Cuando un amigo me dijo que mi fibromialgia está “todo en la mente”

Ayer estuve hablando con un amigo y su esposo sobre la fibromialgia y el dolor en el que había estado mientras estaba mal. El marido se volvió y me dijo que la profesión médica está probando un nuevo procedimiento para la fibromialgia. ¡Naturalmente, pregunté qué era y me marearon! Al parecer, arrojar a alguien a un baño de agua helada es suficiente para reiniciar las conexiones en el cerebro, de modo que los síntomas de fibro se reducen y se eliminan.

Luego procedió a decirme qué es la fibromialgia “todo en tu cabeza”. Es una condición psicológica. El dolor engendra dolor: cuanto más piensas en tu dolor, más duele. Se desencadena por la depresión y la ansiedad “.

Bueno, ¡puedes imaginar mi frustración! Estaba tan enojado con él que le conté lo que sabía sobre fibro (¡como lo tengo!) Y dije que no es una afección psicológica. Hay varias causas que incluyen dolor de fallas y receptores nerviosos, entre otras cosas. Sé que no es “todo en mi cabeza”. Tenía un umbral de dolor muy alto y me tomó mucho para derribarme hace 10 años. Ahora, en un mal día, probablemente podrías derribarme con una pluma. He tenido depresión por 22 años, fibro por siete y ansiedad por cuatro. La fibromialgia causó mi ansiedad. Estaba tan enérgico y en forma, y ​​de repente sentí dolor, no podía explicarlo, no podía salir, perdí amigos. Me pasó factura. Siempre pensé que el fibro era una enfermedad inventada; no parecía plausible hasta que me diagnosticaron. Entonces tuvo sentido.

Esta no es la primera vez que alguien cuestiona mi fibromialgia. Un amigo me envió un mensaje el verano pasado y me preguntó si tenía un tatuaje en el pie. Pregunta aleatoria, pero le devolví el mensaje y le dije que no, ¿por qué? La respuesta fue increíble. Ella me dijo que cuatro personas que conocía que tenían fibromialgia también tenían un tatuaje en el pie. De Verdad? ¿Estás realmente bromeando? Un tatuaje en su pie podría ser la causa de la fibromialgia? ¡Como si! Me reí tanto, ¡no podía creer lo que estaba escuchando!

Sé que la fibromialgia es una enfermedad compleja y es necesario investigar mucho más sobre sus causas, pero decirle a alguien que su enfermedad no es real, está en su cabeza o que es causada por un tatuaje que hace que esa persona se cuestione a sí misma. . Cualquier persona que tenga una afección de dolor crónico sabe cuánto tiempo puede tardar en aceptar que hay algo mal contigo que te afectará por el resto de tu vida. Para alguien más poner dudas en tu cabeza, especialmente un amigo, simplemente hace las cosas más difíciles de aceptar.

Tengo que decir que tengo mucha suerte de que todavía tenga un puñado de amigos con los que veo o hablo regularmente que estuvieron allí antes de que me dijeran que tenía varias afecciones de salud. Todos los demás perdí por dejarlos en el último minuto, no poder salir o porque pensaban que estaba fingiendo. Me han llamado un “truco de beneficios”, “flojo” y un “fraude”. He trabajado desde que tenía 13 años (tengo 40 años) y tristemente tuve que renunciar a la universidad y trabajar debido a la salud de mi hijo. cuando tenía 33 años. He intentado trabajos desde entonces e incluso he empezado a trabajar desde casa, pero cuanto más me esforzaba por hacerlo bien, mayor era el número de víctimas que sufría mi cuerpo.

Odio estar en casa. Daría cualquier cosa por volver al trabajo. Para mezclar con adultos y tener conversaciones adultas. Pero por el momento, no puedo. Problemas con los discos en mi cuello significan que mis brazos y mis manos están muy afectados. No puedo levantar, no puedo cargar, puedo sostener una pequeña taza de café y mucho menos algo más. ¡Incluso tuve que renunciar a mi negocio de maquillaje porque no puedo sostener un pincel de maquillaje lo suficiente como para ponerlo!

Lo único que sí sé es que hago lo mejor para pasar cada día haciendo lo que amo, escribiendo (bueno, escribiendo, ya que es un poco más fácil). Pero incluso eso lleva tiempo. Algunos días son más fáciles que otros, dependiendo de si mi cerebro está funcionando a su capacidad máxima o si está envuelto en niebla. ¿Has intentado escribir cuando no puedes encontrar las palabras? ¡No es fácil!

También sé que no estoy solo en lo que estoy pasando y es probable que muchos de ustedes sientan lo mismo que yo. Solo sé que las personas en tu vida importan, y que aquellos que no lo son, no lo hacen.

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