1. “Imagina la peor enfermedad, fatiga y dolor y tu cabeza está en una profunda niebla donde te hizo pensar en ir al hospital. Ahora imagine que se siente así todos los días y, sabiendo que si va al hospital, probablemente no encontrarán nada malo y lo enviarán a su casa y le dirán que vea a su médico de cabecera. Eso es un trastorno de fibromialgia.
2. “Imagina que te levantas por la mañana sintiéndote exhausto, como si no hubieras dormido en días. Mientras te acuestas en la cama, tratando de juntar la energía para levantarte y dirigirte al baño, te enfrentas al pensamiento: ‘¿Puedo pasar otro día?’ Luego imagine que todo lo que hace, incluso las tareas más pequeñas, se siente como si estuviera caminando a través de concreto mojado hasta la cintura.
3. “Imagen de un teléfono. Hay algo mal con el cargador. No importa cuánto intente cargarlo, nunca se carga más del 50 por ciento, si tiene suerte. Cierra todas las aplicaciones para intentar conservar la batería, pero no sirve de nada. Se reduce rápidamente al cero por ciento en poco tiempo. Ahora imagine que ha sido golpeado por un autobús, y usted es el teléfono.
4. “Le digo a la gente, ‘¿Sabes cómo te sientes cuando tienes gripe? Dolores en el cuerpo, todo duele incluso su cabello y uñas? Sí, esos son mis buenos días.
5. “Piensa en la peor gripe que hayas experimentado, y únala con la caída de tres tramos de escaleras, directamente en una colmena. Eso es un desorden de Fibromialgia.
6. “Para mí, el trastorno de la fibromialgia es un pensamiento confuso y borroso, y en un mal día de mudanza, siento que estoy tratando de caminar a través de la gruesa gelatina. Hacer cosas normales causa dolor. Agotamiento total sin el beneficio de un sueño reparador.
7. ” Es como si tu cuerpo tuviera un accidente automovilístico mientras tuviste la gripe y nunca terminaste de superar a ninguno de ellos.
8. “Lo peor de esta enfermedad es que no puedes [imaginarla]. Hay demasiados síntomas que creo que la gente se pierde después de enumerar los primeros 10. A menudo, esa es la razón por la que las personas con fibro se sienten tan aisladas y recurren a la comunidad en línea para encontrar personas que lo entienden.
9 . “A veces, cuando me quito la ropa y me miro en el espejo, espero ver hematomas en todas partes porque me duele mucho el cuerpo y me duele tanto. Luego, hay momentos en los que me gustaría tener moretones porque entonces las personas pueden tomarse mi dolor en serio.
10. ” Imagina estar envuelto en un burrito por una manta hecha con esas sillas de masaje con las bolas en ellas. Excepto que nunca se sabe cuántos te presionarán o dónde. Algunos días es como si los músculos más profundos de mi cuerpo fueran golpeados repetidamente, mientras que otros sienten que mi piel está en carne viva. Todo el tiempo no puedo pensar con claridad, como que mi oxígeno se está agotando por el peso y el dolor.
11. “Mi cuerpo o siente que ha sido golpeado por un camión u otros días alguien tiene una muñeca vudú clavando alfileres y torciéndolos con un trastorno de fibromialgia.
12. “Dolor tan extremo que te da ganas de vomitar”. Es difícil pensar, comer, dormir o hacer cosas ‘normales’. Tus sensores están apagados. Parece que el ruido suena en una cueva, todo se repite. Huele te molesta. Las luces te lastiman los ojos y te mareas como un paseo de carnaval.
13. “Es el síndrome de la princesa y el guisante … cada sensación posible se intensifica. Estar en un puente o cerca de una escalera mecánica se siente como un terremoto. Hueles cosas que nadie más hace. Y no puedes desconectar cosas como luces zumbantes.
14. ” Como obtener caballos de Charlie en músculos que ni siquiera sabías que existían. Cuando sales a comer, constantemente te retuerces porque el asiento te lastima la espalda. Siempre estás cansado, e incluso una taza llena de café tostado oscuro no arreglará eso “.
15. “Es como el día después de un entrenamiento extenuante, con los músculos rígidos y adoloridos. Agregue una quemadura de sol y un dolor de cabeza, luego la gripe además de eso. La fatiga por Fibromialgia se siente como si tu sangre se hubiera convertido en cemento en tus venas “.
16. “A veces tengo episodios graves de trastorno de fibromialgia que sienten cómo se siente cuando tocas una batería con la lengua cuando alguien te desafiaba cuando eras más joven. Se siente durante una hora constante más o menos antes de que entren los medicamentos para el dolor.
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