos sobre isso ser dores de crescimento. Depressão também veio muito jovem. Uma vez que eu fui diagnosticado aos 17 anos, tudo veio junto. Eu tenho 19 agora e ainda recebo o ‘você é muito jovem para machucar isso ruim’. ”- Alexis Mae G.

7. “Constantes ardores e sensações de roer nas minhas pernas e, às vezes, nos meus braços também.” – Kyndra E.

8. “Além dos sintomas padrão da fibro, os grandes sinais para mim foram: sensibilidade incomum a materiais de vestuário, mudanças no clima e fraqueza relacionada ao esforço físico. Eu lutava sentado de pernas cruzadas no chão (que era exigido nas escolas mais baixas) e brincando com as outras crianças. ”- Georgia D.

9. “Intolerância ao calor! Eu sempre me tornei irado se eu ficar quente. ”- Chelsea M.

10. “Fadiga. Tanta fadiga e eu não entenderia o porquê. Eu sentiria dores nos meus dedos e pernas, que me davam a impressão de torcê-las, mas eu nem estava me mexendo. Minhas mãos e pés incham e são doloridos e eu não tenho idéia do porquê. ”- Samantha M.

11. “dor nas pernas. As pessoas me diziam que eram canelas de torcida. Eu apenas balancei a cabeça e concordei. Mas no fundo, eu sabia que era outra coisa. ”- Christina MP

12. “Não conseguir dormir com o peso do meu joelho direito à esquerda, sentindo que minha cabeça estava pesada demais para o meu pescoço.” – Gwen K.

13. “Um sentimento em algum lugar entre uma cãibra no pé e um músculo puxado na sola dos meus pés. Meu quadril costumava prender ou estourar, o que foi descartado como dores de crescimento ou “uma dessas coisas”. É só desde o diagnóstico aos 30 que essas coisas estão começando a fazer sentido. ”- Sophie R.

14. “Eu tive muitas dores de garganta. Mais tarde tive amígdalas removidas. Eu também fui diagnosticado com Epstein Barr. ”- Paulette N.

15. “Fadiga, dor de estômago que foi atribuída a hormônios ou síndrome do intestino irritável, dores musculares e nas articulações. Sempre pegando os insetos e ficando cada vez pior que os que estão ao meu redor. Constantemente sendo perguntado se eu estava deprimido pelo meu médico quando eu estava apenas doente e cansado de sempre me sentir doente e cansado. ”- Julie M.

16. “Eu estaria deitado de costas e, de repente, não conseguia me sentar ou me mexer. Toda minha parte inferior das costas estaria doendo, isso me assustaria … ”- Âmbar Y.

17. “Durante toda a minha adolescência, eu recuperava tanto a dor que eu me enroscava na posição fetal, tudo ficava branco porque a dor era tão ruim e eu nem conseguia pedir ajuda.” – Jenny H.

18. “Eu tinha cãibras musculares extremas nas minhas pernas. Peguei as minhas lições de balé, mas depois de 12 anos de dança, era algo que eu nunca tinha experimentado antes e deveria saber que algo estava errado. Meu médico de família me deu relaxantes musculares e me disse para alongar mais. ”- Elyse B.

19. “Fadiga. Foi muito pior quando comecei o meu período. Eu perdi muita escola durante esses tempos. ”- Vonda M.

20. “Um aperto forte em torno dos meus membros que me faria sentir tonto e como se fosse desmaiar. Os médicos disseram que eram apenas dores de crescimento e eu estava sendo dramático. ”- Emma F.

21. “Quando era adolescente, era exigido que eu fizesse ginástica quando estava no ensino médio, mas simplesmente saltar sobre obstáculos ou correr com facilidade ao redor de uma pista poderia resultar em um severo distúrbio de quadríceps, isquiotibiais e debilitantes rachaduras nas canelas. Foi frustrante. Embaraçoso. Pior era que a maioria dos instrutores não acreditava que eu estava sofrendo e achei que estava fingindo. Eu fui gritado e castigado por tentar ‘sair’ da aula. Olhando para trás com o que eu sei agora, isso me traz um nível de paz para finalmente entender. Para finalmente saber que não estava tudo na minha cabeça. ”- Natalie H.

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