20 hechos sobre los pacientes con síndrome de fibromialgia

1-El prejuicio contra los pacientes con fibromialgia existe como si tuvieran dolor todos los días, no fuera grave.

2-La fibromialgia nos ha maltratado desde su génesis. La persona pasa por un camino crucis hasta que finalmente se diagnostica. ¿Experimentas dolores diarios e insoportables, además de síntomas gastrointestinales, dermatológicos, psicológicos …

3-El fibromialgico vive en un malestar intenso y todavía es a menudo ignorado por familiares y amigos y hostil en el ambiente de trabajo

4-Nuestras quejas son desacreditadas y reducidas. Sufrimos prejuicios incluso por parte de los propios médicos que, desprevenidos, no nos tratan con el respeto y la responsabilidad que deberían tener.

5-A la familia, amigos, compañeros y empleadores les digo: nuestro dolor es real, intenso y dramático. No es porque no aparezca en los exámenes que estemos fingiendo, mintiendo o simulando.

6-El dolor en la fibromialgia no es psicológico, y aunque lo fuera deberíamos ser respetados por sentirlo. Porque el dolor del desprecio es peor que la física.

7-Si eres hipertenso, diabético, cardíaco, todo el mundo lo entiende, la medicina está disponible en la red pública y nadie duda de tu enfermedad. Pero si eres fibromialgico, es tu cabeza.

8-El tratamiento es multidisciplinario y caro. Necesitamos actividad física y física para mejorar el cansancio, la fatiga, deshacer los nódulos en los músculos y promover la relajación muscular.

9-No podemos dormir bien, tenemos insomnio crónico, no dormimos profundamente y necesitamos inductores del sueño.

10-Las mañanas son difíciles, porque incluso si dormimos toda la noche, todavía nos despertamos como si tuviéramos resaca y limpiamos un edificio completo de 20 pisos.

11-¡Con tanta medicina y dolor, la libido se colapsa!

12-Nuestro sistema digestivo no funciona bien, tenemos dolores abdominales, secuencia de estreñimiento, seguida de diarrea y no metabolizamos vitaminas y minerales constantemente teniendo anemia, baja vitamina D, deficiencia de magnesio entre otras deficiencias.

13-En la parte dermatológica, nuestro cabello se cae, las uñas se rompen, nuestra piel está seca y escamosa, tenemos alergias y sensibilidad capilar.

14-¿Y la salud mental? Duermes cansado y con dolor, tomas hasta 10 tipos de medicamentos, no puedes realizar las tareas diarias, te discriminan, por lo que tienes variaciones de humor y depresión.

15-Luchamos por la conciencia de las personas, el apoyo familiar, los medicamentos y el tratamiento público disponible, pero sobre todo el respeto y el trato digno.

16-¡Nuestro dolor es invisible, pero nosotros no! Somos miles de personas que a diario experimentamos dolores crónicos, apiñamos el PS de la vida en busca de Tramal y Morfina.

17-Decir que un amigo tuyo con Fibro vive bien a pesar del dolor, o que hay peores enfermedades no ayuda ni mejora nuestro estado. ¡Así que no lo digas!

18-La mayoría de nosotros somos positivos y agradecidos y estamos tratando de vivir, sonreír y jugar a pesar de los dolores.

19-Estamos en las redes sociales para que la gente sepa que existimos. El dolor no tiene rostro. Verse bien y trabajar no es motivo de desprestigio.

20-Si pospongo o pierdo un compromiso, si no estoy preparado para actividades domésticas, físicas o de gira, perdónanos. No nos culpes ni juzgues. Ya hemos tenido demasiada culpa.

Lia Gonçalves – Frente a la fibromialgia

86 thoughts on “20 hechos sobre los pacientes con síndrome de fibromialgia

  1. I have to thank you for the efforts you have put in writing this website.
    I’m hoping to check out the same high-grade content
    from you later on as well. In fact, your creative writing abilities has encouraged me to get my own, personal
    site now 😉

  2. Wonderful goods from you, man. I’ve understand your stuff previous to and you are just extremely wonderful.
    I actually like what you’ve acquired here, certainly like what you’re stating
    and the way in which you say it. You make it entertaining and you still care for to keep it smart.
    I can’t wait to read far more from you. This is really a great web
    site.

  3. Goodd day! I know this is kinda off topic nevertheless I’d figured I’d ask.
    Would youu be interested iin trading links or maybe guest
    writing a blog article oor vice-versa? My website addresses a lot of the same topics as
    yours and I think we could greatly bnefit from each other.

    If you might be interested feel free to send mee
    an e-mail. I look forward to hearing from you! Awesome blog by thhe way!

    Here is my website; https://23H.online/blog/27002/intimate-wedding-venues-how-to-choose-the-Correct-location/

  4. Good day! Do you know if they make any plugins to assist with SEO?
    I’m trying to get my blog to rank for some targeted keywords
    but I’m not seeing very good gains. If you know of any please share.
    Kudos!

  5. This design is spectacular! You most certainly know how to
    keep a reader entertained. Between your wit and your videos, I was almost moved to start
    my own blog (well, almost…HaHa!) Wonderful job.
    I really enjoyed what you had to say, and more
    than that, how you presented it. Too cool!

  6. Hey! Someone in my Myspace group shared this website with us so I came to look it over.
    I’m definitely loving the information. I’m book-marking and will be tweeting this to my followers!
    Terrific blog and outstanding design.

