17 DES PIRES SYMPTÔMES DE LA FIBROMYALGIE ET COMMENT LES GENS TRAITER AVEC EUX

La fibromyalgie se manifeste de différentes manières pour différents patients, mais la plupart peut convenir que tous les symptômes sont la vie bouleversantes. Il est pas toujours clairement comment (ou si) ils peuvent être traités, et les défis physiques peuvent trop facilement se transformer en défis émotionnels que les choses que vous pour ne deviennent de plus en plus difficile.

Nous avons demandé à notre communauté puissante avec la fibromyalgie qui les symptômes qu’ils considèrent comme le pire et comment ils y faire face. Si vous rencontrez ces symptômes difficiles ainsi, vérifier les stratégies qu’ils utilisent, et ne pas oublier que vous n’êtes pas seul à faire face aux difficultés de la fibromyalgie.

 

Voici ce que la communauté nous a dit:

1.  « N fatigue jamais fin. Je suis encore à essayer de comprendre ce qui aide, mais jusqu’à présent, certains médicaments homéopathiques fonctionnent. Mon groupe de soutien en ligne aide énormément! Et il y a toujours Netflix. Cuddles de mes chats aident aussi! »

2.  « Quand je sens que je me promène dans des sables mouvants. La seule chose qui aide est de prendre une pause pour une journée et de repos « .

3.  « Pour moi, le pire de fibro n’est pas la douleur / raideur ou la fatigue constante, il est ma vie sociale inexistante et se sentir constamment seul / mal compris. Même les jours terribles, je trouve toujours un moyen de faire face ou je mets juste au lit et pleurnicher à mes animaux de compagnie. Mais il est difficile de trouver un moyen de « faire face » avec la solitude et la dépression qui suit « .

4.  « Le pire est la raideur des articulations et des douleurs articulaires je vieillis, toute la journée des nausées, et d’ être fatigué et ne pas pouvoir dormir la nuit. Je suis un grand fan du coussin chauffant, et de garder hydraté, et en prenant mes jours un jour à la fois « .

5.  « Toute la rigidité du corps comme si vous avez travaillé tous les os de votre corps la veille. Pas moyen de faire face à la douleur, mais ne travaillant aider …. amoindrit partie de la rigidité. Je remarque vraiment plus quand je ne fais pas cardio. Je dis à ma famille je travaille pour perdre du poids, ce qui est vrai, mais il est encore plus pour aider à la rigidité « .

6.  « Quand quelque chose fait toujours mal, il est difficile de se concentrer. Lorsque vous ne recevez jamais bien dormir, passer à travers une journée de travail sans sieste est incroyablement difficile. J’utilise des huiles essentielles pour aider à la fois. Je me assurer d’ avoir le meilleur sommeil que je peux et reposer quand je peux. »

7.  « La douleur dans chaque partie de mon corps! Certains jours ça fait mal même à respirer. Je me bichonne ces jours -là et faire seulement ce qui est nécessaire. Je sauver un livre que je sais que je vais me perdre dans la lecture, ont quelques siestes, et essayer de détendre mes muscles tendus pour minimiser la douleur. Je câlins et animaux de compagnie mes chiens beaucoup, aussi. Je vis moi – même dans les bois du Minnesota vers le haut-nord loin du bruit et du stress de la vie dans une ville. L’aide calme et la solitude me garder détendue « .

8.  « Pour moi , ce sont les problèmes cognitifs. Je peux cacher la douleur, mais quand je ne peux pas former des mots ou se perdre dans des endroits familiers et voir le regard de pitié sur les visages des autres, je veux pleurer. Je l’ habitude d’être confiant et sortant. Maintenant , je veux juste cacher. »

9.  « Le pire des symptômes pour moi sont les tics de main au hasard. Je traite avec eux en faisant des blagues « .

10.  « Ne pas avoir un thermostat interne. Je suis rarement juste une température confortable. Toujours chaud ou froid! J’essaie d’habiller avec des couches et savoir où les ventilateurs et l’ air frais sont si possible! »

11.  « Se réveiller Achy comme je l’ ai fait une randonnée de 20 miles, le sentiment que je ne dormais pas du tout, et se sentir comme ma tête est coincée dans le brouillard. Il se sent comme je suis le décalage horaire tout le temps, la marche à travers les sables mouvants avec les courbatures de la grippe … J’essaie d’avoir une attitude positive sur les bonnes parties de ma vie et de gérer le mieux que je peux. »

12.  « L’incohérence. Un jour , vous peut se sentir relativement bien et le lendemain , vous ne pouvez pas sortir du lit. Fibro ne se soucie pas si vous avez des choses à faire ce jour – là; si elle est une mauvaise journée de la douleur, il est une mauvaise journée de la douleur « .

13.  « Le pire symptôme devrait être ma perte de soi. J’ai travaillé dur pour la vie que j’avais. J’étais heureux. Mais maintenant , je me sens comme un fardeau. Peu importe comment je suis positif ou combien je souris, je lutte avec la suppression constante de l’ indépendance. Je ne sais pas comment aimer ou même comme ce que je suis devenu. J’ai un soutien incroyable de mon partenaire, et je l’ apprécie plus qu’il ne le saura jamais. Temps ensemble fera une différence. Il en va de trouver de nouveaux moments heureux et lieux « .

14.  « Le pire symptôme est une sorte de douleur spécifique; il se sent comme si je poignardait, dans un ordre aléatoire, avec un couteau électrifié rouge sur tout mon corps. Il n’y a pas de soulagement. Tout ce que je peux faire est de frotter mes pieds / mains / pieds / bras, se recroqueviller dans une boule et attendre que ça passe « .

15.  «J’ai de bons et de mauvais jours, mais les mauvais jours , il se sent comme chaque joint dans mon corps hurlait. Ces jours -là, je prends une belle longue bain de sel epson avec des bulles et de la musique calme; il est toujours utile « .

16.  « poussées de fibromyalgie sont les pires. La douleur est insupportable et se fait sentir dans toutes les articulations, chaque muscle, chaque nerf. La fatigue est écrasante, et le sommeil est souvent réduit au minimum parce que la douleur est si grave. Embrasements se produisent à cause du stress, le temps, le surmenage, et malheureusement, parfois il n’y a aucune raison du tout « .

17.  « Se sentir seul. J’ai trouvé une grande communauté en ligne, et je chérir les amis comprendre couple que j’ai « .

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