16 façons d’imaginer ce que la fibromyalgie se sent comme

Quand vous dites à quelqu’un que vous avez la fibromyalgie, vous pouvez vous retrouver avec un regard confus. «Comment ça?» En fait, il est difficile de répondre à cette question: il n’est pas facile de décrire la sensation de fibromyalgie   à quelqu’un qui n’a jamais éprouvé ce niveau de douleur ou les défis qui peuvent survenir.

Pour aider les gens à avoir une idée de ce qu’est la fibromyalgie, nous avons demandé à notre communauté Mighty de partager comment ils la décriraient à quelqu’un qui ne l’a pas ressenti. Leurs réponses mettent la réalité de la fibromyalgie en mots que les personnes en bonne santé peuvent comprendre et comprendre.

C’est ce que notre communauté nous a dit:

1.   “Imaginez la pire maladie, la fatigue et la douleur et votre tête est dans un brouillard profond où cela vous a fait penser à aller à l’hôpital. Maintenant imaginez que vous vous sentez comme ça tous les jours et, sachant que si vous allez à l’hôpital, vous ne trouverez probablement rien de mal et ils vous renverront à la maison et vous diront de voir votre médecin généraliste. C’est la fibromyalgie. ”

2.   “Imaginez que vous vous réveilliez le matin épuisé, comme si vous n’aviez pas dormi depuis des jours. Alors que vous êtes allongé dans votre lit, essayant de rassembler l’énergie nécessaire pour vous lever et aller à la salle de bain, vous êtes confronté à la pensée: «Puis-je passer une autre journée? Imaginez ensuite que tout ce que vous faites, même les plus petites tâches, se sent comme si vous marchiez à travers le béton humide jusqu’à la taille. ”

3.   “Image d’un téléphone. Il y a un problème avec le chargeur. Peu importe combien vous essayez de le charger, vous ne facturez jamais plus de 50%, si vous êtes chanceux. Fermez toutes les applications pour essayer de conserver la batterie, mais cela n’aide pas. Il réduit rapidement à zéro pour cent dans un court laps de temps. Imaginez maintenant que vous avez été frappé par un bus, et vous êtes le téléphone. ”

4.   “Je dis aux gens:” Savez-vous ce que vous ressentez quand vous avez la grippe? Douleurs dans le corps, tout blesse même vos cheveux et vos ongles? Oui, ce sont mes bonsoir. “”

5.   “Pensez à la pire grippe que vous avez vécue, et rejoignez-la avec la chute de trois étages, directement dans une ruche. C’est la fibromyalgie. ”

6.   «Pour moi, la fibromyalgie est une pensée confuse et nébuleuse, et lors d’une mauvaise journée de déménagement, j’ai l’impression d’essayer de traverser la gelée épaisse. Faire des choses normales provoque de la douleur. L’épuisement total sans le bénéfice d’un sommeil réparateur “.

7.   ”   C’est comme si votre corps avait eu un accident de voiture pendant que vous aviez la grippe et que vous n’aviez jamais fini de les surmonter.”

8.   “La pire chose à propos de cette maladie est que vous ne pouvez pas [l’imaginer]. Il y a trop de symptômes que je pense que les gens se perdent après avoir listé les 10 premiers. Souvent, c’est pourquoi les gens avec fibro se sentent tellement isolés et se tournent vers la communauté en ligne pour trouver des gens qui le comprennent. ”

9.   “Parfois, quand je retire mes vêtements et que je me regarde dans le miroir, je m’attends à voir des bleus partout parce que mon corps me fait très mal et ça fait tellement mal. Ensuite, il y a des moments où j’aimerais avoir des bleus parce que les gens pouvaient alors prendre ma douleur au sérieux. ”

10.   ”   Imaginez enveloppé dans un burrito par une couverture faite avec ces chaises de massage avec les balles en eux. Sauf que vous ne savez jamais combien vont vous presser ou où. Certains jours, c’est comme si les muscles les plus profonds de mon corps étaient frappés à plusieurs reprises, alors que d’autres ont l’impression que ma peau est crue. Tout le temps je ne peux pas penser clairement, comme si mon oxygène était bas en raison du poids et de la douleur. “

11.   “Mon corps a l’impression d’avoir été heurté par un camion ou d’autres jours quelqu’un a une poupée vaudou qui colle des épingles et les tord.”

12.   “Douleur extrême qui vous donne envie de vomir.” Il est difficile de penser, manger, dormir ou faire des choses “normales”. Vos capteurs sont éteints. Il semble que le bruit retentisse dans une caverne, tout se répète. L’odorat vous dérange. Les lumières vous font mal aux yeux et vous vous sentez étourdi comme un tour de carnaval. ”

13.   “C’est le syndrome de la princesse et du pois … toutes les sensations possibles s’intensifient. Être sur un pont ou près d’un escalator se sent comme un tremblement de terre. Vous sentez des choses que personne d’autre ne fait. Et vous ne pouvez pas déconnecter des choses comme des lumières bourdonnantes. ”

14.   ”   Comment obtenir les chevaux de Charlie dans des muscles que vous ne saviez même pas existé. Quand vous sortez pour manger, vous vous tordez constamment parce que le siège vous fait mal au dos. Tu es toujours fatigué, et même une tasse pleine de café torréfié ne va pas régler ça. “

15.   “C’est comme le lendemain d’un entraînement intense, avec des muscles raides et douloureux. Ajouter un coup de soleil et un mal de tête, puis la grippe en plus de cela. La fatigue est comme si votre sang était devenu du ciment dans vos veines. ”

16.   “Parfois, j’ai des épisodes graves qui ressentent ce que l’on ressent quand on joue du tambour avec la langue quand quelqu’un vous a défié quand vous étiez plus jeune. Vous vous sentez pendant une heure ou deux avant que les médicaments contre la douleur entrent en jeu. ”

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