Eh bien, nous sommes ici non seulement a la vie changé que je sais, malheureusement, a donc le vôtre! Nous sommes maintenant sur un nouveau voyage, pas une diversion, pas très excitant, mais plus d’un voyage d’escalade de montagne avec de nombreux arrêts et détours à venir. Alors, voici quelques choses que vous devez savoir aller dans ce voyage qui peut le rendre plus facile pour vous de traiter avec moi. Comme vous le savez, j’ai une maladie chronique et la vie ne sera jamais la même chose pour chacun d’entre nous. Il n’est pas une maladie que vous pouvez le voir, mais je vois en difficulté. Il n’est pas une maladie que vous pouvez sentir, mais en voyant ma douleur. Il n’est pas une maladie que vous pouvez comprendre, mais voir ma frustration. Les choses ne seront jamais les mêmes, mais peuvent essayer de les garder comme « normal » que possible pour le bien de notre famille. Alors, comment expliquer pleinement les défis qui nous attendent? Il y a de nombreux aspects de la maladie / la douleur chronique que je veux que vous compreniez ce que nous allons commencer au début et je vais vous expliquer mieux que je peux pour que vous sachiez et peut bien comprendre ce que sera ce voyage. Il y a beaucoup de différentes zones à couvrir et à résister, ce sera un parcours cahoteux.
Alors , quelle est cette chose appelée la fibromyalgie? Eh bien, il y a tellement de théories et définitions de ce qui est que tous les mailles ensemble et quelques définitions sonnent totalement confus et ne font pas de sens tandis que d’ autres font , il semble que beaucoup de symptômes sans signification réelle ou définie comme un diagnostic qui devrait être dans votre tête, mais nous allons donner ce nom de toute façon. Alors d’ abord, j’ai cette « condition » qui affecte la façon dont mon corps réagit à la douleur. Une partie du « fun », chaque jour pourrait être différent, de sorte que vous pouvez avoir des douleurs articulaires , un jour, et la douleur lancinante dans les jambes un autre jour. Alors commençons par la douleur.
Ma douleur peut aller d’une gêne à jour extrême à jour et même heure à l’autre. Parfois, il peut être difficile de vous dire exactement ce qui fait mal et comment ça fait mal, mais il suffit de savoir qu’il est très inconfortable et douloureuse. jours « Désagréable » sont ceux qui me traitent très difficile de suivre le rythme du jour à l’entretien de jour de la maison fonctionnelle et propre. J’essaie aussi de traiter avec les autres projets qui s’additionnent. Habituellement, ils sont les jours qui me poussent au-delà de mes limites et je sais que si j’avais une journée bien remplie et beaucoup de projets, je peux être hors service pendant quelques jours plus tard. Les jours que j’ai la douleur extrême sont des jours qui passent la majeure partie sur le canapé, au lit ou d’une chaise en essayant de mettre à l’aise.
Ce sont les jours que les vêtements, la vaisselle, le nettoyage de la maison et la cuisine devront attendre, ou qui ont besoin d’aide. Vous trouverez probablement aussi ce sont les jours que beaucoup de larmes tombent. Les larmes de la douleur, des larmes de la douleur, des larmes de frustration et de larmes de savoir que je laisse tomber ma famille et moi. Mais comme je l’ai appris, vous savez ces larmes et est toujours prêt à me consoler. Vous savez c’est l’un de mes moments les plus vulnérables et laissez-moi débrouille mieux que vous pouvez, même si cela signifie que je dois perdre une autre réunion de famille.
Ces temps / jour de la douleur qui peut aussi avoir beaucoup d’anxiété et de stress. Mais ce que j’ai appris, pas tout le stress et l’anxiété sont exprimés de la même manière ou généralement beaucoup de gens pensent, en particulier l’anxiété partiel. Pour la plupart des gens quand ils entendent les crises d’angoisse ou d’anxiété, ils imaginent des gens assis dans le coin, recroquevillé dans une boule à bascule d’avant en arrière tout en marmonnant un tas de charabia. Ainsi, l’anxiété peut être démontré ou exprimé de différentes façons, dont la plupart j’ai appris quelque chose sur moi-même. Pour moi, les moyens les plus communes que je montre l’anxiété et la colère sont facilement perturbé. Des choses simples me font tellement frustré, bouleversé, de mauvaise humeur et peu importe la façon dont j’essaie de rester calme, recueilli et agréable; Je mords juste tout le monde et tout ce qui conduit à des combats, des arguments et simplement l’inconfort pour tout le monde. Aussi dur que j’essaie de rester calme et serein, les petites choses semblent juste pousser mes boutons et ça me rend tellement bouleversé.
