la théorie de la cuillère explique sa douleur Fibromyalgie

Si vous avez vécu avec la fibromyalgie pendant un certain temps, vous avez probablement entendu parler de tous les petits, terme obscur liés à la maladie. Vous avez probablement tout discuté avec des personnes fibro des groupes de soutien ou des babillards électroniques, de fusées éclairantes fibro à fibro guerriers de brouillard fibro. Mais voici un qui ne connaissent peut-être. Avez-vous déjà entendu parler de la cuillère de la théorie fibromyalgie?

Voir fondamentalement l’idée derrière la théorie de la cuillère est que la fibromyalgie est une bonne façon d’expliquer ce que la douleur constante est comme quelqu’un qui n’a pas une condition de douleur chronique. Mais le plus intéressant est qu’il fait très bien.

Et c’est ce qui le rend si fascinant. Après tout, ce que la personne avec la fibromyalgie n’a pas eu du mal à expliquer comment faire face à une telle horrible maladie est comme une famille ou des amis qui ne peuvent tout simplement pas l’air de comprendre qu’ils ont rien à comparer. Mais la théorie de la cuillère de la fibromyalgie rend un peu plus facile à comprendre. Alors jetez un oeil à la façon dont cela fonctionne.

Cuillère Théorie Fibromyalgie
théorie fibromyalgie cuillère a été développée par Christine Miserandino à butyoudontlooksick.com, qui était dans sa cuisine un jour avec son ami quand son ami lui demanda ce qu’il vivait avec le lupus (une maladie similaire la fibromyalgie provoque une douleur chronique).

Ce qui est arrivé à Christine selon:

Tout en essayant de gagner mon sang-froid, je jetai un regard autour de la table de l’aide ou des conseils, ou tout au moins attendre le temps de réfléchir. Je tentais de trouver les mots justes. Comment puis-je répondre à une question que je ne pourrais jamais répondre à moi-même? Comment puis-je expliquer tous les détails de tous les jours est fait, et donner des émotions d’une personne malade passe par la clarté. Je aurais pu abandonné, après avoir fait si je ne cherche pas à expliquer, une blague comme je le fais habituellement, et changer le sujet, mais je me souviens avoir pensé comment pourrais-je l’attendre à comprendre.

Si je ne peux pas expliquer à mon meilleur ami, comment pourrais-je expliquer mon monde à quelqu’un d’autre? Je devais essayer au moins. A cette époque, la théorie est née une cuillère. Je me suis vite saisissions toutes cuillère sur la table. Je regardais dans les yeux et dit: « Voilà, vous avez le lupus ».

Christine savait que pour expliquer pleinement ce qui est un malade qui n’a jamais connu, a dû préciser comment une maladie comme la fibromyalgie ou le lupus peut prendre en charge votre vie. Elle a dû préciser que quelqu’un avec la fibromyalgie n’a tout simplement pas la possibilité de vivre une vie normale de la manière qu’une personne en bonne santé fait. Voici comment il l’a expliqué à son ami:

Je lui ai expliqué que la différence d’être malade et être en bonne santé est d’avoir à prendre des décisions ou consciemment quand penser le reste du monde n’a pas. Santé ont le luxe d’une vie sans choix, un cadeau la plupart des gens tiennent pour acquis.

La plupart des gens commencent leur journée avec des possibilités et de l’énergie illimitée pour faire ce qu’ils veulent, en particulier les jeunes. Pour la plupart, ils ne ont pas besoin de se soucier des effets de leurs actions. Donc, pour mon explication, je cuillères à transmettre ce point. Je voulais quelque chose pour elle de tenir en fait, pour moi de prendre alors que la plupart des gens qui tombent malades se sentent une « perte » d’une vie qu’il a connu. Si je contrôlais retirer les cuillères, alors elle sait ce que cela fait d’avoir quelqu’un ou quelque chose, dans ce cas, le lupus, être en contrôle.

Je lui ai demandé de compter les cuillères. Elle a demandé pourquoi, et je lui ai expliqué que lorsque vous êtes en bonne santé que vous attendez d’avoir une quantité infinie de « cuillères ». Mais quand vous devez planifier votre journée maintenant, vous devez savoir exactement combien de « cuillères », vous commencez avec. Il ne garantit pas que vous ne perdez pas quelque chose le long du chemin, mais au moins il est utile de savoir où vous commencez. Il comptait 12 cuillères. Elle se mit à rire et a dit qu’elle voulait plus. Je dis non, et je savais tout de suite que ce petit jeu fonctionnerait, quand il semblait déçu, et nous avions même pas encore commencé. Je voulais plus « cuillères » pendant des années et n’ont pas trouvé un moyen encore pour obtenir plus, pourquoi elle? Je lui ai aussi dit qu’il était toujours au courant de combien avait, et ne pas laisser parce que je ne pourrais jamais oublier que a le lupus.

