FIBROMIALGIA: CÓMO VIVIR CON UNA ENFERMEDAD DEL DOLOR

Uno de los mayores desafíos de dolor crónico es encontrar la manera de vivir con los demás. A veces parece mejor y más cómodo para quedarse en casa, donde podrá relajarse, cuidar de nuestra incomodidad, hacer las cosas a nuestra discreción y controlar nuestro entorno.
Esto nos libera de tener que explicar, disculparse, al parecer extraño, o se siente culpable por lo que no podemos lograr. para imponer nuestro cuerpo torturado se evita.
Esta fantasía, sin embargo, tiene importantes defectos! Lo de conseguir una vida! Por lo general, implica vivo una variedad de tareas, experiencias sociales y los viajes que nos hacen salir de nuestro cómodo nido que estamos tratando de construir, y nos puso en contacto con el mundo exterior. Lo que significaría que dejar todo? Sin enfermedad crónica, muy pocos que podríamos considerar una vida de ermitaño atractivo, incluso marginal. Ahora, somos atraídos a encontrar maneras de mantener nuestras relaciones – preciosos – sin molestias indebidas.
En un apretón de manos a un nuevo compañero de trabajo o un largo viaje para visitar a la familia, estamos en lucha constante para reducir el estrés físico sin que los demás ennnuyer o atraer la atención sobre nuestra enfermedad. Estos factores son importantes en las interacciones con nuestro conocimiento, así como con los intercambios diarios con nuestros seres queridos. Encontrar maneras de expresar nuestras necesidades especiales requieren negociaciones concretas de cada situación.
La mayoría de la gente quiere ser cuidado por ellos cuando se sienten mal. Las personas con problemas crónicos, sin embargo, siempre parecen necesitar. Esto puede ser difícil para todos los involucrados. En este artículo se aborda cómo diferenciar entre jugar el papel de un mártir o una bruja – ese es el reto.
 
Eliminar lo que no es importante
Primera regla: eliminar cualquier actividad que no es importante para usted y que no requiere la participación del usuario. A pesar de que estamos enfermos “todo el tiempo”, no hay nada de malo en decir que no a invitaciones por razones de salud. Un “Gracias por la invitación, pero no me siento lo suficientemente bueno” debería ser suficiente. Las personas cancellent por muchas razones. el dolor y la fatiga excesiva
son razones suficientes!
Tenemos suficiente dolor sin añadir en el tratamiento de personas o actividades irritantes? Reducir el contacto con las personas que se drenan en lugar de agregar diversión a su vida. Piense en usted como un brahmán: usar su preciosa energía sólo para tareas importantes. Mantenga sus prioridades. Cuando sea posible, eliminar la variedad de actividades “debería …” y reemplazar con la variedad “Quiero …” A menudo es mejor que pagar a alguien para tareas pesadas, tales como el servicio de limpieza y mantenimiento en el mercado, para ser libres a las actividades más satisfactorias.
Limitar su participación
Cuando no se puede decir “no”, limitar el tiempo dedicado a las tareas extenuantes. Si tiene que asistir a reuniones sociales o en conexión con su trabajo, hacer lo que llegas tarde y salir temprano. El evento será más agradable, y nadie se dará cuenta.
Llegar preparada (e)
Para las actividades choisssons que hacemos, hay maneras de hacer que sea menos estresante y más agradable. Siempre será un buen explorador. Llene su coche o maleta con elementos de confort. medicación adicional, comprime para el calor, almohadas, ropa interior de invierno, bolas o tapones para los oídos y gafas de sol, todos los cuales pueden ser salvavidas reales. Una vez que determine lo que funciona para usted, mantener una lista listos para ver cuando se está preparando para salir. Piense en las condiciones del lugar que le espera. ¿Cuál es la temperatura? Están los asientos cómodos? ¿Cómo es la iluminación? Llamar antes de ir a informarle sobre el medio ambiente y si es necesario tomar medidas.
comunicar con claridad
¿Por qué es tan difícil? Debemos expresar nuestras necesidades a los demás de una manera sencilla, directa y educado. A menudo, las personas que están cerca de nosotros quieren ayudar pero no saben qué hacer. Sin embargo, pedir ayuda no es natural. Al preguntar, concedemos la debilidad y la dependencia. A continuación, el malestar físico no es el único factor en la decisión de buscar ayuda o tratamiento especial. Tal como lo veo, no sólo sufrimos de malestar físico, pero nos afligimos por las cosas que no podemos hacer, y tenemos miedo de ser diferente y atraer la atención porque no podemos continuar con otra .