S’il vous plaît sais que je suis en train difficile de laisser ces choses revenir en arrière et cependant, et il est parce que je suis physiquement si mal à l’aise que je ne peux pas ne me causer du stress ou de l’anxiété, aider la plupart du temps, parfois il faut rien de plus qu’un regard particulier pour rendre fou! J’essaie très difficile de ne pas perdre la tête et ne pas laisser les choses me dérangent, mais sachez que parfois vous ne pouvez pas garder tout et est forcé de jeter sur le temps comme le mont Vésuve! Il a aussi appris que quand j’avoir des conversations avec vous, ou d’autres, il semble parfois que l’écume à la bouche avec la conversation, parler rapidement et parfois ne fait pas beaucoup de sens, c’est aussi une façon de vivre et d’exprimer l’anxiété. J’essaie de prendre des respirations profondes, garder mes réponses dans les conversations, même calme et serein, mais parfois une simple conversation peut envoyer mon anxiété en chute libre.
Pas nécessairement les gens dont je parle me causent le stress ou l’ anxiété, mais seulement conversant en général peut envoyer mon anxiété mètres de vol. Quand je suis dans le milieu de cette anxiété, la socialisation peut être très difficile. Parfois , je vais devoir manquer les réunions de famille ou en raison de l’ anxiété partis augmentation et la douleur, mais gardez à l’ esprit que ce n’est pas quelque chose à faire un choix délibéré de le faire. Je ne veux plus jamais se sentir mis à l’ écart par mes symptômes ou de laisser ce diktat ma vie, cependant, cela a un grand impact sur ma vie maintenant et comment je vis et pourtant semble toujours de savoir quand vous avez vraiment besoin d’ un « temps » pour recueillir et de se concentrer et la tranquillité de tout le chaos se passe dans ma tête.
La fatigue est un autre acteur majeur dans tout cela. La meilleure description que j’ai est la fatigue de la fatigue qu’aucune quantité de sommeil que j’ai eu de l’ aide. Cela est si vrai. La douleur elle – même provoque la fatigue. Maintenant , ajoutez le stress, l’ anxiété, la dépression et le syndrome de fatigue chronique au – dessus de tout cela, et parfois même prendre une douche est la plus grande tâche que je peux accomplir toute la semaine!
la maladie de fatigue chronique peut se résumer comme si fatigué qu’il se sentait comme si vous ne l’avez pas dormi dans plus d’une semaine cependant, vous devez suivre toutes les tâches que vous faites habituellement sur une base régulière. seule la fatigue peut causer tous les autres symptômes que vous pouvez rencontrer dans ce quadruple « normalement » peut être expérimenté. Puis ajouter les habitudes de sommeil insomnie ou de diverses personnes atteintes de maladies chroniques, c’est une recette pour la souffrance. Oui, nous sommes fatigués, littéralement tout le temps. Quand nous disons que nous sommes « fatigués » n’est pas dire que nous avons eu une mauvaise nuit de sommeil, ce qui signifie que certains jours sont tellement fatigués que même la plus petite tâche toutes les réserves que nous avons épuisé. Encore une fois, vous semblez savoir quand ma dernière « cuillère » a été l’objet de dumping et me encourager à se reposer.
Le chômage fait maintenant partie de notre vocabulaire et de la réalité aussi bien. Je ne serai pas en mesure de contribuer à notre plan financier est maintenant un gros problème dans nos vies. Le stress provoque deux à regarder notre avenir. Les choses ne sont plus aussi accessibles qu’auparavant et les priorités ont changé. Cependant, avec tout cela ajouté à ce qui nous concerne, il continue de me soutenir et me assurer que vous survivra. Nous aurons à dire non plus que nous disons oui à, mais nous allons le faire fonctionner en quelque sorte. Mes futurs rêves, les aspirations et la carrière ont dû être mis en attente si parfois, quand il me devient trop pour supporter, me tenant et laissez-moi savoir que je serais encore fier de ce que j’ai accompli mais je me console en sachant que, comme je le vois, les choses seront tellement radicalement différent et il n’y a rien que je peux faire pour résoudre ce problème.
Je peux sembler se plaindre tout le temps des choses qui me dérangent, la douleur que j’ai, la fatigue a pris le relais, mais ils encore là, me tenant la main, en me frottant les épaules, me encourageant à continuer à se battre. Lorsque nous ou un conjoint et / ou membre de la famille a cette condition semble avoir tout ce que nous devons donner. Mais vous me soutenir est le plus grand cadeau que vous avez à offrir.
Patience est une vertu; la capacité de confort est un don, et la compréhension et l’empathie est vraiment une chose rare. Cependant, heureusement pour moi qui a toutes ces choses. Et peu importe ce que notre histoire a planifié à l’avance, leur capacité à comprendre mon état, être patient avec mes limites, et me consoler dans mes moments les plus sombres me donne la possibilité de continuer à persévérer. Jour après jour, même heure à l’heure est le meilleur que je peux faire. Mais sachant que la vie sera différent pour nous et être en mesure d’adapter à ce que nous avons maintenant à être le plus grand cadeau que vous pouvez me donner, et s’il vous plaît continuer à être patient, la compréhension et prendre soin de ce qui peut être notre nouvelle réalité. Et surtout, je vous remercie de comprendre que ce diagnostic / condition légitime. Votre amour et de soutien est ce qui me maintient dans ce monde fou. Je continuerai à faire de mon mieux, mais nous apprécions votre soutien dans cette entreprise!.
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