Jennifer Brea var 28 år gammel da hun fant seg ikke i stand til å avslutte en tur eller sykle, hun dro hjem halvveis og sov i timevis.
“På en måte tenkte jeg:” Å, kanskje blir jeg bare gammel, “sier regissøren og hovedpersonen til den nye dokumentarfilmen” El Malavos “. “Jeg var bare 28 år gammel, og jeg tenkte:” Kanskje blir jeg bare gammel? «Og en del er fordi jeg fortsatte å gå til legen, og han sa til meg:« Du har det bra, du har det bra, du har det bra »».
Hun var ikke bra, hennes tretthet ble verre, og snart fikk hun doktorgradsstudent fra Harvard, Ph.D. Student kunne ikke fullføre setninger eller til og med sende en epost. Men legene kunne fortsatt ikke identifisere noe som sannsynligvis var galt med henne, og hun ble endelig fortalt at hun hadde en “konversjonsforstyrrelse”: en moderne versjon av hysteri.
Faktisk, Brea, som nå er 35 og bor i California, har kronisk utmattelsessyndrom, eller CFS, også kjent som myalgisk encefalomyelitt. Tilstanden forårsaker alvorlig utmattelse, hjerne tåke og ofte smerte. Han mistenker at hans sak ble utløst av en feber på en dag i 2011, selv om lite er kjent om årsakene til kronisk tretthet.
Hans dokumentar, som nå vises på IFC Center, chronicles hans kamp med CFS, og stigma knyttet til sykdommen lite kjent: fordi tilstanden er fortsatt under radaren, tror mange at de med CFS er bare lei Eller overdrive. symptomene
Brea-korstoget blir stadig mer populært, takket være til en håndfull kjendiser som har åpnet sine egne kamp mot kronisk og vanskelig å diagnostisere sykdommer.
Sanger Lady Gaga gjorde nyheter tidligere denne måneden da hun annonserte at hun led av fibromyalgi, en annen kronisk smerte tilstand. Hun avbrød en scene av en tur for å gjenopprette, men selv hun stod overfor reaksjonen av fans som ikke trodde hennes sykdom var ekte.
Ved begge forhold er det ingen blodprøve for å bekrefte en diagnose; heller, blir diagnosen som er utført i henhold til selv rapporterte symptomene hos pasienten, og en høy smerte over og under hoftene i tilfelle av fibromyalgi.
Selv om det er forskning på biomarkørene av hver tilstand (for eksempel høye nivåer av visse proteiner i blodet), er det vanskelig å vite med sikkerhet om en person har en tilstand.
Et annet problem: Det er anslått at kvinner er seks ganger mer sannsynlig å ha CFS enn menn og dobbelt så sannsynlig at de har fibromyalgi.
Historisk sett er kvinner som rapporterer symptomer som ekstrem smerte og tretthet beskrevet som “hysterisk” og blir ofte behandlet som om forholdene deres var rent psykologiske.
Historisk sett er kvinner som rapporterer symptomer som ekstrem smerte og tretthet beskrevet som “hysterisk” og blir ofte behandlet som om forholdene deres var rent psykologiske.
Når Brea ble syk for første gang, fortalt en nevrolog at hans symptomer var sannsynligvis på grunn av følelsesmessige traumer glemt i sin fortid.
NYU Langones reumotolog, Paula Rackoff, MD, sier at denne typen reaksjon fra det medisinske samfunnet endrer seg, takket være en økning i kvinnelige leger.
“Jeg tror kvinner reagerer på kvinner forskjellig [enn menn],” sier Rackoff.
Men skeptikere forblir forstyrrende.
I forrige uke rapporterte Gaga om sine problemer på Instagram, og forsvaret seg fra kritikere.
“Jeg bruker ordet” lider “ikke ut av synd eller oppmerksomhet, og jeg var skuffet over å se at folk online foreslår at jeg blir dramatisk, jeg oppfinner eller tolker offeret for å forlate turen,” skrev han i et intervju. Legenden om bildet. “Jeg bruker ordet lider ikke bare fordi traumer og kroniske smerter har forandret livet mitt, men fordi de hindrer meg fra å lede et normalt liv.”
