20 manieren om voor te stellen wat de fibromyalgie aandoening voelt als

De meeste mensen geloven niet in fibromyalgie, ze zeggen dat alles in je hoofd zit. Je hebt ook die mensen in je leven geconfronteerd. Op een gegeven moment vragen mensen hem naar zijn ziekte, dus het is onze tijd om uit te leggen hoe fibromyalgie is, omdat ze niet hebben meegemaakt wat we ervaren. Fibromyalgie is het moeilijkste om te behandelen dat mensen niet begrijpen. We stelden de vraag aan onze Facebook online community: Hoe beschrijf je je gevoel over fibromyalgie?

Fibromyalgie is een grote stimulans om elke dag te leven. Als je wakker wordt en kunt bewegen, haal er dan het beste uit. Als je wakker wordt en niet kunt bewegen, doe het dan niet. Rust een beetje, lees een boek, bekijk een film. Het is misschien niet wat je wilt, maar het is wat je moet doen voor die dag. Morgen is een nieuwe dag en kan anders zijn dan gisteren. Bedankt dat je morgen bent omdat veel mensen dat niet doen. Ik weet dat het moeilijk is om je zo te voelen als je constant pijn hebt, maar er is altijd wel iets goeds te doen elke dag.

Er zijn geen woorden om te beschrijven hoe vreselijk de hel is, het geeft me het gevoel dat ik niet langer een leven heb. Maar we hebben enkele pijnbeschrijvingen samengesteld die onze leden hieronder vertellen.

Dit is wat de community met ons deelt:

1.  Stel je de ergste griep voor die je hebt gehad, vermenigvuldig het met 10, stel je voor geraakt of geraakt door een auto, bedenk dan de meest uitgeputte persoon die je ooit bent geweest en vermenigvuldig je met 10. En misschien kun je je voorstellen hoe goed een dag met een gevoel van fibromyalgie Een slechte dag daagt echt alle begrip en begrip uit.

2.   Je hebt een 10K gerund, met de griep en al je gras met de hand geknipt. Dat soort pijn. Maar iedereen verwacht dat je het de volgende dag opnieuw doet, omdat je er niet ziek uitziet.

3.  Pijn die zich rond uw lichaam beweegt. Neem een ​​punt en houd je adem in tot het passeert en ga dan naar een ander punt. Je vecht om te doen alsof je niet lijdt en probeert niet te huilen of gewoon te huilen. Je voelt je moe, maar je kunt niet alleen slapen als een slaapversie, waar je alles hoort en je volledig wakker wordt van adrenaline. Met het hart kloppend en uitgeput, kom je weer naar beneden als je kunt. De toppen van je vingers en je vingers worden soms gevoelloos en je kunt de kou niet verdragen. Je spieren knopen en draaien, en je probeert je te ontspannen en niet gespannen te raken, want een ondraaglijke hoofdpijn kan de volgende zijn. Je hebt episodes van depressie en ik ontsnap persoonlijk in muziek of fantasie om met veel om te gaan. Je kunt niet altijd goed praten en je worstelt om helder te denken en je te concentreren. Ja, dat is genoeg voor nu. Alleen een idee

4. Beth W-   laat me voelen als een blikken man. Dat is perfect, de blikken man die gesmeerd moet worden in ALLE gewrichten. En iemand met een fakkel voor AL mijn pijnlijke spieren. Met mijn hoofd in een bankschroef. Ja, dat vat het allemaal samen, wat een ellendig bestaan

5. Marjie C  – Ik voel me als een gevangene in mijn eigen lichaam! Nooit weten welke marteling de volgende is

6. Jessica C  – Ik heb het gevoel dat ik werd geraakt door een knuppel, mijn spieren voelen aan alsof ze aan het scheuren en trekken zijn, ik voel dat ik een 2 × 4 heb die de hele dag op mijn schouders rust terwijl ik de griep en de zwetende dood heb …

7. Vickie M-   Ik heb het gevoel dat ik een kleine elf in mijn lichaam heb die met een ijskoker loopt en mijn gewrichten en spieren 24 uur per dag, elke dag willekeurig steekt.

8. Kimmie G-   Als een drievoudige aanhangwagen bracht hij me over; alsof ik mijn heupen moest vervangen; snijd me in de taille omdat de onderste helft niet in vriendelijkheid wordt gebruikt; je ergste kater X quadrillions met de ergste mensheid van griep 2 en een geheugen ter grootte van een knat …… anders voel ik me geweldig!

9  . Tracey W –   Ik heb een geest die graag de delen van mijn lichaam knijpt, zoals iemand die zijn vingers in de huid graaft en de spieren in een stevige greep vastpakt.

10.   Een 20-pond gag zit in je hoofd, een 20-pond rugzak weegt op je schouders, je heupen, je knieën, je enkels, je voeten en je handen doen pijn. Op het puntje van die pijn is er een tinteling als wanneer de voet in slaap valt … behalve dat in plaats van alleen je voet, het over je hele lichaam gaat. Zijn ogen zijn pijnlijk van de spanning, zijn huid gevoelig voor aanraking, zijn neus gevoelig voor geuren. Het gebrek aan rustgevende slaap houdt hem verbluft en vermoeid.

