Die Entschuldigung verdanke ich meinen Patienten mit Fibromyalgie

Ich muss mich entschuldigen.

Ich möchte mich bei all den Patienten entschuldigen, die ich in meinen Jahren der Notarbeit gesehen habe und chronische Schmerzen aufgrund von Fibromyalgie oder Autoimmunkrankheiten hatte.

Bildergebnis für Die Entschuldigung, die ich meinen Patienten mit Fibromyalgie verdanke

Ich möchte mich dafür entschuldigen, dass ich nicht wüsste, verstehe und in einigen Fällen nicht einmal glaube, was passiert ist.

Sie sehen, in der Arzthelferinschule, wie in der Medizinschule, lehren sie uns nicht, wie diese Krankheiten das Leben unserer Patienten beeinflussen. Sie sagen uns nicht, dass es für unsere Patienten unglaublich anstrengend war, ins Büro zu kommen, oder dass sie sich in den nächsten Tagen wahrscheinlich ausruhen und erholen müssen. Sie sagen uns nicht, dass das Sitzen auf dem Stuhl im Wartezimmer allen Körperteilen schadet, die Kontakt mit dem Stuhl, Ihrer Kleidung oder Ihren Schuhen hatten. Sie lehren uns nicht, wie ihre Familie von ihrer Unfähigkeit beeinflusst wird, an Dingen teilzunehmen, ihren Ehepartnern oder Kindern Aufmerksamkeit zu schenken oder sogar zu Abend zu essen.

Aber jetzt weiß ich es. Und es tut mir leid

Ich weiß das, weil ich gegen Fibro und einige andere Autoimmunprobleme gekämpft habe, die seit einigen Jahren noch nicht identifiziert wurden. Ich weiß es, weil ich meinem kleinen Sohn beibringen musste, sanft zu umarmen. Ich weiß, weil ich Freunde gehört habe, wie viel Zeit ich im Bett verbringe. Ich weiß das, weil ich Patienten in einem Büro nicht mehr physisch sehen kann (glücklicherweise konnte ich im aufstrebenden Bereich der Telemedizin von zu Hause aus arbeiten). Und ich weiß, weil dieser gute alte “Fibronebel” oft den Anschein erweckt, als würde mein Handy abgeschnitten, während ich mich an die Worte erinnere, die ich dem Patienten sagen wollte, dem ich helfen möchte.

Zuerst wollte ich meine Diagnose vor meinen Kollegen verbergen. Es gab immer noch viele Anbieter, die nicht einmal glaubten, dass Fibro eine echte Störung ist (ich war früher einer von ihnen). Aber in den letzten zwei Jahren der direkten Verweise auf Spezialisten, Tests mit seltsamen, aber nicht eindeutigen Antworten, Tests einer Medizin nach der anderen, habe ich gelernt, dass, obwohl die medizinische Gemeinschaft der Realität gegenüber offen ist, dass es real ist, dass “Sie” immer noch nicht tun sie verstehen

Das traf mich vor zwei Tagen erneut, als ich mich während eines Besuchs viermal mit einem Rheumatologen verabredete, der sagte: “Ich sehe nichts Besorgnis”. Wirklich? Halten Sie es nicht für bedenklich, einige Tage meine Arbeit von meinem Bett aus erledigen zu müssen? Denken Sie nicht, dass die Isolation, die verursacht wird, wenn ich nicht in der Lage bin, Dinge mit meiner Familie zu sehen und zu sehen, besorgniserregend ist?

Es ist an der Zeit, dass Zulieferer aufhören, sich die Laborergebnisse anzusehen und das Gesamtbild zu betrachten. Selbst wenn die Anbieter keine Heilung erfahren, wäre es ein großer Schritt, die Lücke zwischen Ihrer und meiner Realität zu schließen.

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