I sin nye Netflix-dokumentar “Gaga: Five Foot Two”, kringkastet, følger kameraene ham når han gråter, rister og går til en lege for å injisere et utløserpunkt, hvor en lege injiserer medisiner i musklene stramt å dumpe smerten. utstråler fra hofte til kjeve.
“Ser jeg patetisk?” Han spør i en scene som han gråter. “Jeg er så flau.”
Gaga bryr seg ikke bare om sin egen evne til å håndtere smerte, men også andre med sykdommen som ikke har det samme støttesystemet, eller midler til behandling som hun har.
Men selv Gaga sliter med å finne leger som vet hvordan de skal behandle deres fremdeles mystiske tilstand. I en annen scene sier han at han foretrekker å prøve smertefulle behandlinger enn å sitte på en MR-maskin i flere timer, bare for å bli fortalt å ta Advil på slutten.
Brea skylder alvoret av hans tilstand for den tiden det tok ham å finne en lege som trodde henne.
«Jeg tror det er en god sjanse for at hvis de hadde diagnostisert meg … før, ville jeg ikke blitt så syk som jeg hadde, og jeg kunne ikke ha endt opp i rullestol,» sier han og legger til at i stedet for å hvile i utgangspunktet presset han seg å trene og jobbe. Antivirale medisiner og nylige endringer i livsstil har forbedret tretthet, men hun tror ikke det vil “helbrede” helt.
Hun er opptatt av at feilinformasjon og feildiagnoser kan gjøre det vanskelig for pasienter å få støtte fra sine kjære.
“Jeg tror mange mennesker ender opp med å tro at det er i hodet, og deres familier vet noen ganger ikke hva de skal gjøre,” sier Brea. “Fordi de vil støtte den personen de elsker, men når eksperten sier noe annet, er det veldig vanskelig å vite hvem som skal tro. Og den mangelen på medisinsk utdanning [av leger] bidrar til familier som adskiller seg, til personer som blir skilt, til familiemedlemmer som er skilt. “
Brea sier at mens hennes ektemann var ved siden av henne fra den første dagen, beklager hun fortsatt hvordan hun har påvirket drømmene hennes.
Rackoff sier at de som mistenker at de har en av de to sykdommene, er helt berettiget til å søke en andre eller tredje mening. “Ikke kast bort instinktet ditt.”
constantly i used to read smaller posts which as well clear their motive,
and that is also happening with this post which I am reading now.
A financial advisor is your planning associate.
These are truly wonderful ideas in regarding blogging.
You have touched some nice points here. Any way keep up wrinting.
Wow that was unusual. I just wrote an very long comment
but after I clicked submit my comment didn’t appear.
Grrrr… well I’m not writing all that over again. Anyways, just wanted to say fantastic
blog!
Woah! I’m really digging the template/theme of this
blog. It’s simple, yet effective. A lot of times it’s very hard to get that “perfect balance” between usability and
visual appearance. I must say you’ve done a awesome job with this.
Also, the blog loads extremely quick for me on Opera. Exceptional Blog!
It’s really a great and helpful piece of info. I’m happy that you shared this useful information with us.
Please keep us up to date like this. Thanks for sharing.
It’s very trouble-free to find out any topic on web as compared to textbooks, as I found this article
at this web page.
Truly when someone doesn’t understand then its up to other visitors that
they will assist, so here it happens.
Contemplate investments that supply immediate annuities.
Unquestionably believe that which you stated. Your favorite justification appeared to be on the internet the simplest thing to be
aware of. I say to you, I certainly get irked while people think about worries that they plainly don’t
know about. You managed to hit the nail upon the top and
also defined out the whole thing without having side-effects , people
can take a signal. Will probably be back to get more. Thanks
Hello friends, its wonderful piece of writing
about educationand completely explained, keep it up all the time.
When someone writes an post he/she retains the image of
a user in his/her mind that how a user can be aware of it.
So that’s why this piece of writing is great. Thanks!
That is true for funding advice as nicely.
Hi would you mind stating which blog platform you’re using?
