Pourquoi la fibromyalgie a officiellement déclaré une déficience à long terme. Sais-tu?

fibromyalgie

Avez-vous déjà entendu parler de la fibromyalgie? Pendant longtemps, cette condition a été négligé par le monde médical depuis sa cause est inconnue et donc difficile à diagnostiquer. Cependant, en écartant ce sujet, beaucoup de gens vivent avec la douleur chronique et d’autres symptômes sans aide pharmaceutique; après tout, même leurs médecins ne peuvent pas savoir. Pourtant, cette maladie touche environ 10 millions de personnes aux États-Unis et environ 3-6% de la population mondiale. (1) C’est un beaucoup de gens souffrant d’une condition médicale non reconnue. Toutefois, un pays a décidé de changer cela.

Fibromyalgie en Irlande du Nord

En Irlande du Nord, la fibromyalgie est plus reconnue comme une condition à long terme par des professionnels de la santé, après trois années de plaintes émises au patient et Conseil des clients en Irlande du Nord. membres dévoués interrogés souffrant, ont fait pression sur les politiciens et les professionnels de la santé pour mettre en place des services médicaux dans les fiducies de santé.

 

Une victime, Martina Marks, remarque qu’il est un soulagement pour être pris au sérieux. « Je l’ai vécu avec la douleur depuis 1997. Parfois, il peut être chronique, avec des douleurs dans mes muscles et les articulations », dit-elle. Elle n’a pas été diagnostiqué pendant 10 ans.

Louise Skelly, directeur des opérations au patient et au Conseil client, dit: « Ce que nous sommes surpris est combien de patients sont venus en avant, qui veulent partager leurs histoires. Ils se sentaient très isolés et très seul et ce que nous avons découvert est que les cliniciens ont également trouvé ce un domaine difficile à travailler dans un environnement qu’ils ont accueilli le partage des connaissances et de l’information « .

 

Les symptômes de la fibromyalgie

En vivant avec la fibromyalgie, Marks explique: « Souvent, la douleur est insupportable et vous devez faire face à un trouble du sommeil, des maux de tête et tout simplement pas être en mesure de faire face à la vie de tous les jours. » (2)

En plus de la douleur et la tendresse dans tout le corps, d’autres symptômes de la fibromyalgie peuvent inclure:

 

  • Des maux de tête
  • Troubles du sommeil
  • raideur matinale
  • des troubles cognitifs et de mémoire
  • IBS
  • crampes menstruelles douloureuses
  • Engourdissements ou des picotements dans les mains ou les pieds
  • Sensibilité à la température
  • Syndrome de jambes agitées
  • Sensibilité à des bruits forts ou lumières (3)

 

Fibromyalgie peut rendre la vie quotidienne d’une lutte, arrêtant parfois un patient d’être en mesure de bien fonctionner à un emploi si les symptômes ne sont pas traités. Souvent, être hors du travail peut conduire à l’isolement, la solitude et la dépression.

 

« Il était important que je suis un diagnostic, parce que j’avais été en passant par différents traitements, voir différents médecins et rien ne me donnait un soulagement », dit Marks. « Certains d’entre eux ne comprennent pas la maladie et je pense que nous avons besoin d’une campagne de sensibilisation pour la profession médicale à comprendre la variété des symptômes avec la fibromyalgie et la gravité de celui-ci. »

Mise en Fibromyalgie reconnue comme une maladie à long terme

La montée de la conscience de la fibromyalgie à l’avant-garde en Irlande du Nord apporte cette maladie à guérir et à améliorer la vie des personnes qui en souffrent. Sans cette éducation, les professionnels médicaux ne seraient pas en mesure de diagnostiquer et de traiter correctement ces patients que ce soit par des médicaments, des exercices ou des thérapies alternatives.

 

Si vous vivez dans un pays où la fibromyalgie n’est pas reconnu comme une maladie à long terme, cela peut vouloir dire qu’il existe d’innombrables citoyens qui vivent dans la douleur chronique sans la moindre idée de la façon de le traiter. Heureusement, il existe plusieurs façons de propager la conscience, y compris:

 

  • faits, l’affichage des statistiques et des histoires de vie sur la fibromyalgie sur les médias sociaux
  • En participant à des événements locaux de sensibilisation à la fibromyalgie
  • Hébergement de votre propre événement pour amasser des fonds pour la recherche
  • Faire un don à la fibromyalgie organisation ou de la charité
  • Hébergement d’une page Facebook pour les personnes dans votre région avec la fibromyalgie
  • Pour contacter votre sénateur ou membre du Congrès au sujet de la recherche de financement supplémentaire et le traitement
  • Impression des affiches de soutien et de les accrocher au travail / école / collège
  • Portez un ruban pourpre de fibromyalgie et d’expliquer la maladie aux gens qui demandent pourquoi vous le porter (4)

 

Pour les personnes atteintes ou sympathisants de la fibromyalgie, c’est un soulagement de savoir que l’Irlande du Nord prend enfin position en reconnaissant comme un problème à long terme. Il faut espérer que cette déclaration se propage à d’autres pays et donner aux patients non diagnostiqués les traitements qu’ils méritent. En attendant, la sensibilisation et l’éducation nous sur cette maladie apportera les personnes souffrant plus de soulagement de la douleur chronique.

 

Si vous vous débattez avec la fibromyalgie, consultez ces articles qui donnent des méthodes alternatives pour surmonter la maladie: 8 Traitements naturels pour la fibromyalgie soulagement de la douleur et les 4 les plus fréquentes causes de la fibromyalgie que personne ne sait

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