La fatigue de la fibromyalgie n’est pas une simple fatigue

Selon une récente publication dans la revue BMC – Troubles musculo-squelettiques, la fatigue ressentie lors de la fibromyalgie dépasse la «fatigue normale».

Les chercheurs ont voulu comprendre plus en détail la fatigue qui se produit dans la fibromyalgie et son impact sur nos vies.

Après avoir mené une série d’entretiens, ils ont analysé les résultats et développé un modèle conceptuel de fatigue de la fibromyalgie, qui comprend les éléments suivants:

Un sentiment de fatigue écrasant

Cela ne va pas mieux avec le repos ou le sommeil

Ce n’est pas proportionnel à l’effort qui est fait dans la journée

Associé à une sensation de faiblesse et de lourdeur

Interférer avec la motivation et le désir de mener des activités

Difficile d’effectuer des tâches prolongées

Cela nous empêche de nous concentrer, de penser clairement et de nous souvenir des choses.

Pour ceux d’entre nous qui vivent avec ce type de fatigue, ce n’est pas nouveau. Cependant, il semble que ce modèle constitue un bon pas en avant. Le monde médical ne comprend pas bien les différents types de fatigue et a besoin d’un langage approprié pour les décrire.

Tout le monde se sent fatigué à un moment donné et la fatigue est l’une des principales plaintes des médecins. Ce modèle fournit une définition de la fatigue liée à la fibromyalgie, ce qui aide à le distinguer des autres types de fatigue.

Beaucoup d’entre nous souffrant de fibromyalgie, nous avons connu tous les niveaux de fatigue de ce nouveau modèle, dans différentes variantes, et presque certainement nous avons tous l’expérience de médecins qui souvent ne comprennent pas la faiblesse que nous ressentons en raison de la fatigue.

Cela peut être un symptôme effrayant, dans la mesure où parfois il nous fait peur de marcher par peur de tomber pour sentir les jambes si faibles qu’il semble qu’ils ne pourraient pas nous soutenir. Et comme cette faiblesse va et vient, parfois, cela ne semble même pas avoir beaucoup de sens.

Avec un peu de chance, ce nouveau modèle pourrait nous aider et nos médecins comprennent mieux la fatigue liée à la fibromyalgie.

Dites-nous ce que vous pensez de ce nouveau modèle. Il vous semble que cela ressemble à la fatigue que vous ressentez.

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