2 av de verste symptomene på fibromyalgi ..

Som vi vet, kommer fibromyalgi med et stort antall symptomer. Antallet av symptomer kan variere sterkt fra person til person. Jeg vil ikke si at det var et symptom som gjør det enkelt å leve med fibromyalgi; Men jeg tror at noen ikke er like vanskelige som andre.


Et av symptomene på fibromyalgi som jeg personlig finner mest vanskelig å leve, er “tåkefibro”, også kjent som “hjernefeil”: problemene med kortsiktig hukommelse og manglende evne til å konsentrere seg eller fokusere. Min mann ler når jeg sier:

“Kommunikasjon var alltid en av mine sterke drag!” De som kjenner meg bedre, vil finne humor i den utsagnet også fordi de vet hvordan jeg elsker å snakke! Jeg kan også se humor fra sitt synspunkt, men noen ganger gjør dette at jeg vil gråte.


“Tåkefibro” synes å være i verste øyeblikk når smerte nivået er høyt. Jeg finner det vanskelig å finne ordene mine, eller jeg glemmer det jeg sier i midten av setningen. Noen ganger stikker jeg, uttaler dårlige ord eller sier noe som høres helt ut av emnet.

Jeg svarer på folk med uttalelser som ikke gir mening i det hele tatt. Jeg har lært å skrive ting og bruke kalenderen mye – mer enn jeg noensinne har gjort. På mine beste dager prøver jeg å le av meg selv eller le med de som ler på ordene mine.

På mine verste dager bryter jeg og gråter, føler meg som om et stykke av meg er borte. Noen ganger har jeg forsøkt å uttrykke dette til andre og har svart med “det som skjer med alle!” Eller “Jeg gjør det også”. De forstår det bare ikke.

Det er mer enn sporadisk “Jeg kom inn i et rom og glemte det jeg skrev inn”. Akkurat som tretthet av fibromyalgi er mer enn en generell tretthet eller utmattelse som er vanlig for de fleste, er hjernefeil et ekstremt symptom at mange jeg ikke forstår
Skrive, lese og stave er vanskelig noen ganger, selv om det er ting som en gang var lett for meg. Jeg er konstant gjenlesing for å forstå hva jeg leser eller skriver, eller staveord, så ser på dem fordi de ikke ser ut til å være riktige – noen ganger er de og noen ganger er de ikke. Konsentrasjon kan også være vanskelig. Hvis du fokuserer på noen som snakker til meg eller hva jeg gjør, kan det være en ekstremt vanskelig oppgave. Noen ganger føler jeg meg som å lære å leve med fibromyalgi, man må sørge for tapet av sitt gamle selv, da det forandrer mange aspekter av livet.


Det andre symptomet på fibromyalgi er vanskeligere for meg å leve med – hva skjer når jeg blir stresset og når jeg fysisk overindulger – det er følelsen av min brennende hud. Noen beskriver det som en følelse av at deres hud brennes av solen.

Jeg beskriver det ofte som en følelse som om jeg var i et husbrann. Før jeg ble diagnostisert med fibromyalgi, brukte jeg ofte ordet “ardor” for å beskrive smerten min til mannen min. Han trodde alltid at det var et merkelig valg av beskrivende ord for å beskrive smerten min.

Det var først etter diagnosen og undersøkelsen av fibromyalgi at vi begge forsto denne typen smerte og mitt valg av ord.


Noen sier at det beskrivende ordet “brenner” når det brukes til å beskrive smerte, er en som bare forstår personer med fibromyalgi. Jeg er ikke sikker på at det er tilfelle, men jeg vet for meg at det er et vanlig ord, og jeg lever med symptomet nesten daglig.

Det er så mange utløsere av dette symptomet på fibromyalgi. Noe så enkelt som ikke å få nok søvn kan få kroppen min til å føle den måten. Jeg vil ikke si at det bare er min hud som brenner, men mer som det kom fra innsiden ut. En forstyrrende samtale kan påvirke meg for dager, noen ganger mer.

Jeg kan også bli påvirket av en sterk lukt som er overveldende, den overdrevne bjeffingen av valpen vår eller å treffe albuen min på noe. (Selv om overdreven valpebarking kan forårsake uønsket symptom, gjør din ubetingede kjærlighet og bedrift det til en pris verdt å betale.) Jeg har lært å begrense kontrollerbar stress i livet som kan utløse det, så vel som å eliminere livet mitt fra som forårsaker det

For mye fysisk aktivitet er den eneste utløseren av dette symptomet som har vært vanskeligere for meg å tilpasse fordi jeg ikke føler meg veldig bra, men jeg lærer litt etter litt. Det har lært meg å velge hvilke aktiviteter som er verdt økt smerte og som ikke er. Noen ganger har jeg ikke noe valg, og jeg må bare takle det, men når jeg gjør det, velger jeg klokt.


Disse to symptomene er mine verste symptomer på fibromyalgi, bortsett fra fysisk kroppssmerte. Å lære å leve med dem har vært en utfordring, minst sagt, men jeg gjør mitt beste og det er det som teller. Våkn opp, legg på et smil og legg en fot foran den andre – myke klemmer, mine andre Fibromyalgi-krigere. Hold deg sterk!

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