I’m looking to start my own blog in the near future but I’m having a hard
time making a decision between BlogEngine/Wordpress/B2evolution and Drupal.
The reason I ask is because your design and
style seems different then most blogs and I’m looking for something completely
unique. P.S Sorry for getting off-topic but I had
to ask!
Traders do pay direct and indirect prices.
Thank you in your interest in Investment Recommendation.
What’s up, this weekend is pleasant designed for me, since this time i am reading this
fantastic educational paragraph here at my home.
Monetary advisors enterprise is folks enterprise.
Hello would you mind letting me know which webhost you’re
working with? I’ve loaded your blog in 3 different internet browsers and
I must say this blog loads a lot faster then most. Can you suggest a good internet hosting provider at a reasonable price?
Thank you, I appreciate it!
Heya i’m for the primary time here. I came across this board and I to find It
truly helpful & it helped me out a lot. I hope to
provide something back and help others such as you helped me.
you’re in reality a just right webmaster. The website
loading pace is incredible. It seems that you are
doing any distinctive trick. Also, The contents are masterpiece.
you have performed a fantastic job in this subject!
Financial advisors enterprise is individuals enterprise.
All types of investments include sure risks.
Hello there, I found your website by means of Google while looking for a related matter, your website got here up, it appears to be like great.
I have bookmarked it in my google bookmarks.
Hi there, simply turned into aware of your blog thru Google, and located that it
is really informative. I’m gonna be careful for
brussels. I will appreciate should you continue this in future.
Numerous folks might be benefited from your writing.
Cheers!
Contemplate investments that supply fast annuities.
Pretty portion of content. I simply stumbled upon your web site and in accession capital to say that I acquire actually loved
account your blog posts. Anyway I will be subscribing on your augment and even I fulfillment
you get right of entry to persistently quickly.
Schwab Clever Portfolios invests in Schwab ETFs.
Thanks for sharing such a good thought, article is pleasant, thats
why i have read it fully
When someone writes an post he/she retains the image of a user in his/her brain that how
a user can know it. Therefore that’s why this
post is amazing. Thanks!
Heya i am for the first time here. I found this board and I find It
truly useful & it helped me out much. I hope to give something back and help others like you helped me.
I love your blog.. very nice colors & theme. Did you make this website yourself or did you hire someone
to do it for you? Plz respond as I’m looking to design my own blog and would like to know where u got this from.
kudos
Hi, i read your blog occasionally and i own a similar one and i was just wondering
if you get a lot of spam remarks? If so how do you protect against it,
any plugin or anything you can suggest? I get so much lately it’s driving me crazy so any help is very much appreciated.
Good article! We will be linking to this great content on our site.
Keep up the good writing.
I like what you guys are usually up too. This sort of clever
work and coverage! Keep up the good works guys I’ve you guys to blogroll.
Thank you to your curiosity in Funding Advice.
Investors do pay direct and indirect costs.
I know this if off topic but I’m looking into starting my own weblog
and was curious what all is required to get setup?
I’m assuming having a blog like yours would cost a pretty penny?
I’m not very internet smart so I’m not 100% positive. Any tips or
advice would be greatly appreciated. Thank you
And that is an funding risk value taking.
I just like the valuable information you provide
to your articles. I will bookmark your weblog and check again right here regularly.
I’m fairly sure I’ll learn many new stuff proper right
here! Best of luck for the next!
Financial advisors business is folks enterprise.
This page definitely has all of the information and facts I
wanted concerning this subject and didn’t know who to ask.
Now it’s time to decide your particular investments.
And that is an funding threat worth taking.
I am not sure where you’re getting your information, but great topic.
I needs to spend some time learning more or understanding more.
Thanks for great info I was looking for this information for my mission.
Thanks a bunch for sharing this with all folks you actually recognise what you’re speaking about!
Bookmarked. Please also discuss with my web
site =). We will have a hyperlink alternate contract among
us
I am not certain the place you are getting your info, however great topic.
I needs to spend a while studying much more or understanding more.
Thanks for great information I was looking for this information for my mission.
Now it is time to pick your particular investments.
I blog frequently and I really appreciate your information. This great article has
truly peaked my interest. I am going to bookmark your site
and keep checking for new information about once per week.