11. Kerryn E –   Het is alsof je dronken en dronken bent, maar ook ziek bent als de griep na intensieve lichaamstraining en 10 rondes met de Tyson-microfoon, maar verloren bent en op een andere planeet leeft omdat ik een alien ben in vergelijking met anderen die niet kunnen begrijp mijn leven als

12.   Het is een levende HEL! Het doet elke dag pijn De pijn beweegt voortdurend Net als je denkt dat er geen andere plek is die pijn kan doen, doet je huid pijn. Het is net een Mack-truck die over je heen rijdt, en nog een keer. Het duurt uren om te douchen, make-up en droog mijn haar. Tegen de tijd dat ik klaar ben, moet ik gaan zitten en uitrusten. Het is moeilijk om ‘s nachts te slapen omdat je geen positie kunt vinden die geen pijn doet.

13.   Pijn die van het hoofd tot de tenen intensiveert, alsof iemand een hete vloeistof door de keel morst en zich in uw lichaam verplaatst. Het moeilijkste is om door alles positief te blijven. je weet nooit of het zich op een dag zal manifesteren als SII, volgende migraine en Epstein Barr. dan depressie bovenaan. Ik heb dagelijks meer symptomen. Ik heb deze vreselijke littekens op de huid waar de jeuk zo erg werd dat ik de huid scheurde en liet bloeden. Het heeft vreselijke sporen achtergelaten die lijken verbrand. Ironisch genoeg komt het branden van binnenuit.

14.   Brandende pijn ondraaglijk in mijn hele lichaam, dat mij in brand lijkt te hebben gezet. Scherpe pijn in de voeten en hielen die aanvoelt als het lopen op stukjes glas. Neem het moeilijkste dat je ooit hebt gevoeld en vermenigvuldig dat met 100. Griep-tijden 10. Brandende pijn wanneer je je huid aanraakt. Pijn die geen medicatie helpt. Dus ernstige pijn en vermoeidheid, ik kan niet werken. Ik verloor bijna alles wat ik zo hard had gewerkt, 2 jaar wachten tot mijn handicap werd goedgekeurd. Leven met een ernstige slopende pijn en er normaal uitzien, waardoor ik me schuldig voel dat ik niet kan werken omdat mensen me behandelen alsof ik lui ben en ik gewoon niet wil werken.

15. Sandra L –   Een dief die mijn leven heeft gestolen. Geen twee dagen zijn hetzelfde. Je weet nooit wat hij naar je zal gooien. Elke dag is iets nieuws, een nieuwe pijn, een nieuwe uitbarsting. Wees op de grond in bed. Je vecht tegen je lichaam om de dag door te komen. Niemand zou moeten leven. Besta niet zoals dit. Pijn is een ondraaglijke pijn die de meeste mensen niet aankunnen. We hebben geen andere keuze dan het te accepteren. Het medische veld heeft ons echt teleurgesteld.

16. Tracy W –   Zoals iemand de veters van al mijn spieren en pezen vond, trok ze ze helemaal langs de dij. Ik voel me zo veel en ik denk dat het geen toeval zal zijn.

17.   Stel je een nylon kabel voor. Draai het tegen de stroom in. Zie je die kleine openingen? Giet het gemalen glas en het zand erin. Draai nu de kabel dicht. Voel je het zand waardoor het nylon niet naar het oorspronkelijke punt terugkeert? Stel je nu voor dat het nylonkoord elke spiervezel, pees en ligament in je vingers, handen, polsen, enkels, voeten en tenen is. Doe schoenen aan. Handschoenen Het is ongemakkelijk?

Probeer nu te lopen. Het rijden. Standing. Boodschappen doen. Het klinkt vreselijk, nietwaar? Stel je nu voor dat je GEEN opluchting krijgt. Sommige dagen voegen elk deel van uw rug toe aan de lijst. Voeg misselijkheid toe Voeg migrainehoofdpijn toe. Je wilt gewoon slapen, maar de droom komt niet.

Zijn hoofd voelt mistig aan. Je verliest woorden meestal in het midden van de zin. Je kunt niet helder denken. Mensen denken dat je dom bent, zelfs als je dat niet bent. Voeg mentale gezondheidsproblemen toe aan de mix. Voel je je overweldigd? Dit is een goede dag. Morgen kan erger zijn. Je kunt dit niet plannen. U ontvangt geen enkele waarschuwing.

18  . Wanneer ik een uitbraak heb, voel ik dat zuur door mij heen stroomt en mij van binnenuit verbrandt. Maar op “normale” dagen probeer ik de pijn niet te herkennen; Ik doe gewoon wat ik moet doen, maar het is er altijd weer, zodat het niet alles is wat ik weet dat het zou kunnen zijn.

De nerveuze pijn is vreselijk en hoewel ik pijn heb in de nek, heupen, schouders, handen en voeten die redelijk constant zijn, krijg ik af en toe een steek in de darm of kist die uit het niets komt en laat je ademloos. ver. De laatste keer dat ik me goed voelde, was een hele dag toen de arts steroïden voorschreef. Ik had geen pijn en het was glorieus, toen begon het mijn maag te verbranden en krampen te veroorzaken. Ik moest de medicijnen stoppen. Echter, geheugenproblemen en vermoeidheid stoorden me meer. Misschien omdat mijn moeder Alzheimer heeft en ik doodsbang ben, komt ze voor mij.

19. Janice R –   Ik heb het gevoel dat ik gebonden ben aan twee paarden en verschillende kanten op ga. Mijn armen op een paard mijn benen op de andere. Mijn pluggen voelen uit de verbinding. Het wordt verschrikkelijk in tijden van uitbraken. Andere keren is het niet zo erg, maar het doet nog steeds pijn.

20. juni J –   Ik voel dat er iemand in mijn hoofd danst en kiest wat en wanneer ik doof, stom en duizelig word.

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