21 síntomas que los niños con fibromialgia habían cepillado como ‘dolores de crecimiento’

Cuando era niño, me quedaba despierto llorando por la noche porque me dolían tanto las rodillas que no podía soportarlo, y los músculos de mis piernas se sentían tan dolorosamente apretados que incluso apoyarlos en mis suaves sábanas era insoportable. Pero después de visitar a innumerables médicos y soportar meses de pruebas, me dijeron que mis piernas y rodillas estaban en perfecto estado. “Probablemente solo sean dolores de crecimiento”, dirían los médicos. “No hay nada de qué preocuparse”.

Si tiene fibromialgia, esto puede sonar muy familiar. Muchos de los que tienen fibro comienzan a experimentar signos y síntomas desde la niñez, pero la falta de conciencia sobre cómo el fibro y otras afecciones crónicas pueden afectar a los niños hace que muchos médicos se quiten el dolor y los síntomas que pueda experimentar un niño. Con demasiada frecuencia, lleva años (o incluso décadas) antes de encontrar un médico que realmente escuche y pueda hacer un diagnóstico preciso.

La comunidad médica necesita dejar de descartar las quejas de los niños y atribuir sus síntomas a simples “dolores de crecimiento”. Por lo tanto, para comprender mejor qué signos iniciales de fibromialgia pueden tener los niños, le pedimos a nuestra comunidad Mighty que comparta los síntomas de fibro que experimentaron. niños que resultaron ser algo más que “dolores de crecimiento”. Estos síntomas deben tomarse en serio.

Esto es lo que nuestra comunidad compartió con nosotros:

1. “Dolor severo y calambres después de la Educación Física Siempre me dijeron ‘todos duelen después del ejercicio’, así que crecí pensando que todos se sentían de la misma manera que yo” – Kai M.

2. “Experimenté una fatiga extrema para mi edad. Eso fue junto con dolor severo en mi cuerpo, piel y huesos. También era extremadamente sensible al dolor que normalmente no molestaría a una persona sana. Cuando los otros niños de mi clase jugaban bien en Educación Física, casi no pude porque me dolían las piernas como si tuvieran hematomas en toda su superficie. Me dolían las manos al azar y sentí como si me hubieran dado un puñetazo en los brazos. “- Mikki I.

3. “Los puntos de presión fibro. Siempre tuve dolor cuando la gente presionó sobre eso. “- Brittany H.

4. “Piernas inquietas que me hicieron sentir incómodo durante toda la clase, dolor que me mantenía despierto por las noches, sensibilidad a la luz y al sonido que era insoportable y cansancio que me tenía detrás de mis amigos por razones ‘desconocidas'”. Marissa E.

5. “El sol era tan brillante que no podía abrir mis ojos. Incluso en el interior “. – Ekka N.

6. “Mis tobillos siempre parecían doler. Practicaba deportes y me encantaba el concepto, pero la tensión física no amaba mis tobillos jóvenes. Siempre fue ‘¡eres una anciana, Lex!’ Y todos bromeamos acerca de que son dolores de crecimiento. La depresión también apareció a una edad muy temprana. Una vez que me diagnosticaron a los 17, todo se unió. Tengo 19 años y sigo teniendo “eres demasiado joven para lastimar esto tan mal”. – Alexis Mae G.

7. “Constante ardor y sensación de roedura en mis piernas, y en ocasiones, mis brazos también” – Kyndra E.

8. “Aparte de los síntomas fibro estándar, los grandes signos para mí fueron: sensibilidad inusual a los materiales de la ropa, los cambios en el clima y la debilidad relacionados con el esfuerzo físico. Me cuesta mucho sentarme con las piernas cruzadas en el suelo (lo que se requería en las escuelas inferiores) y jugar afuera con los otros niños “. – Georgia D.

9. “¡Intolerancia al calor! Siempre me pongo furioso si me pongo caliente. “- Chelsea M.

10. “Fatiga. Tanta fatiga y no entendería por qué. Me daban dolores en los dedos y las piernas y sentía que los torcía, pero ni siquiera me movía. Mis manos y mis pies se hincharían y serían dolorosos y no sabría por qué. “- Samantha M.

11. “Dolor en las piernas. La gente me decía que eran espinilleras de porristas. Solo asentí y acepté. Pero en el fondo, simplemente sabía que era otra cosa. “- Christina MP

12. “No poder dormir con el peso de la rodilla derecha izquierda, sintiendo que mi cabeza era demasiado pesada para mi cuello”. – Gwen K.

13. “Una sensación en algún lugar entre un calambre en el pie y un tirón en la planta de mis pies. Mi cadera solía encerrar o estallar, lo cual se descartaba como dolores de crecimiento o “una de esas cosas”. Es solo desde que se diagnostica a los 30 que estas cosas están empezando a tener sentido. “- Sophie R.

14. “Tenía muchos dolores de garganta. Más tarde me sacaron las amígdalas. También me diagnosticaron Epstein Barr. “- Paulette N.

15. “Fatiga, dolor de estómago que se atribuyó a las hormonas o al síndrome del intestino irritable, dolores musculares y articulares. Siempre atrapando a los insectos y haciéndolos peores y más largos que los que me rodean. Constantemente me preguntaron si estaba deprimido por mi médico cuando estaba enfermo y cansado de sentirme siempre enfermo y cansado “. – Julie M.

16. “Me tendía sobre mi espalda, y de repente no podía sentarme o moverme. Me dolía toda la parte inferior de la espalda, me asustaba … “- Amber Y.

17. “Durante toda mi adolescencia, me dolía tanto el dolor de espalda que me acurrucaba en la posición fetal, todo se volvía blanco porque el dolor era muy fuerte y ni siquiera podía pedir ayuda”. Jenny H.

18. “Tuve calambres musculares extremos en la parte inferior de mis piernas. Lo atribuí a mis lecciones de ballet, pero después de 12 años de baile, era algo que nunca había experimentado antes y debería haber sabido que algo andaba mal. Mi médico de familia me dio relajantes musculares y me dijo que estirara más “. – Elyse B.

19. “Fatiga. Fue mucho peor una vez que comencé mi período. Me perdí un montón de escuela durante esos tiempos “. – Vonda M.

20. “Una apretada sensación de apretamiento alrededor de mis extremidades que me haría sentir mareado y como si fuera a desmayarme. Los doctores dijeron que solo eran dolores de crecimiento y yo estaba siendo dramático “. – Emma F.

21. “Cuando era adolescente, se me exigía que tomara el gimnasio cuando estaba en la escuela secundaria, pero el simple hecho de saltar obstáculos o correr con facilidad alrededor de una pista podía ocasionar cuádriceps severamente desgarrados, isquiotibiales y espinillas debilitantes. Fue frustrante Embarazoso. Peor aún era que la mayoría de los instructores no creían que yo estaba sufriendo y creía que estaba fingiendo. Me gritaron y me castigaron por tratar de ‘comadreja’ fuera de la clase. Mirando hacia atrás con lo que sé ahora, me da un nivel de paz para finalmente entender. Para finalmente saber que no era todo en mi cabeza “. – Natalie H.

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