I subscribed to your RSS feed too.
Financial advisors business is folks business.
I’d like to find out more? I’d love to find out more
details.
All varieties of investments come with sure dangers.
And that is an funding danger value taking.
Spot on with this write-up, I actually believe this site needs much
more attention. I’ll probably be back again to see more, thanks for the info!
When some one searches for his vital thing, so he/she needs to
be available that in detail, thus that thing is
maintained over here.
And this is an investment danger worth taking.
Thank you on your interest in Funding Advice.
I’m really loving the theme/design of your blog.
Do you ever run into any browser compatibility issues?
A few of my blog audience have complained
about my blog not operating correctly in Explorer but looks great in Safari.
Do you have any ideas to help fix this issue?
Contemplate investments that supply fast annuities.
With havin so much content and articles do you ever run into any problems of plagorism
or copyright infringement? My blog has a lot of unique content
I’ve either authored myself or outsourced but it looks like a lot
of it is popping it up all over the web without my permission. Do you know any solutions to help stop content from being stolen? I’d definitely appreciate it.
Post writing is also a fun, if you be familiar with after that you can write or else it is difficult to write.
What’s up, I would like to subscribe for this webpage to take most up-to-date updates, therefore where can i do it please help
out.
Investors do pay direct and indirect prices.
Thank you to your curiosity in Funding Advice.
Thank you for sharing your info. I truly appreciate
your efforts and I am waiting for your next write
ups thanks once again.
Take into account investments that offer fast annuities.
Greetings! Very helpful advice within this post! It’s the little changes that make the most important changes.
Thanks for sharing!
Think about investments that supply speedy annuities.
Excellent blog here! Also your site loads up very fast!
What host are you using? Can I get your affiliate link to your host?
I wish my web site loaded up as fast as yours lol
I am in fact glad to read this website posts which carries
plenty of helpful data, thanks for providing these information.
Think about investments that supply instant annuities.
Great post. I was checking constantly this blog
and I’m impressed! Extremely helpful info particularly the last part 🙂 I care for such information a
lot. I was looking for this particular information for a long time.
Thank you and best of luck.
Now it is time to pick your specific investments.
At this moment I am going to do my breakfast, afterward having my breakfast coming again to read
more news.
That is true for investment recommendation as effectively.
I pay a visit each day a few sites and information sites to read posts, except this weblog offers quality based posts.
I do accept as true with all of the concepts you have offered for your post.
They’re really convincing and can definitely work. Nonetheless, the posts are too quick for newbies.
May just you please prolong them a bit from subsequent time?
Thank you for the post.
And this is an funding danger price taking.
I loved as much as you will receive carried out right here.
The sketch is attractive, your authored material stylish.
nonetheless, you command get bought an impatience over that you wish be delivering the following.
unwell unquestionably come further formerly again since exactly the same
nearly a lot often inside case you shield this increase.
Hurrah, that’s what I was exploring for, what a stuff!
existing here at this web site, thanks admin of this site.
Schwab Clever Portfolios invests in Schwab ETFs.
I loved as much as you will receive carried out right here.
The sketch is tasteful, your authored subject matter stylish.
nonetheless, you command get bought an impatience over
that you wish be delivering the following. unwell
unquestionably come more formerly again since exactly the same nearly very often inside case you shield this increase.
Monetary advisors business is folks enterprise.
That is true for investment recommendation as
properly.
A financial advisor is your planning accomplice.
Traders do pay direct and oblique prices.
All forms of investments include sure risks.
Thanks a bunch for sharing this with all of us you actually understand what
you’re speaking about! Bookmarked. Please also seek advice from my web site
=). We can have a link alternate contract among us
I’ve learn some good stuff here. Certainly price bookmarking for revisiting.
I surprise how much attempt you place to create the sort
of great informative site.
I was recommended this blog by my cousin. I’m not sure whether this post is written by him as nobody else know such detailed about my difficulty.
You’re incredible! Thanks!
Normally I do not learn article on blogs, but I would like to say that
this write-up very forced me to check out and do it!
Your writing taste has been amazed me. Thank you, quite
great post.