Por estas razones, hay que ponderar la importancia de pedir ayuda. En algunas circunstancias, “que pasar por normales” resulta en cierto grado de dolor. Esto depende de cosas como nuestros planes para el resto del día, la privacidad de los que están con nosotros, ellos y el conocimiento de nuestra condición, y nuestra estimación del impacto.
Póngase en contacto frente a las necesidades
Muchas personas tienen fuertes preferencias. Con nosotros, sin embargo, nuestros “preferencias” son a menudo las “necesidades” que, si no satisfecha, nos cuestan caro. Dolor o cansancio repentinamente disparada es alarmante y, a veces bastante embarazoso para hacernos pensar que habría sido mejor quedarse en casa.
Debido a que muchos aspectos de la interacción diaria crea dificultades adicionales para nosotros, es totalmente razonable para tratar de influir en el entorno de acomodar mejor. Cuando se trata de dolor, no sólo tenemos que tratar con “preferencias”. Probablemente hubiéramos compartido las preferencias de los demás (para dar largos paseos, caminatas convertibles, etc …) si nuestra condición física no había cambiado estos acontecimientos alegres para el sufrimiento.
Identificación de nuestras necesidades
En un nivel práctico, sabe lo que necesita – el tipo de silla, iluminación, temperatura, tiempos de descanso, los niveles de ruido – a ser la más cómoda. Esto hace las cosas más fáciles para usted y los que quieren darle una mano. A pesar de la variedad de cosas que afectan a llegar a ser intuitiva para nosotros, parecen más bien una extraña variedad de factores a los demás. Ayúdelos a ser muy claro acerca de lo que es el más difícil y más eficaz para usted. Ser simple: “Tengo un montón de problemas con _____, sería estupendo si pudiera _____. ¿Va a ser un problema? “
On-identificación (demasiado simpatía)
A veces nuestros seres queridos tienen la mayor dificultad que enfrentan nuestros discapacidades. Nuestro sufrimiento es peor en los que nos son queridos. Para ellos, las dificultades son de ellos, a veces causando reacciones psicosomáticas o comprensión. Con ganas de compartir nuestras experiencias con ellos, pensar en el efecto que podría tener. ¿Cómo reaccionaría usted si su pareja o hijo en constante dolor? Como queremos un respiro de nuestros síntomas, nuestra familia y amigos no tienen que pensar todo el tiempo. Esto no quiere decir que debemos ser mártires; su objetivo debe ser la creación de un equilibrio entre compartir nuestros problemas y pensar en otra cosa. Así que asegúrese de introducir diferentes temas de conversación de su enfermedad. La distracción puede ser muy ventajosa.
El rechazo
Algunas personas cercanas a nosotros pueden ser reacios a ofrecer ayuda, ya que no quieren aceptar que tenemos un “problema real”. Algunos pueden ser escépticos porque no hay indicadores “objetivos” de nuestra enfermedad; la comunidad médica es algo incrédulo. Para ellos, la educación es la clave. La literatura está desbordando en varios aspectos de los síntomas de la fibromialgia, las estrategias para combatirlo, y hay ayuda para las familias y seres queridos.
Debido a la amplia variedad de síntomas y nuestras necesidades, un enfoque consiste en admitir que nuestra condición es bastante extraño. Mediante la aplicación, se puede decir, por ejemplo, “Sé que suena extraño, pero el sonido de su coche con la ventana abajo a mí mismo debido a la tensión en los músculos que me causa un dolor insoportable.”
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