5 choses à ne pas dire à une personne atteinte de fibromyalgie

Vivre avec la fibromyalgie est extrêmement difficile, car des millions de patients à travers le monde peuvent en témoigner. Le fait que la douleur physique et émotionnelle ne soit pas visible par les autres peut souvent la rendre encore plus difficile. La fibromyalgie est connue comme une “maladie invisible” car ses effets secondaires douloureux et souvent débilitants ne sont souvent pas évidents pour les autres.

Une personne atteinte de fibromyalgie peut sembler parfaitement bien à l’extérieur, mais souffrir d’une douleur insupportable à l’intérieur. Comprendre ce fait est important pour ceux qui cherchent à soutenir un ami ou un membre de la famille d’une personne atteinte de fibromyalgie.

Bien qu’il soit souvent difficile de trouver les mots pour apporter un soutien et de l’espoir à ceux qui souffrent de fibromyalgie, voici une liste de 5 éléments qui ne signifie absolument pas que quelqu’un souffre de fibromyalgie. Nous croyons que nous ne disons rien de mieux qu’une de ces 5 choses.

# 1 “Vous ne semblez pas malade”

Ce commentaire démontre un manque total de compréhension des maladies invisibles. Toutes les maladies graves ne sont pas accompagnées de symptômes évidents et apparents, par exemple en fauteuil roulant. Les personnes atteintes de fibromyalgie ont souvent appris des mécanismes d’adaptation et peuvent utiliser chaque jour leur énergie limitée pour essayer de paraître plus normale aux autres. Mais la douleur est toujours là. Et même en faisant allusion à quelqu’un avec la fibromyalgie, ils prétendent qu’ils risquent de mettre leur relation avec eux en danger.

# 2 “Ça doit être agréable de ne pas avoir à travailler”

Euh, non … ce n’est pas La grande majorité de ceux qui souffrent de fibromyalgie feraient tout pour retrouver leur indépendance et la capacité de travailler à temps plein.

La suggestion que ne pas être capable de travailler était un choix ou qu’ils sont simplement paresseux est incroyablement insultante.

# 3 “J’ai entendu que la fibromyalgie n’est pas une vraie maladie”

Vous avez déjà entendu mal. La cause de la fibromyalgie est toujours à l’étude et le manque de compréhension historique est à la traîne par rapport aux autres problèmes de santé. Mais cela ne signifie pas qu’il est moins réel pour près de 6 millions de personnes atteintes de fibromyalgie aux États-Unis seulement.

La fibromyalgie a été officiellement reconnue comme une véritable maladie par l’industrie de la santé aux États-Unis à la fin de l’année dernière, quand elle a reçu son propre code de diagnostic et a été reconnue pendant des années par l’Administration de la FDA Social

# 4 “Il faut juste faire plus d’exercice et être plus actif”

Si seulement c’était si facile. Le fait est que de nombreuses personnes souffrant de fibromyalgie repoussent les limites de leurs capacités physiques en se levant et en prenant une douche tous les jours.

Beaucoup trouvent du soulagement dans le yoga ou d’autres exercices doux tels que l’aquagym. Mais souvent, le type d’effort associé à l’exercice n’est pas possible.

# 5 “Tout est dans ta tête”

Nous avons sauvé le pire pour la fin. En fait non, ce n’est pas tout dans ma tête. La douleur et la fatigue se retrouvent dans tout le corps et j’ai parfois l’impression que même mes cheveux me font mal! Oui, c’est tellement grave et le fait de ne pas voir ma douleur ne signifie pas que ce n’est pas une condition physique. Le stress, l’anxiété et la dépression peuvent aggraver tous les symptômes de la douleur chronique, mais ne causent généralement pas de douleur.

Si vous êtes allé si loin, il est probable que vous soyez un patient souffrant de fibromyalgie ou quelqu’un qui veut vraiment comprendre la fibromyalgie pour soutenir quelqu’un qu’il aime. Doux câlins à vous si vous êtes le premier et merci beaucoup si vous êtes le dernier.


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