La fibromialgia se manifiesta de diferentes maneras para diferentes pacientes, pero la mayoría puede estar de acuerdo que todos los síntomas son altera la vida. No siempre está claro cómo (o si) que pueden ser tratados, y los desafíos físicos puede convertirse muy fácilmente en problemas emocionales como las cosas que solía hacer cada vez más difícil.
Nos preguntamos a nuestra comunidad Mighty con fibromialgia la que los síntomas que consideran el peor y cómo hacer frente a ellos. Si usted está experimentando estos síntomas difíciles, así, echa un vistazo a las estrategias que utilizan, y no se olvide que usted no está solo en el tratamiento de las dificultades de la fibromialgia.
Esto es lo que la comunidad nos dijo:
1. “N fatiga nunca acabar. Todavía estoy tratando de averiguar lo que ayuda, pero hasta ahora, ciertos medicamentos homeopáticos están trabajando. Mi grupo de apoyo en línea ayuda enormemente! Y siempre hay Netflix. Mimos de mis gatos ayudan, también!”
2. “Cuando me siento como si estuviera caminando a través de arenas movedizas. La única cosa que ayuda es tomar un descanso por un día y descanso “.
3. “Para mí, la peor parte de fibro no es el dolor / rigidez o la fatiga constante, es mi vida social inexistente y constantemente sentirse solo / incomprendida. Incluso en los días terribles, siempre encuentro alguna manera de hacer frente o sólo me tiendo en la cama y lloriqueo a mis mascotas. Pero es difícil de encontrar una manera de ‘hacer frente’ a la soledad y la depresión que le sigue “.
4. “Lo peor es la rigidez de las articulaciones y dolor en las articulaciones me hago, náuseas y cansancio durante todo el día y luego no ser capaz de dormir por la noche. Soy un gran fan de la resistencia de calentamiento, y mantener hidratado, y tomando mis días un día a la vez “.
5. “Toda la rigidez de la carrocería, como si usted ha trabajado todos los huesos de su cuerpo el día anterior. No hay manera de lidiar con el dolor, pero trabajando a cabo sí ayuda …. disminuye algo de la rigidez. Realmente noto más cuando no hago cardio. Le digo a mi familia hago ejercicio para bajar de peso, lo cual es cierto, pero es más aún para ayudar con la rigidez “.
6. “Cuando algo siempre duele, es difícil concentrarse. Cuando nunca se tiene un buen sueño, conseguir a través de una jornada de trabajo sin una siesta es increíblemente difícil. Yo uso de aceites esenciales para ayudar con ambos. Me aseguro de conseguir el mejor sueño que puedo y descansar cuando pueda “.
7. “El dolor en cada parte de mi cuerpo! Algunos días incluso está de más aliento. Me mimar yo en esos días y hacer sólo lo necesario. Puedo guardar un libro que sé que se perderá en la lectura, tienen algunas siestas, y tratar de relajar los músculos tensos para minimizar el dolor. Me abrazar y acariciar mi perros mucho, demasiado. Yo vivo sola en el bosque de Minnesota hasta el norte-lejos del ruido y el estrés de vivir en una ciudad. La ayuda tranquilidad y la soledad me mantenga relajada “.
8. “Para mí es los problemas cognitivos. Puedo ocultar el dolor, pero cuando no puedo formar palabras o se pierden en lugares conocidos y ver el aspecto de la piedad en las caras de los demás, quiero llorar. Solía tener confianza y saliente. Ahora sólo quiero que ocultar “.
9. “peores síntomas para mí son las contracciones de la mano al azar. Yo trato con ellos al hacer chistes “.
10. “No tener un termostato interno. Soy rara vez sólo una temperatura confortable. Siempre caliente o congelación! Trato de vestir con capas y saber dónde están cuando sea posible ventiladores y aire fresco!”
11. “Despertar adolorida como fui de excursión de 20 millas, sensación de que no he dormido en absoluto, y sentir como si mi cabeza se ha quedado atascado en la niebla. Se siente como que estoy jet lag-todo el tiempo, paseando por la arena movediza con los dolores en el cuerpo de la gripe … Trato de tener una actitud positiva sobre las partes buenas de mi vida y gestionar lo mejor que pueda “.
12. “La inconsistencia. Un día usted puede sentirse relativamente bueno y al día siguiente no puede levantarse de la cama. Fibro no importa si tienes cosas que hacer ese día; si se trata de un mal día el dolor, es un mal día el dolor “.
13. “El peor síntoma tendría que ser mi pérdida de sí mismo. He trabajado mucho para la vida que tenía. Yo era feliz. Pero ahora me siento como una carga. No importa qué tan positivo que soy o lo mucho que sonreír, lucho con la eliminación constante de la independencia. No estoy seguro de cómo amar o incluso como lo que me he convertido. Tengo el apoyo de mi pareja increíble, y lo aprecio más de lo que jamás lo sabrá. Tiempo juntos hará una diferencia. Así que va a encontrar nuevos momentos felices y lugares “.
14. “El peor síntoma es un tipo específico de dolor; se siente como si estuviera siendo apuñalado, en orden aleatorio, con un cuchillo al rojo vivo electrificado por todo el cuerpo. No hay alivio. Todo lo que puedo hacer es frotar mis pies / manos / brazos / piernas, recuéstese en una bola y esperar a que pase “.
15. “Tengo buenos y malos días, pero en los días malos se siente como todas las articulaciones de mi cuerpo está gritando. En esos días me tomo un buen baño de sales Epson largo con burbujas y música tranquila; siempre ayuda “.
16. “Fibromialgia ataques de asma son los peores. El dolor es insoportable y que se siente en cada articulación, cada músculo, cada nervio. La fatiga es abrumadora, y dormir a menudo se mantiene al mínimo ya que el dolor es tan severo. Ataques de asma ocurren debido a la tensión, tiempo, esfuerzo excesivo, y por desgracia, a veces no hay ninguna razón en absoluto “.
17. “Sentirse solo. He encontrado una gran comunidad en línea, y valorar la pareja comprensión de amigos que tengo “.
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