Pour la prochaine partie de son expérience, elle a commencé à enlever des cuillères son ami, expliquant que chaque cuillère perdu était une occasion manquée; un peu d’énergie et de la liberté que quelqu’un souffrant de douleur chronique doivent sacrifier et rationnés tous les jours. Voici comment Christine explique:

Je lui ai demandé d’énumérer les tâches de la journée, y compris le plus simple. Comme elle débita les tâches quotidiennes ou juste des choses amusantes à faire; Je lui ai expliqué comment chacun coûterait une cuillère. Quand elle a sauté à droite dans se préparer pour le travail que sa première tâche le matin et la coupa et a pris une cuillère. Je pratiquement sauté dans sa gorge. J’ai dit non! Vous obtenez non seulement vers le haut. Vous devez ouvrir vos yeux et réalisez que vous êtes en retard. Vous ne l’avez pas bien dormi la nuit précédente. Vous devez vous traîner hors du lit, et vous devez faire quelque chose à manger avant de pouvoir faire quoi que ce soit d’autre, parce que si vous ne le faites pas, vous ne pouvez pas prendre vos médicaments et si vous ne prenez pas de médicaments pourrait également renoncer à toutes vos cuillères aujourd’hui et demain aussi. « Je me suis vite pris une cuillère et a réalisé qu’il avait même pas encore habillé.

Rapidement, je pris une cuillère et a réalisé qu’il avait même pas habillé.

Le reste de la journée a continué dans l’expérience hypothétique de la pensée Christine. Son ami est allé travailler et a été forcé de donner les cuillères pour écrire trop long, ou d’obtenir quelque chose à manger. En fin de compte, son amie a réalisé qui ne correspondait pas assez pour cuire cuillères à dîner. Et par ce point, elle a commencé à vraiment comprendre ce que Christine a vécu tous les jours:

Je vois rarement émotif, alors quand je l’ai vu en colère, je savais peut-être qu’elle traversait. Mon ami ne voulait pas déranger, mais en même temps, j’étais heureux de penser enfin peut-être quelqu’un me comprenait un peu. Elle avait les larmes aux yeux et demanda tranquillement: « Christine, comment faites-vous? Vous avez vraiment tous les jours? « Je lui ai expliqué que certains jours étaient pires que les autres; Certains jours, j’ai plus cuillères alors plus. Mais je ne peux jamais faire disparaître et je ne peux pas oublier, chaque fois que je dois penser. Je lui ai remis une cuillère qu’il avait en réserve. Je dis simplement: « Je l’ai appris à vivre la vie avec une cuillère supplémentaire dans ma poche, en réserve. Vous devez être toujours prêt. ”

Mais je ne peux jamais faire disparaître et je ne peux pas oublier, chaque fois que je dois penser. Je lui ai remis une cuillère qu’il avait en réserve. Je dis simplement: « Je l’ai appris à vivre la vie avec une cuillère supplémentaire dans ma poche, en réserve. Vous devez être toujours prêt. ”

Et si vous avez déjà vécu avec la fibromyalgie, vous reconnaissez sans doute que la dernière ligne un peu trop, non? L’idée que vous devez toujours être en retard dans la vie. Vous ne pouvez jamais vraiment engager à vivre parce qu’il doit sauver un peu d’énergie pour le scénario du pire cas où vous avez vraiment besoin.

Il est tout le monde quelque chose avec la fibromyalgie sait, mais peu de gens peuvent vraiment trouver les mots pour exprimer. Voilà ce qui fait la théorie de la cuillère de la fibromyalgie si utile. Il vous donne un visuel et pratique pour expliquer leur maladie aux personnes qui veulent comprendre, mais aucun moyen.

Il est une façon ingénieuse de décrire la maladie qui a conduit les gens de toute la communauté de la fibromyalgie en utilisant « cuillères » comme raccourci pour décrire comment faire face à leur maladie ou se référer à chacun comme « scoops ». Et si vous avez une famille qui veut comprendre mieux la maladie, ou certaines personnes dans votre vie qui a besoin de soutien qui ne peuvent tout simplement pas, en utilisant la fibromyalgie théorie de cuillère est une excellente façon de commencer à les aider à comprendre.

Vous pouvez consulter le texte intégral de la théorie de Christine ici si vous voulez en savoir plus. Mais que pensez-vous de la cuillère théorie la fibromyalgie? Est-ce une bonne façon de décrire votre état? Avez-vous déjà utilisé la théorie de la cuillère pour expliquer la fibromyalgie maladie vos amis ou en famille?

Si vous avez, s’il vous plaît laissez-nous savoir dans les commentaires. Et aujourd’hui, peut-être un jour avec beaucoup de cuillères de rechange pour tous ceux qui vivent avec la fibromyalgie.

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