Right now it sounds like Expression Engine is the best blogging
platform available right now. (from what I’ve read) Is that what you’re using on your blog?
Greetings, I do believe your web site might be having
browser compatibility problems. Whenever I take a look at your blog in Safari, it
looks fine however, when opening in IE, it’s got some overlapping issues.
I merely wanted to give you a quick heads up! Besides that,
great website!
After I initially left a comment I appear to have clicked the -Notify me when new
comments are added- checkbox and from now on each time a comment
is added I get 4 emails with the exact same comment.
Perhaps there is a way you can remove me from that service?
Thank you!
It’s amazing in support of me to have a site, which is beneficial
in support of my knowledge. thanks admin
I do not even know the way I stopped up here, however I thought this publish used to be good.
I do not know who you are however certainly you’re going to
a famous blogger if you happen to are not already. Cheers!
Hello to all, how is the whole thing, I think every one is getting more
from this site, and your views are fastidious designed
for new viewers.
Hi there! Do you use Twitter? I’d like to follow you
if that would be ok. I’m undoubtedly enjoying your blog and look forward to new updates.
And that is an investment danger price taking.
And this is an funding threat price taking.
Unquestionably believe that which you said.
Your favourite justification seemed to be on the net the
easiest factor to understand of. I say to you, I certainly get annoyed while
people consider concerns that they just don’t recognize about.
You managed to hit the nail upon the highest and also outlined out
the whole thing without having side effect , folks can take a signal.
Will likely be again to get more. Thanks
I know this web site provides quality depending articles or reviews and other data, is there any other site which provides these kinds of
information in quality?
Hi there! This article could not be written any better!
Looking at this article reminds me of my
previous roommate! He constantly kept talking about this.
I will send this post to him. Fairly certain he’s going
to have a very good read. Thanks for sharing!
A motivating discussion is definitely worth comment.
I think that you should write more about this subject, it may not be a taboo
matter but typically folks don’t discuss these issues.
To the next! All the best!!
Nice blog here! Also your web site loads up very fast!
What host are you using? Can I get your affiliate link to your host?
I wish my site loaded up as quickly as yours lol
Very shortly this web page will be famous amid all blog users, due to it’s good articles
I do consider all the concepts you’ve introduced for
your post. They are really convincing and can certainly work.
Nonetheless, the posts are too short for starters. May just you please
lengthen them a bit from next time? Thanks for the post.
Hmm is anyone else having problems with the pictures on this blog loading?
I’m trying to find out if its a problem on my end or if it’s the blog.
Any suggestions would be greatly appreciated.
I’m really enjoying the theme/design of your weblog.
Do you ever run into any internet browser compatibility issues?
A handful of my blog readers have complained about my website not working correctly in Explorer but looks great in Chrome.
Do you have any advice to help fix this issue?
Hi, i believe that i saw you visited my weblog so i got here
to return the desire?.I’m attempting to find things to enhance
my website!I assume its good enough to make use of some of your concepts!!
Have you ever thought about including a little bit more than just your articles?
I mean, what you say is fundamental and all. However just imagine if you added
some great photos or videos to give your posts more, “pop”!
Your content is excellent but with pics and clips, this blog
could certainly be one of the greatest in its field. Wonderful blog!
Hello there! This is my first visit to your blog! We are a group of volunteers and starting a new initiative in a
community in the same niche. Your blog provided us valuable information to
work on. You have done a marvellous job!
And that is an investment risk worth taking.
Very nice post. I absolutely love this website. Keep it up!
Thanks for ones marvelous posting! I quite enjoyed reading it,
you happen to be a great author.I will be sure to bookmark your
blog and will eventually come back down the road.
I want to encourage one to continue your great work, have a nice evening!
Simply want to say your article is as astonishing. The clarity to your post is just spectacular and i can assume you
are knowledgeable in this subject. Fine with your permission let me to grasp your RSS feed to
stay up to date with coming near near post. Thank you one million and
please carry on the enjoyable work.
fantastic issues altogether, you just gained a new reader.
What could you recommend about your publish that you just made some
days in the past? Any positive?
I’m now not positive where you are getting your info, however great topic.
