Most people do not believe in fibromyalgia, they say that everything is in your head. You have also faced this person in your life. At some point people ask about their illness. Therefore, it is time to explain what fibromyalgia looks like because you have not experienced what you are experiencing. Fibromyalgia is the most difficult part of people who do not understand it. We asked the question to our Facebook community online ” Living with fibromyalgia and chronic diseases ” , which says: How do you describe your feeling of fibromyalgia?
Fibromyalgia is a great incentive to live every day. When you wake up and move, make the most of it. If you wake up and can not move, do not do it. Take a break, read a book, watch a movie. It may not be what you want, but that’s what you need to do that day. Tomorrow is a new day and it may be different from yesterday. Thank you for having tomorrow because many people do not. I know it’s hard to feel that way when you’re in agony all the time, but something good is always happening.
There are no words to describe how horrible it is to be a living hell. It makes me feel like there’s no life left. However, we have collected some of the pain descriptions that our members tell us below.
That’s what the community shares with us:
1. Imagine the worst flu you have had and multiply it by 10, then imagine that being run over or hit by a car can tell me what a good day with fibromyalgia is like. A bad day really challenges any understanding.
2. They made a 10K with the flu and cut all the grass with scissors. That kind of pain. But everyone expects you to do it again the next day because you do not look sick.
3. Pains that move around your body. Choose a place and hold your breath until it passes, and simply move to another place. They fight to pretend that they do not like you and do not try to scream or cry. You feel tired, but you can not sleep only one version of the dream where you hear everything and the adrenaline wakes up completely. When your heart is touching and exhausted, come back if you can. The tips of the fingers and toes sometimes become numb and can not stand the cold. Your muscles contract and rotate, trying to relax and not tense, as headaches can occur next. You have depression and I personally escape in music or in imagination to deal with a lot. You can not always speak well and it is difficult to think clearly and concentrate. Yes, that is enough for now. Only an idea
4. With Beth W , I feel like a tin man. That’s perfect, the tin man, who has to be greased in ALL joints. And someone holding a torch to ALL my aching muscles. With my head in a vice. Yes, that sums it all up, what a miserable existence.
5. Marjie C – I feel like a prisoner in my own body! You never know what torture is
6. Jessica C : I feel like I’m hit by a bat. My muscles feel like they are being knocked down and thrown away. I feel like I have a 2 × 4 sitting on my shoulders all day, the flu and death …
7. Vickie M : I feel like I have a little elf in my body who runs a selection of ice and hits my joints and muscles 24 hours a day, 7 days a week.
8. Kimmie G- Like a triple trailer, he overtook me; How do I change my hips? I cut my waist because the lower half is not friendly; The worst pool of X of the worst type of flu 2 hit humanity and a period of memory the size of a knot … Otherwise, I feel great!
9 . Tracey W: I have a mind that loves to squeeze the parts of my body as if someone were digging their fingers into the skin and grasping your muscles tightly.
10. A handle is upside down, a 20-pound backpack weighs on the shoulders, hips, knees, ankles, feet and hands, pain. At the top of this pain there is a tingling sensation, as if your foot fell asleep … except when you simply pull the foot all over the body. His eyes are sore from tension, his skin is sensitive to touch, his nose is sensitive to odors. The lack of restful sleep keeps you numb and tired.
11. Kerryn E: it’s like a hangover and a drunk, but also sick like the flu after the intense full-body exercises and 10 laps with Mike Tyson, but lost and I live on another planet because I’m an alien compared to others who they own it You can not understand my life as
12. It’s a living hell! It hurts every day The pain keeps moving. Just when you think there is no other place to hurt, your skin hurts. It’s like a Mack truck that keeps rolling on you. I need hours to bathe, make up and dry my hair. When I finish, I have to sit down and rest. It’s hard to sleep at night because you can not find a position that does not hurt you.
13. Pain that increases from head to toe as if someone poured hot liquid down the throat and moved through the inside of your body. The hardest part is trying to stay positive in everything. You never know if one day it will manifest as IBS, migraines the next day and Epstein Barr. then the depression I have more symptoms every day. I have those terrible scars on my skin where the itching became so intense that I broke my skin and bled. He left terrible traces that burned. Ironically, the burning comes from within.
14. An unbearable burning pain in my whole body that feels as if they are burning me. Strong pains in feet and heels that feel like walking on broken glass. Take the fatigue you feel and multiply it by 100. The flu multiplies by 10. Burning pain when it touches the skin. Pain, that drugs do not help. I can not work so much pain and fatigue. I lost almost everything I had worked so hard for and waited two years for my disability to be approved. Living with a severe and debilitating pain and still looking normal, I feel guilty because I can not work because people treat me like a bum and I just do not want to work.
15. Sandra L – A thief who stole my life. No two days are the same. You never know what you are going to throw. Every day is something new, a new pain, a new flare. Being in bed you are fighting against your body just to spend the day. Nobody should have to live, it does not exist. Pain is an unbearable pain that most people can not handle. We have no choice but to accept it. The medical area really disappointed us.
16. Tracy W: When someone found the ropes in all my muscles and tendons, he went to the thigh. I feel very calm and it will not be a wedge.
17. Imagine a nylon cord. Turn it against the grain. Do you see these small openings? Pour into crushed glass and sand. Now turn the cable closed. Do you feel the sand that prevents the nylon from returning to its original point? Now imagine that the nylon cord is any muscle fiber, tendon and ligament in your fingers, hands, wrists, ankles, feet and fingers. Put your shoes on. Gloves Is it uncomfortable?
Try to go now. Driving. Standing. Purchase of groceries. It sounds terrible, right? Now imagine that you have no relief. Some days, you add every part of your back to the list. Add nausea. Add migraine. You just want to sleep, but the dream does not come.
Your head feels boring. Usually, they lose words in the middle of the sentence. You can not think clearly. People think you’re stupid, even if you’re not. Add mental health problems to the mix. Do you feel overwhelmed? That’s a good day. Tomorrow can be worse. You can not plan that. You will not receive a warning.
18 . If I have a crisis, I feel like the acid that flows through me and burns me from the inside out. But I try the “normal” days, not recognize the pain; I’m just doing what I have to do, but always there to stop being everything I know it could be.
The nervous pain is horrible and although I have a pain in the neck, hips, shoulders, hands and feet that are quite constant, I occasionally get a sting in the stomach or chest that comes out of nowhere and it takes my breath away. The last time I felt well was during a whole day when the doctor prescribed steroids. I had no pain and it was beautiful, then it started to burn my stomach and cause cramps. I had to stop the medication. However, memory problems and fatigue bother me more. Maybe because my mother has Alzheimer’s and I’m afraid she’ll catch me.
19. Janice R – I feel like I’m tied to two horses and going in different directions. My arms to a horse, my legs to others. My plugs feel out of the joint. In times of outbreaks it gets terrible. Other times it’s not so bad, but it still has pain.
June 20 J – I feel that someone is dancing in my brain and choosing what and when to numb, stun and dizzy.