  7. Spot onn with this write-up, I seriously believe thazt
    this website needs far more attention. I’ll probably be back again tto read more, thanks for the advice!

    оксиметолон site силовой спорт

  8. Mankind may all take advantage of finding out even more regarding our self and our health and fitness.
    Particular actions and movement amounts can contain wonderful benefit to all of us, and all
    of us need to study even more info about them. Your blog has presented valuable details that will
    be useful to many different societies and individuals,
    and I appreciate the posting your competence in this
    manner. http://S.No.w.d.r.if.t.q.b.v.n@www.ecitv.com/?q=node/422/track

  9. Excellent beat ! I would like to apprentice even as you amend your web site, how
    could i subscribe for a blog website? The account aided
    me a applicable deal. I had been a little bit acquainted
    of this your broadcast provided vivid clear concept

  10. Hello, I think your blog might be having browser compatibility issues.
    When I look at your blog site in Chrome, it looks fine but when opening in Internet Explorer, it has some overlapping.
    I just wanted to give you a quick heads up! Other then that,
    fantastic blog!

  11. I enjoy whatever you guus are usually way up too.
    This sort regarding cllever work and protection! Keep up
    the fantastic works guys I’ve additional yoou guys to my personal blogroll.

    My homepage :: click here (Dotty)

  12. Hi, i feel that i saw you visited my web site thus i came to go back the favor?.I’m trying to find things to improve my web site!I guess its adequate
    to make use of some of your ideas!!

  13. I’m really enjoying the theme/design of your website.
    Do you ever run into any web browser compatibility problems?
    A small number of my blog readers have complained about my blog not
    operating correctly in Explorer but looks great in Opera.
    Do you have any ideas to help fix this issue?

  14. I’m not sure why but this blog is loading incredibly slow for me.
    Is anyone else having this problem or is
    it a problem on my end? I’ll check back later and
    see if the problem still exists.

  15. After looking over a handful of the blog posts on your website, I really appreciate your technique of blogging.
    I saved it to my bookmark site list and will be checking back in the near future.

    Please visit my website as well and let me know
    your opinion.

  16. I loved as much as you’ll receive carried out right here.
    The sketch is attractive, your authored subject matter stylish.

    nonetheless, you command get got an impatience over that you wish be delivering the following.
    unwell unquestionably come more formerly again as exactly the same
    nearly a lot often inside case you shield this increase.

  17. I’m impressed, I must say. Seldom do I come across
    a blog that’s both equally educative and entertaining, and without a doubt, you’ve hit the nail on the head.
    The problem is something which too few folks are speaking
    intelligently about. I’m very happy that I found this in my search for
    something concerning this.

  18. I loved as much as you’ll receive carried out right here.
    The sketch is tasteful, your authored material stylish.
    nonetheless, you command get bought an edginess over that you wish be delivering the following.
    unwell unquestionably come further formerly again since exactly the same nearly very often inside case you shield this increase.

  19. Nіce post. I wwas checҝing cоntinuously thiѕ ƅlog and I’m impressed!
    Very useful information specivically the last part 🙂 I care for sich info much.
    I was seeking this certain info for a long time.
    Thank you and best off luck.

    Also vissit my webpaɡe – Article source

  20. Good post. I learn something totally new and challenging on blogs I stumbleupon everyday.

    It will always be exciting to read articles from other
    writers and use a little something from other sites.

  21. This design is incredible! You definitely know how to keep a reader entertained.

    Between your wit and your videos, I was almost moved to start my own blog (well, almost…HaHa!) Excellent job.

    I really loved what you had to say, and more than that, how you presented it.
    Too cool!

  22. What i do not realize is actually how you’re no longer actually much more well-preferred than you may
    be right now. You’re so intelligent. You know therefore considerably in terms of this topic, made me personally consider it from a lot of various
    angles. Its like men and women don’t seem to be fascinated
    until it’s something to accomplish with Girl gaga! Your personal stuffs nice.

    At all times handle it up!

  23. I have been browsing online more than 4 hours today,
    yet I never found any interesting article like yours.
    It’s pretty worth enough for me. In my view, if all
    webmasters and bloggers made good content as you did,
    the internet will be much more useful than ever before.

  24. Its like you read my mind! You appear to know so much about this, like you
    wrote the book in it or something. I think that you can do with a few
    pics to drive the message home a bit, but instead of that, this is
    great blog. An excellent read. I will definitely be back.

  25. hello!,I love your writing so much! share we be in contact more about your
    post on AOL? I require a specialist on this area to resolve my problem.
    Maybe that is you! Having a look ahead to peer
    you.

  26. Just desire to say your article is as astonishing.
    The clarity in your post is just nice and that i could think you are an expert in this subject.
    Well with your permission allow me to clutch your feed to stay updated with coming near near post.
    Thanks one million and please keep up the gratifying work.

  27. Hello very cool website!! Man .. Beautiful .. Wonderful
    .. I will bookmark your web site and take the
    feeds additionally? I’m happy to seek out a lot
    of helpful info here within the put up, we want work out
    more strategies on this regard, thanks for sharing.
    . . . . .

  28. This iis very fascinating, You’re an excessively skilled blogger.
    I have joined your feed and stay uup for inn search
    of extra of your great post. Additionally, I’ve shared your web site in my social networks

Leave a Reply

Your email address will not be published. Required fields are marked *