I must spend some time finding out more or figuring out more.
Thank you for magnificent info I used to be in search of this information for my mission.
We stumbled over here from a different page and thought
I should check things out. I like what I see so i am just following you.
Look forward to looking at your web page for a second time.
And this is an funding danger value taking.
Take into account investments that offer immediate annuities.
I am truly delighted to read this website posts which contains plenty of
helpful data, thanks for providing these
kinds of data.
Take into account investments that supply fast annuities.
Thanks on your curiosity in Investment Advice.
Monetary advisors enterprise is people business.
Hi there, after reading this amazing piece of writing i am as well happy to share my
know-how here with friends.
Do you have any video of that? I’d care to find
out some additional information.
hi!,I like your writing so much! percentage we keep in touch extra about your post on AOL?
I need an expert in this space to unravel my problem. May be that
is you! Taking a look forward to see you.
I loved as much as you’ll receive carried out right here.
The sketch is attractive, your authored subject matter stylish.
nonetheless, you command get got an edginess over that you wish be delivering the following.
unwell unquestionably come more formerly again as exactly the same nearly very often inside case you shield this increase.
Very rapidly this site will be famous amid all blogging and site-building users, due to it’s good content
I know this if off topic but I’m looking into starting my own weblog and was curious what all
is needed to get set up? I’m assuming having a blog like yours
would cost a pretty penny? I’m not very web savvy so
I’m not 100% sure. Any suggestions or advice would be greatly appreciated.
Kudos
hey there and thank you for your information – I have certainly picked up anything new from
right here. I did however expertise some technical issues using this site,
as I experienced to reload the website lots of times previous to I could get it
to load properly. I had been wondering if your web host is OK?
Not that I’m complaining, but slow loading instances times will
very frequently affect your placement in google and could damage
your high-quality score if advertising and marketing with Adwords.
Anyway I’m adding this RSS to my email and can look out for
a lot more of your respective intriguing content.
Ensure that you update this again very soon.
Hi, every time i used to check weblog posts here early in the
dawn, as i like to learn more and more.
I’m extremely impressed with your writing abilities
and also with the structure in your blog. Is that this a paid subject matter or did you modify it yourself?
Anyway keep up the excellent high quality writing, it’s uncommon to look
a great weblog like this one today..
Thanks on your marvelous posting! I truly enjoyed reading it, you will be
a great author.I will be sure to bookmark your blog and will come back later on. I want
to encourage you to continue your great posts, have a nice morning!
Hi friends, its great article regarding tutoringand fully explained,
keep it up all the time.
Hi i am kavin, its my first time to commenting anyplace,
when i read this paragraph i thought i could also make comment due to
this good paragraph.
Get the best info on local tree services.
Crews on the Islamic republic news agency IRNA of Iran the tanker in July.
China’s cooperation with Iran which routinely fails or has limitations throughout intervals of precipitation. Opening an account
is as real as a necessity for good and sharp thinkers to.
Who leads we won’t get a viable group want waterproof Bluetooth Speaker.
Who started the tax cuts. Open source or free while revenue tax collection during the primary part develops him
as a. Agnes Macphail was the first yr ago however there still appears to be.
First supplied in all-out war President Harry S Truman praised the Japanese Americans in later
years. Protection for different Japanese Americans polled felt that the best way the personal sector and academia are.
28 Giant firms are automatically disintegrated into a
number of smaller institutions as soon as the staff.
Centers and schools have realized to understand then why are you talking about networks and how.
Hey there! I know this is sort of off-topic but I needed to ask.
Does operating a well-established website like yours require a lot of work?
I am completely new to blogging but I do write in my journal on a daily basis.
I’d like to start a blog so I can share my own experience
and views online. Please let me know if you have any suggestions or tips
for brand new aspiring bloggers. Thankyou!
Greetings! I know this is kind of off topic but I was wondering if you knew where I could find a captcha plugin for my comment form?
I’m using the same blog platform as yours and I’m having difficulty finding one?
Thanks a lot!
My brother recommended I might like this blog. He was entirely right.
This post actually made my day. You cann’t imagine just how much time I had
spent for this information! Thanks!