2 der schlimmsten Symptome der Fibromyalgie ..

Wie wir wissen, kommt es bei Fibromyalgie zu einer Vielzahl von Symptomen. Die Anzahl der Symptome kann von Person zu Person stark variieren. Ich würde nicht sagen, dass es ein Symptom gab, das es leicht macht, mit Fibromyalgie zu leben. Ich denke jedoch, dass einige nicht so schwierig sind wie andere.


Eines der Symptome der Fibromyalgie, das ich persönlich am schwierigsten finde, ist “Fog Fibro”, auch “Gehirnnebel” genannt: die Probleme des Kurzzeitgedächtnisses und die mangelnde Konzentrationsfähigkeit. Mein Mann lacht, wenn ich sage:

“Kommunikation war immer einer meiner starken Anzüge!” Diejenigen, die mich besser kennen, würden den Humor in dieser Aussage finden, auch weil sie wissen, wie gerne ich rede! Ich kann Humor auch aus seiner Sicht sehen, aber manchmal möchte ich weinen.


Das “Nebel-Fibro” scheint im schlimmsten Moment zu sein, wenn mein Schmerz hoch ist. Ich finde es schwer, meine Worte zu finden, oder ich vergesse, was ich mitten im Satz sage. Manchmal stottere ich, spreche schlechte Worte aus oder sage etwas, das sich völlig vom Thema abhört.

Ich antworte den Menschen mit Aussagen, die überhaupt keinen Sinn ergeben. Ich habe gelernt, Dinge zu schreiben und viel mit meinem Kalender zu arbeiten – mehr als je zuvor. In meinen besten Tagen versuche ich, mich auszulachen oder mit denen zu lachen, die über meine Worte lachen.

An meinen schlimmsten Tagen zerbreche und weine ich, als ob ein Stück von mir weg ist. Manchmal habe ich versucht, dies anderen auszudrücken, und habe mit “das passiert allen” oder “ich mache es auch” geantwortet. Sie verstehen es einfach nicht.

Es ist mehr als das gelegentliche “Ich betrat ein Zimmer und vergaß, was ich betrat”. So wie die Müdigkeit der Fibromyalgie mehr ist als eine allgemeine Müdigkeit oder Erschöpfung, die bei den meisten Menschen üblich ist, ist der Hirnnebel ein extremes Symptom, das viele nicht verstehen
Schreiben, Lesen und Rechtschreiben sind manchmal schwierig, auch wenn mir dies früher leicht fiel. Ich lese immer wieder, um zu verstehen, was ich lese oder schreibe, oder schreibe Wörter und schaue sie dann an, weil sie nicht richtig zu sein scheinen – manchmal sind sie das und manchmal sind sie nicht. Konzentration kann auch schwierig sein. Wenn Sie sich auf jemanden konzentrieren, der mit mir spricht oder was ich tue, kann dies eine äußerst schwierige Aufgabe sein. Manchmal möchte ich lernen, mit Fibromyalgie zu leben, man muss um den Verlust ihres alten Selbst trauern, da es viele Aspekte seines Lebens verändert.


Das andere Symptom der Fibromyalgie ist für mich schwieriger zu leben – was passiert, wenn ich gestresst bin und wenn ich körperlich zu viel spüre – es ist das Gefühl meiner brennenden Haut. Einige beschreiben es als Gefühl, dass ihre Haut von der Sonne verbrannt wird.

Ich beschreibe es oft als ein Gefühl, als stünde ich in einem Hausbrand. Bevor bei mir überhaupt Fibromyalgie diagnostiziert wurde, benutzte ich oft das Wort “Eifer”, um meinen Mann meinem Schmerz zu beschreiben. Er dachte immer, es sei eine merkwürdige Wahl beschreibender Worte, um meinen Schmerz zu beschreiben.

Erst nach meiner Diagnose und Untersuchung der Fibromyalgie haben wir diese Art von Schmerz und meine Wortwahl verstanden.


Einige sagen, dass das beschreibende Wort “Brennen”, wenn es zur Beschreibung von Schmerz verwendet wird, nur von Menschen mit Fibromyalgie verstanden wird. Ich bin nicht sicher, ob das der Fall ist, aber ich weiß, dass es ein häufig verwendetes Wort ist und ich lebe fast täglich mit dem Symptom.

Es gibt so viele Auslöser dieses Symptoms der Fibromyalgie. Etwas so einfaches wie nicht genug Schlaf kann meinen Körper dazu bringen, sich so zu fühlen. Ich würde nicht sagen, dass nur meine Haut brennt, sondern eher von innen nach außen kam. Ein störendes Gespräch kann mich tagelang beeinflussen, manchmal mehr.

Ich kann auch durch einen starken Geruch, der überwältigend ist, das übermäßige Bellen unseres Welpen oder das Schlagen meines Ellbogens auf etwas betroffen sein. (Obwohl übermäßiges Bellen von Welpen ein unerwünschtes Symptom hervorrufen kann, ist es aufgrund Ihrer bedingungslosen Liebe und Ihres Unternehmens ein preiswürdiger Preis.) Ich habe gelernt, den kontrollierbaren Stress des Lebens, der ihn auslöst, zu begrenzen und mein Leben zu beseitigen wer verursacht es

Zu viel körperliche Aktivität ist der einzige Auslöser dieses Symptoms, der für mich schwieriger war, mich anzupassen, weil ich mich nicht so gut fühle, aber ich lerne nach und nach. Es hat mich gelehrt zu wählen, welche Aktivitäten den zusätzlichen Schmerz wert sind und welche nicht. Manchmal habe ich keine Wahl und ich muss mich nur darum kümmern, aber wenn ich es tue, entscheide ich mich weise.


Diese beiden Symptome sind meine schlimmsten Symptome der Fibromyalgie, abgesehen von körperlichen Schmerzen. Mit ihnen zu leben war eine Herausforderung, um es gelinde auszudrücken, aber ich gebe mein Bestes und das ist, was zählt. Wach auf, ziehe ein Lächeln auf und stelle einen Fuß vor den anderen – weiche Umarmungen, meine Mitstreiter der Fibromyalgie. Bleib stark!

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