PARA LA PERSONA QUE PIENSA QUE MI FIBROMIALGIA NO ES REAL

Tal vez usted no sabe nada sobre la fibromialgia y por lo tanto es ignorante de los hechos. Tal vez usted ha oído hablar de la fibromialgia, pero se cree que es una condición nerviosa que es “todo en la cabeza.” O usted reconoce que podría haber algo “malo” en mí, pero usted piensa que exagero mi “condición.” Estoy escribiendo esta carta porque quiero aclarar cualquier suposiciones incorrectas que tenga en cuenta FMS (síndrome de fibromialgia) y le dirá cómo sus supuestos me hacen sentir.

Cuando usted cree que esto no es una condición “real” y los que dicen tienen FMS van en busca de atención:

Se lo aseguro, yo y el estimado del 3 al 6 por ciento de la población del mundo con esta condición (de acuerdo con la Asociación Nacional de Fibromialgia) no se despertó una mañana y decidir, “Sabes, me siento un poco descuidados emocionalmente hoy . Creo que voy a hablar de mi cerebro en venir para arriba con una enfermedad falsa para que la gente se fije en mí. Luego hablaremos colectivamente a nosotros mismos a tener dolor en las articulaciones y dolores punzantes que viajan alrededor de nuestros cuerpos y mentes, fatiga adormecedor, puntos que nos hacen querer gritar cuando se toca y la piel que a veces se siente quemada por el sol durante días “.

Cuando usted sugiere todo lo que necesito es el ejercicio, una dieta mejor o un hobby:

Bueno, solía viajar por todo arriba y abajo de las calles y colinas por mi casa. Es decir, hasta que apenas podía caminar durante días después. El ejercicio no impidió que mis FMS crecientes ataques de asma, por lo que más ejercicio sin duda no será la cura.

Y en lo que respecta a la dieta, confía en mí, soy consciente de que he puesto en un extra de 30 libras en los últimos años ya que la fibromialgia realmente dio una patada en. Yo soy el pegado dentro de este cuerpo 24/7, deseando y esperando desesperadamente cosas cambiar. Antes de juzgar con demasiada dureza, mi enfermedad es un trastorno del sistema nervioso central. “Central”, que significa que a partir de la cual todo lo demás se ramifica a partir.

Afecta a casi todos los aspectos de mi persona. Mi cuerpo no metaboliza y perder peso como la de una persona sana lo hace. De hecho, yo trabajo duro para mantener el peso estoy. Te apuesto dólares a los buñuelos (sin doble sentido), que como mucho menos de lo que haces y consume alimentos más saludables. Camina una milla en mis zapatos, mi amigo.

Cuando se piensa que sueno llorón O como un hipocondríaco:
Rara vez se abren a la gente acerca de mi vida diaria con la fibromialgia. Te aseguro, que estoy compartiendo una fracción de lo que realmente se siente tener FMS. Sé que la gente pueden quemarse a cabo por la negatividad no intencional aquellos de nosotros con una enfermedad crónica puede experimentar.

Esto es por lo que sólo le cuento un poquito, y más a menudo que no, digo absolutamente nada en absoluto. Usted no está allí para escuchar el grito de dolor cuando mis articulaciones agarran y me cae la taza de café llena todo el suelo de la cocina. Usted no me ve fijamente tratando de controlar mis rasgos faciales por lo que el dolor que siento al subir o bajar las escaleras en el teatro no es evidente para cualquiera que busque. No se dan cuenta los tiempos en que la sangre en las venas ha sido reemplazado con cemento, pero se levanta y continúa con la rutina del día de todos modos.

Cuando se quiere mostrar amor y apoyo a las personas con fibromialgia o cualquier enfermedad crónica “invisible”:

No estamos buscando para que nadie se sienta lástima por nosotros. Lo que realmente queremos más que nada es la validación. Sólo para saber que alguien cree que nuestra enfermedad es real. Que no están fingiendo o exagerando los síntomas. Sabemos que “verse bien” en el exterior, pero si usted podría dar vuelta nuestra adentro hacia afuera, se podría ver la verdadera cara de nuestra condición.
apoyarnos a través de su paciencia y presencia. Recuerda que esto no es elegido nuestra vida, pero la vida que elegimos para perseverar y prosperar en, independientemente de la trayectoria inesperada ahora tenemos que caminar sobre denominada “enfermedad crónica”.

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